Well its finally here, appointment tomorrow at 11.
I feel like im going to be defense council for my body!
Im grade 3 her2 er positive, so the dreaded CH for me im guessing. I will ask about alternatives but i think ill just be clutching at straws. I have 3 girls 21,18 and 7. I had a lump 7 years ago and it turned out that it was hormonal ie pregnant!
Not sure at my age id of preferred it to be the same this time lol, i was 42 then!,…weird that the lumps in the exact same place. I think the surgery was a walk in the park compared to what lies ahead! Gutted as my dream holiday is booked for august so i suppose thatll be a no go unless hubby takes them alone.
I watch my dad struggling through his chemo and itll be the hardest thing ill have to do is tell him…
Anyway…sorry to waffle, just helps a little to type it out as im a verry private person. …my family dont talk about things any deeper than the weather! So although i know its not healthy, i keep myself to myself. My husband is the biggest sress head ever born…thats hard to handle so i play everything down. Although i did make him come to my results appointment and hd nearly fell off his chair when CH was mentioned. The thing he…and me really struggle with is the words he said when he stated theyd be recommending CH but it doesn’t guarantee itll scoop up any rogue cells, nor will it guarantee it wont return! My friend had exact same stats as me 2 years ago and hers has returned! My other friend refused CH 5 years agk and shes fine so far! Anyway ill clear off now…will update tomorrow if my heads up to it.
Ps…i wont be able to work either in my amazing job…i work in a school with children with severe learning difficulties
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Hi Tina, I’m guessing you got the mix up over your HER 2 status sorted? Your oncologist isn’t there to lay down the law about what you should and shouldn’t do, they will give you the facts and their recommendation and explain why they feel you need this course of treatment, they cant give you any guarantees and they have to tell you this but I know it’s these things that stick in your mind , it all comes down to you living with the decision you make, hopefully after your appointment you will feel a bit better Xx Jo
Thats pretty shocking Tina, what a mistake to make!! All letters ive recieved are from a surgeon not my BCN, yes i remember the Brittas Empire! Maybe shes a raving alcoholic too ?mine was really sweet and came to my oncology appoint but i understand why you declined her kind offer!! Xx
Hi Tina Hope you got on ok & they answered all your questions. x
You will have no problem getting a refund on your flights Tina but not sure about apartment unless you booked it through an travel agents, from a radiotheraphy point of view i flew abroad two weeks after they finished but i hadnt had chemo as well so hopefully someone else can answer better than me, you will start to get your head around it all but just a day at a time Xx
Ladies, just a quickie but I wanted to say that not everyone struggles with chemo. I coped really well, I was sick after my first one but my Meds were adjusted and I was never sick again. I continued to work full time, albeit from home and look after my then 4 year old daughter. Radiotherapy was during the summer holiday from school and I had my appointments first thing before my husband went to work and still managed to run the house, work and take my little girl for days out etc. We went on holiday 3 weeks after I finished radiotherapy. That was nearly 4 years ago, I’ve been in Tamoxifen since, also with no problems. The thought of chemo is more often than not, far worse than the reality. Take care all xxx