Hi, my mum, is 63 & has been diagnosed with Grade 2 IDC with high grade DCIS. 3cm. 1/1 lymph node with micromets after pathology results.(was grade 3 after first biopsy)
Waiting on oncotype score. I know everyone is different but wondered what score people got with this type and what treatment they had?
thank-you so much 
I got Onco 14 with Stage 1A, Grade 1 and no lymph node involvement.
Hi @clarebear1. Sorry to hear this. I thought you might find this thread useful from people asking similar questions: https://forum.breastcancernow.org/t/what-to-ask-oncologist-about-low-oncotype-score-radiotherapy/123087
If you or your mum have any questions in the meantime, you can also speak to one of our nurses, reach them on our free helpline 0808 800 6000.
I truly hope you are able to get some answers soon.
Best wishes,
Chloe
Hi
I had IDC with one micromet and one macromet. My onco score was 11 and I went on to have radiotherapy and Letrozole for 10years. I was ER/PR8 and was 58 at the time.
Hope your mum gets a low score
xx
Mine was 29. I had Grade 3 IDC but the tumour was smaller than initially thought (19mm) and there was no node involvement so thought I might skip chemo. The score of 29 (combined with the high grade and the fact I’m under 50) put it back in the picture though. I ended up having 8 cycles of chemo, followed by 10 sessions of radiotherapy.
I was Grade 2 IDC, 21mm, 1 node. My oncotype score was 26. I had lumpectomy, 6 rounds of chemo, 15 days radiotherapy. Now on anastrozole (10 years) and ribociclib (3 years). I’m 55.
The waiting for oncotype score is horrible. I hope your mum is ok.
Thank-you.
Was that your choice to have chemo?
Hope your are doing well now.
I was post menopausal and chemo is recommended for an Oncotype score of 26 or above so I was recommended to have it but I could have refused. I was very upset the day I got the result but chemo wasn’t as bad as I feared.
Thank-you.
I’m worried about the results, have been waiting 5 weeks.
Can I ask how many months chemo took and average length of treatment from start to finish?
Thank-you so much
I had chemo from March to July, a session every 3 weeks. I think the length of each session depends on which drugs you are given and whether using cold cap. I didn’t use cold cap and was usually at hospital between 90 minutes and 3 hours each time.
Hope this helps. Hopefully your mum won’t need chemo, but if she does, I found it doable. 
Hi, good luck to you and your Mum. The waiting is the worst part. I chased for my results, I was told 4 weeks, but got them quicker. I’m 60 so post menopause. My cancer was 2cm and 1 node. It was ER+ and HER- my onco score was 24. So what they consider borderline for chemo. I was already on letrozole prior to surgery in July. Thankfully i didn’t need chemo as the benefit would have been 1%. I’ve just finished 15 sessions of radiotherapy.
I hope this helps, all the best x
Hi
I was also 63 and diagnosed with ILC (lobular) grade 2, and yes, grade 3 on biopsy too. Also just 1 lymph node with micromets. So quite similar to your mum. 2cm tumour with three very small satellites (<3mm).
My Oncotype score was 16, so below the score for chemotherapy of post menopausal women, which is 25. The three weeks waiting for the results were very stressful and I was in tears when the nurse called me (relief).
I had five days of radiotherapy and am on Letrozole for seven years - luckily no side effects.
The first anniversary of my diagnosis is this Friday and my telephone appointment with the breast cancer nurse tomorrow, so the memories of it all have resurfaced, even though active treatment ended in April. Worth knowing this when you are supporting your mum; she’s lucky to have you there. Ask if you have any further questions. x
Thank-you everyone. Unfortunately her result was 28! Bit of a shock. Looks like 8 rounds of chemo. Hoping to get one in before Xmas. About 4 weeks before she can start. Praying it’s a bit sooner.
Is this chemo just a back up for any cells that might have escaped?
Thank-you, very stressed and worried.
I was similar to your mum and chemo advised because of my Oncotype score (26). I was told that the cancer had been removed by the surgery and that chemo was purely a preventative measure. I guess that would be in case any cancer cells had escaped somehow.
I hope your mum can get started on the chemo soon. It is daunting but I found the chemo nurses to be lovely and I felt well cared for. Also didn’t feel as ill as I expected to. Lots of things given to help with any side effects.
I wish your mum well.
Thank-you!
Can I ask what chemo you had and how long the duration of chemo was?
thanks and hope you are doing well now .
I had 3 sessions of EC and then 3 of docetaxal. Each session 3 weeks apart. I started at the end of March and last session was early July. I think it does vary for lots of reasons so your mum’s experience may be slightly different.
Hearing the news that chemo was recommended sent me into a complete panic but once I had the first session ( 2 weeks later), I began to think I might be able to cope and I did 
I am doing ok now. Your mum will too. I hope you are feeling ok yourself. It’s hard watching someone else go through it.
Thank-you so much.
looks like she will be having EC & Paclitaxel- I think every 2 weeks.
Did you have radiotherapy afterwards aswell?
It’s all so daunting isn’t it but I’d rather the extra precautions!
Yes, I had 15 sessions of radiotherapy starting about 4 weeks after my last chemo session.
It’s all doable.
There is some comfort in knowing that everything possible has been thrown at the cancer.
Hope all goes well.
I’m 67. Diagnosed with grade 2 er+ her- cancer almost exactly a year ago. Initial tests showed that I probably wouldn’t need chemo but my Oncotype score came back as 29, so chemo it was. I had breast cancer 17 years ago but it was a completely different cancer, triple negative and aggressive, for which I had a lumpectomy, strong chemo and 20 sessions of radiotherapy.
This new (but different) cancer is in the same breast so I couldn’t have radiotherapy again. I had a mastectomy, and chemo was weekly doses of Carboplatin and Paclitaxol, given at the same session. I was supposed to have 12 but had to stop at 10 as my blood levels were fluctuating wildly and the Oncologist was concerned that an extra 2 would cause more harm than good. Now on Letrozole for 5 years. Wishing all the best for your Mum.