hi i was dx last may no node involvement but tumour was grade 3 aggressive and hormone reseptive, however i got away with no chemo as i have chest problems i had radiation and was put on the change by having radiaton on my oviaries and i have been great no side effects really only hot flushes which i was experiencing any way with tamoxifen, i am now on arimidex,before i had treatment i was given a bone scan and it showed that i have osteoporosis in my hips and now im on weekly tablet and high dose of calcium every day.i just had my yearly mammogram and results were ok so everything is looking good physically but mentally its always there in the back of my mind. take care everyone x
Well had my ultrasound yesterday to make sure my ovaries are where they are supposed to be. Talk about pulling the rug out from underneath me!!!
Long story short I have a hard 6cm mass on my right ovary so now its a CT scan (waiting for the appointment) more blood tests and no keyhole surgery. Its going to be a full cut and shut and its looking like they are going to suggest full hysterectomy as I am now going back to the original doctor.
I think I’m in shock, am numb and to top it all my husband has gone on a stag night. Was supposed to be calling me at 8ish to pick him up from the station (itstarted at lunch time) he has now rung me to say hes staying out playing poker and will see him sometime tomorrow. STUNNED isnt in it. I’m still reeling from the ovary news and now I’m on my own too. Dont think watching soppy films is a good idea so I am going to take a couple of nytol and go to bed and sulk.
S x
Hi All sorry for intruding but it i need some advice …
I am on Tamoxifen am 54 …Recently have been experiencing back pain and daily bleeding ,my GP sent me for a scan that has resulted in the fact that my uterus is looking spongy and thick ? and so therefore I am to have the internal scan and biopsy on 20th of this month …of course I instantly thought omg …secondaries ! but after a bit of a wobble I now not going down that route …for now e I did read somewhere that Tamoxifen can cause Endometriosis so if this was the case have anyone of you ladies had similar ??? Would that mean ovary removal ?
Yes you are right tamoxifen can thicken the endometrias (spelling!!?)
it was one of the things they were checking before my oopherectomy…see my last post on this one…
My original gyne surgeon suggested having it all out because of the tamoxifen/ endometritis issue but i opted for the keyhole just ovary removal as I have had no problems with spotting or bleeding. That seems to have all changed now and I look like I am on the route to the full hysterectomy.
I may be wrong on this but in the light of what has happened to me I dont l think just removal of the ovaries would stop the thickening but please dont just take my word for it. I’m no expert and can only go off what is happening to me.
Hope you get the answer today, there will be someone in here who will have the answer.
Love and luck, let us know how you get on.
S x
Sorry to read your posts Custard. Can I just reassure you on something. I had CT Scan pre-chemo and was told there was a 3cm cyst on my ovary…but not to worry!! Obviously this stayed in the back of my mind and when my surgeon came ro see me after my op, I asked her if the cyst was still there. She said no, they were totally clear, and that chemo probably zapped it out.
It could be the same in your case. I had a mirena coil up til this year, and I know they are renowned for causing cysts.
I’m hoping you will get a good result from your scan…
I am nearly 4 weeks post-op now and apart from feeling tired am fine. I have noticed the hairs on my legs are growing really slowly though and the flushes have returned, but no worse than prior to the op. So far, so good
Hi ladies
Thanks for all the support as ever.
I was a bit shocked to say the least last Friday and am feeling more reassured by the day. I got my CT scan date (17th) which is also the same day as my next BC check up (with the surgeon who didnt recommend the ooph…this should be interesting!!!)
I’m a bit p****d off that its going to be full surgery now as its a hard mass that cant be aspirated and will mean 6-8 weeks recovery but at least I’m pre warned and not waking up to the news. The first lot of blood tests came back as negative for ovarian cancer so fingers crossed for the next lot and the CT scan.
Will keep you all up to date.
Pheebster, glad to hear you are doing well, I am now on a fitness regime to get myself in shape, hopefully they will still be looking at November so I can go on my hols in October.
Love and Luck. Shonagh x
Glad you are getting your head round it - great news on the bloods.
I didn’t think I could get keyhole as I’ve had a C-Section (albeit 14+ yrs ago) and I was nervous of not knowing what to expect, so I fully understand you are happier knowing what you are up against. Can they give you a vaginal hyster or is that also out of the question?
I do know the cut you have will be smaller than that which I had for my c-section, and can I just say I was up and walking round the shops in just over a week. You seem like a toughie to me - just get those painkillers in you and you will breeze it
I have also decided it’s time to get myself back on track. I lost about 20lb following the end of chemo but got aa bit complacent again prior to going for the ooph. I am off to joing slimming world again this morning…no more lard-arsing. Let’s face it, dieting has got to be easier than what we’ve just come through?
I didnt have the chemo track that was what the zoladex was for but hey ho hindsight is a wonderful thing.
I was in shock I think when they gave me the news so I’m not sure what the options are. I dont know if you remember but a couple of pages back I had an appointment with a doctor who couldnt do the keyhole as he doesnt do that well he is the one I am going back to. That will teach me to make demands!!!
On a lighter note did some excercises the other day on the the Wii Personal trainer called the plank. Basically supporting myself on my forearms and toes in a horizontal position fo 15 seconds. Blimey Charlie!! talk about aching. OUCH!!!
OMG what a difference a week makes. Very long story short (if you want the long version check out the “another one bites the dust” thread. Basically my husband of 5 years, partner of 15 is leaving.
Enough of that though just to say the CT scan results were a bit inconclusive so have to go back for an MRI which is scaring the pants off me as I have a 2ft metal rod in my spine for scoliosis and have always been told the two dont mix but now its all ok according the the chief of radiology.
Will let you know more when I do.
S x
Hi Custard and all …going in hosp on 27th Aug ,for hysteroscopy /biopsy …bloody tamoxifen …pos oophrectomy /hysterectomy as she will not let me stop taking the Tam x
Custard,Sorry the results are inconclusive,more waiting and worrying,what a nightmare,but look on the bright side it wasn’t obviously cancer.
Just to reassure you,the rod in your back (?Harrington) will be fine with mri (I am a radiographer in MRI)but do tell the staff.
Any idea when appt will be?
Love
Dot
x
Hi Ladies this is an update from Custard who as we speak should be on her way to Alcudia.
“I am booked in for my full hysterectomy including ovaries tubes, uterus and cervix on Monday 14th Sept. I am as Stepping Hill Hospital Jasmine Ward. I will hopefully be in touch on line or using my phone on face book as soon as I am in the land of the living.”
Just a quick one to say Spain was Hot and its not here. Checking into hospital today for op tomorrow. GULP!!! thanks again for all the support and if I cant log on in hospital will see you on the flip side.
Love and luck to you all.
S x
Hi Custard, Glad you had a good holiday in Spain. Also just wishing you all the best for tomorrow. I hope all goes well and we will ne thinking of you. Life is not fair. You look far too young to have to go through this op. Lots of love and hugs of support, love Val (Scottishlass)
I emailed you earlier - hadn’t realised what had been going on then remembered you were thinking about ooph and found this thread. So sorry for what you’ve been going through. Am thinking of you and sending lots of cyber hugs.
Just a quick one to say hello and I made it. Had to stay in a bit longer as the cut was from belly button to pubic bone but still here and alive to tell the tale. Will catch up properly when a bit more settled. S x