I hope you’re as lucky too, will keep my fingers crossed for you ??One other thing I have been doing is keeping a journal every day and keeping a note of temperature, side effects, fatigue levels, activity, that sort of thing. That way you can record how you’ve felt so you can either use it to report back to your chemo nurse or so you can refer back to it in the next cycle. Hope you’ve had a good day ?
Sounds like you have a great employer to offer something like that for you. I’ll have to look into it and see if I can get something similar. Thanks for the tip!
Hope you are feeling a bit better about things now, well as better as you can feel. I have my flu jab tomorrow, just hoping it doesn’t affect my blood test on Monday as I’d hate to have to delay my treatment.
It is such a hard thing to get your head around, even now I sometimes don’t believe it’s happening to me! I have my blood test Monday and then all being well second session on Tuesday ?
Hopefully your infection will all clear up and you won’t face anymore delays ?
The side effects you experience will partly depend on what drugs you have and what they send you home with. I was told that you shouldn’t need to experience sickness and if you do to call your chemo team straight away as preventing it is easier than treating it. Some of the side effects I prepared for were nausea (sea bands and ginger drink), diarrhoea (Imodium) constipation (hospital gave me some laxido) and sore mouth (corsodyl daily mouth wash and biotene mouthwash). I haven’t needed the Imodium or the biotene yet. I drank a shot of the ginger drink before and after chemo, used the sea bands for a week starting day of chemo and also used the laxido (my hospital told me not to delay starting this if I didn’t go as normal the day after chemo), apparently it’s ordansetron (one of the antisickness drugs I was given) that can cause this. I use an electric toothbrush and also an airflosser and have continued to use them gently with corsydol mouthwash and experienced no mouth problems (some people suck on ice during chemo to help their mouths). The biotene is for dry mouths but as I said I haven’t used this. All I can say is that if you experience any problems call the number they give you (even if you think it’s minor). I did and it means that they can stop you worrying about things. I also drank about 3 litres of water day before, day of chemo and day after to help flush everything through. I hope this helps.
I took the approach of planning for all the side effects and then hoping that I didn’t need it. I’m sure the hospital will take into account your existing meds and plan around that. I think that’s why so many of us end up on different meds, they really do seem to tailor the treatment to the individual! Have a good day!
Hi Otter, blood tests came back fine and chemo 2 went ahead today, went ok but didn’t get lunch at the hospital . Not feeling as fuzzy headed this time round but am experiencing a bit more nausea but wonder if that’s because I didn’t have such a large lunch right after chemo. It’s not terrible and seems better after I’ve eaten, so I just keep eating things, I’ve had all my drugs for today (apart from the lorazepam which I’ll take just before bed). Hope you’re doing ok, how did the wig fitting go today? ?
Hi, feeling a bit better today. Slept ok although woke a couple of times, felt sick but wasn’t thank goodness. Could probably work from home today if I was feeling really committed, but I’ve made a deal with myself that I need until Sunday to relax and recuperate and see how I feel on Monday. I feel by doing that I put my body in the best place to recover so that I’m in a better position to be more productive next week?
The wig thing is difficult as to me it looked like a wig, don’t get me wrong they really good and the one I’ve got is pretty similar to my own hair, but I can still tell that it’s not and that makes me a bit self conscious (not that I’ve worn it since I brought it home) although I did wear it back from collecting it as my hair underneath looked dreadful! I’m also going to get mine trimmed a little as it is quite bouffanty on top so hopefully that’ll help.
hope you’re doing ok otherwise and hope you get the all clear on your wounds too!
That’s good news on the healing front. Do you need to have your bloods run again? They didn’t bother with mine and they were virtually two weeks old by the time I had chemo 1, thought that was a bit weird but hey ho I’m still here and recovering after number 2 so must’ve all been ok. Not sure if I said I have my look good feel better session tomorrow. Will let you know how that goes, apparently you get a goody bag worth £250 will also be nice to meet people in the same position as me face to face I think.
have a good day, I’m spending it on the couch resting and looking at mags & ?
Hi, feeling ok today am suffering a bit tonight with acid but it’s not too bad. Have just had a chamomile tea, will have a bath and go to bed soon. You should definitely sign up for the session, I only usually wear mascara but felt I could give the bits away to others if I didn’t want them. Think hair is falling out quite a bit now, although haven’t brushed or washed it since cold cap on Tuesday (they advise to the least amount possible with it). Problem is I think rather than falling out it’s catching in my curls and keeping it on my head, not sure what’ll happen when I wash it Monday ? Think I need to go and get my wig trimmed, might look into that tomorrow!
Hope you’re doing ok!
I’d be tempted to apply for both, that way it shows them that you’ll be back and fighting fit in no time and that this is just a small blip. That’s the approach I took anyway, but I will admit I was so devastated when I first found out they were advertising the job and that I’d have to interview (which included a 10 minute presentation) whilst I was going through chemo that I seriously considered not applying at all. I wasn’t sure if I could be bothered with the added stress and aggravation, but then i realised in 6 months time when this is all over I’d need to carry on with my life again. It’s just unfortunate that although we feel our lives are on hold they’re not and the world is still moving around us.
First day off my meds today, last time felt a bit jittery at this stage but think all the yoga and meditation I’ve been doing may be helping! I hope you have a good day! I’m hoping to go out somewhere today, maybe for a walk and some lunch.