Well have just seen my ONC and because I have a good prognosis and am begnning to get 'unpleasant side effects plus have Phlibitus he recommended that I come off Tamoxifen. The advanteges where small according to the statisical print out and I have more of a chance of developing DVT than BC again. He also was reluctant to prescribe an alternative because of further side effects. So here I am on the rocky road alone. Have very mixed feelings but deep down I’m so glad I’m off Tamox.Lets so hope those forecasts are right - chrystal ball anyone! Wasn’t interested in discussing overy removal even though there is a close family history but refered me back to GP - why because of funding!! Even politics creeps into BC. Have a good weekend girls.Now wheres that wine…
Dear LazyDaisy,
I know it’s scary when one stops, but hey, its good news. I’ll raise a glass to you this evening Cheers
Love Maria
Oh, a chilled glass of chablis on a Friday afternoon,how I wish!
I can understand both your apprehension and relief.
Apprehension I suppose there’s a sense of protection when taking it but even with Tamoxafen some people get a reoccurance
Relief - a return to a snese of normality maybe and SEs can be horrid (particularly the weight gain for me).
If you have your ovaries out you will still have ER production going on? But much less of it I suppose. What about Zoladex? I have Zoladex to turn my ovaries off? Has that been discussed with you?
Wishing you well and hoping that wine is as good for you as the thought is for me and that your GP is ever so helpful (mine is very much so)
L x x
Congratulations!
Hi Lazydaisy,
I saw my onc on Monday and I am also now off Tamoxifen. The side effects for me were very bad. I was on Tramadol for the joint pain and had tried every alternative remedy for the hot flushes and night sweats. My tumour was 10mm Tubular and all completely removed so my risk of recurrence is low and he is happy they can manage it with close follow up.
Like you I am feeling a mixture of relief and a little bit of fear, but I could not imagine getting back to anywhere near my old life while I was on Tamoxifen. Now, after a few days of migraine headache which I think was a withdrawal symptom, I slept really well last night and am hoping to get back to work some time next week after I see my GP on Monday.
Its so good to find someone else in the same position as part of my fear was going against the trend that so many people feel so strongly about - you can’t help thinking you should go with what works for the majority,
Good luck!
E xxx
Hi gals - I to was on tramadol for joint pain but it really messes my head up . Needed to take some after a long break where I’ve been o.kish and felt like I’d been hit by a sledge hammer.
No unfortunately ONC said side affects would be equally worrying with the other options. Took my daughter along ( she a specialist nurse and isn’t fazed easily by the system. Bless him - everytime he tried to get off his seat she’d pop in with another question gave his little bottom a good work out!)Close monitoring should be o.k. Although my margins where not clear I’m happy to take a risk if the alternative is Tamox side effects and a serious risk of DVT.
I’ve slept for two straight nights first time in six months feel so different - I know it’s proberly only psycological but no flashes today or last night! Onward and upward girls.Now where did I put my Taro Cards…