Hi everyone
Just to let you know my latest scan results . The scan i had in december was really good , in fact i got a letter from the hospital saying it looks very promising. 5 months later the recent scan showed progression. I have had the same oncologist for 8 years now , he has been great and then suddenly he is off due to stress, dont know when he will be back. i felt lost when they told me , anyway had to go and see this other doctor sitting in for him. Firstly i could not understand his broken english, oh before i go on , my husband came with me for results , he is a nervous wreck poor man. He tells me he has to go and check on the car , sure enough as soon as he goes i get called in ha typical. So here i am trying to understand this doctor , he tells me the tumours have grown but not spread so he is not to concerned,as its stable, i look up and say excuse me i,m no doctor but stable to me means not active, so on one hand you,re telling me its growing again but its stable? anyway he decides not to do anything because i look so well,and doing fine , i have to stay on the same chemo for 3 months and then another scan to see if its still growing . Well i,m not happy , by the time my next scan comes through they will be bigger , i mean they are not going to get any better are they ,. So i have asked for a second opinion. But i cant get an appointment until the 28th of this month. We are going on a holiday on the 18th , i hope i can still enjoy it . I have only had 3 chemo,s in 9 years so i hope they can give me something else , but i,m so tired of this game , if it wasn,t for my children i wouldn,t bother . My little girl who is only 10 , cries each time i get bad news but i dont want her to be left in the dark , she needs to know , she is so scared , how cruel this is on her little life , she should be out there enjoying her childhood , i,ve ruined it for her. lots of love to you all, carolm
Hi Carol
Sorry to hear your news and about the way in which it was given.I am sure you have done the right thing by asking for a second opinion, I would cerainly have done the same. What chemo are you on at the moment and do you know what the other options are? I hope that you can try to enjoy your holiday and spend some relaxing time with you children at least knowing that you have the other appointment lined up. I know what you mean about the effect on your children. Mine are devasted by my bad news and at the moment I feel so guilty as everyone is walking on eggshells as I’m waiting for scan results and I really bit my 15 year old’s head off today and I feel a terrible mother.
love Kathryn
It does sound a strange approach to me. Mine are quick to change treatments at the signs of any progression. I hope you do manage to enjoy a good holiday with your children and family and that you get some reassurance at your next appointment. Keep us posted.
Jennyx
Hi Carol…I just wondered which tumours the onc was talking about…bone or liver? Is there anyway your GP can get you a quicker appointment? You haven’t ruined your little girl’s childhood…it’s all out of your hands…please don’t feel guilty…it’s bad enough living with this without feeling you’re to blame in any way…you’re not.
I hope you all have a good holiday…Take Care…x.x.x
Hi everyone
Just to answere your questions in reply to my posts . the tumours are in my lungs , liver and bones , but bones are stable and they are not sure on liver , but definit progression on lungs. Thank you for your replies . x
Hi Carol,
Sorry to hear of your progression and I understand fully how frustrating it can be when our usual onc is not around. Could you ring his sec and explain how you feel I am sure she will refer you to someone else.
I know you are going on holiday and that it is only 6 days off, so try not to let it spoil your family fun. This disease takes so much from us I can understand fully how you feel about your little girl. Children are tougher than we give them credit for.
Hope you are able to get an appointment for when you return from your hols an d start a new treatment.
Good luck.
Love Debsxxx
Hi Carol, I echo the above try to enjoy your holiday and all the best wishes to you at your appointment, take care love junieliz
Hi Carol,
well that wasn’t very help full …
do doctors acctully think they are putting your mind at rest when they come out with rubish like that.
Please try and enjoy your holiday, you cant do anything until you see someone else and hopefully the rest will get the batteries recharged and ready for no nonsense.
I have a ten year daughter so I understand how you feel…
Sounds like a break is what you all need…
Have you thought about any extra support for her?
Best wished
Tess.X