Ongoing weakness and tiredness

Does anyone else feel like a shell of their former selves? I finished chemo 18 months ago and now on tamoxifen and Zolodex once a month to
Keep me in menopause. I feel dreadful; can’t sleep, ache everywhere, feel
Numb or irritable and so weak and tired. Sex gives me UTIs!! I don’t feel like this everyday and manage 8000 steps most days but feel just odd. Obviously can’t take HRT but anything else out there…sorry for moaning post but feeling fed up x

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Hi

Moan away, if ever there was a time or experience this is definitely one of them.

Whether by pill or naturally at some point I was going to experience menopause. It’s obviously brought on quickly with these meds and maybe that’s why we all notice it more, rather than gradually with a natural menopause. I don’t know how it compares to naturally . . . . .never will.

I may be more fortunate compared to others, I do have aches and pains, more so in the morning. Hot sweats were bad in the summer heat wave but now settled and more tolerable. Tiredness has been an issue before BC, so no different there. I’m managing to live with it at the moment, although I’m not sure what my view will be longer term!

Its important you find a way to handle or improve your side effects. I’ve read from others there are some drugs that can be prescribed by GP that can help. That’s one avenue to explore.

It may be worth asking about a blood test to make sure you’re not anaemic.

I’m actually on an AI with Zoladex, so I wonder why Tamoxifen was chosen for you? You could ask for some advice from your onco about changing - some people find an improvement on different types of hormone treatment, and even the brand of tablet.

They’re just a few ideas but ultimately please speak to your medics I’m sure they will want to help x

I am told the new pill will give menopausal symptoms and I am desperately looking for something to offset that. I had NO menopause symptoms naturally and now they gonna give them to me? Not happy about that and seeking something to offset that. During chemo and radiation, I stopped hiking and doing the things I love and now it is time to get back to that. So many are in this fight–who has found a solution we can live with??

Hi there, please moan away! The lovely people on here always have a listening ear & we are here to support each other

I take Ribociclib & Letrozole which have some really unpleasant side effects
We can only hope that in time a new treatment with less dreadful side effects is created. Until then we’ll plod on, hot flushes, aches & pains & all :hot_face::joy:

Huge hugs to everybody :kissing_heart: