Emma
Big squishy Helena huggles for you today xxxx
Emma, and from me.
Ali xxx
Emma - I hope you are doing o.k., I’ve been thinking about you since I got up.
I’ve had a horrible, yet wonderful, strange morning.
Last night I was massaging my scar and seroma and found a big lump inside my seroma. As much, as I told myself not to worry, as you can imagine I thought the worst, as I have read of ladies getting BC lumps only weeks after they have had a mx.
I rang my BCN this morning and she told me it was probably bruising from where they drained it last Tuesday, but to come straight in and she would check it. I got there about 1/2 an hour later and they saw me straight away, she had another BCN come in (the one who had drained it) and both agreed that the lump was bruising from the needle (I am still black and yellow and the lump is underneath). I was so relieved and so grateful at how quick they got me in.
Anyway, she looked at my one boob all on it’s own in my bra and said we can’t have you like this (I had explained that my softie wasn’t heavy enough and that I couldn’t have a prothesis until my seroma had absorbed back into my body). She told me she would see what she could do and about 1/2 hour later I was in with the prothesis nurse who has fitted me with a heavy prothesis that matches my other boob and doesn’t go travelling. I can have another one, once my seroma has gone.
I can’t believe how worried I was this morning against how happy I am now - but, I am so tired (as I didn’t sleep well last night)
The weird and wonderful and sometimes downright terrifying world of BC. What a rollercoaster!
I hope you are all o.k.
Susan x
Hope the scan has gone ahead OK today Strudel.
What a rollercoaster indeed Susan! Glad it has turned into a positive for you ? And just shows how awesome the Nurses are as well.
Hope everyone is having a good day and looking forward to the weekend x
Bloody hell susan, what a worry that was for you … glad all was ok and you’ve got a new boob ?
… I’ve phoned up for an appt today with prosthetics but had to leave a voicemail …
I also phoned BCN to ask if oncotype results was back and it hasn’t … more waiting ?
Strudel - how’s ya?? Hope all went ok today with the scan
Ali - it’s Friday!!! Does that mean you have a chemo free weekend? Hope you’re still feeling ok
I’m hoping emma is ok and she went to theatre nice n early …
Hope everybody else is ok … anybplans for weekend ladies?
Sarah xxx
??? Susan, I can’t wait … think it’s hubby that’s going to have the fun with it though ? He did have a few squishes of one when we had a meeting with the BCN before my op … I was like “will you just put the bloody thing down” - very red faced ? BCN was encouraging him though ?
Strudel - sounds like you’ve had an horrific day tbh … I’ve actually just said to my daughter “I should be the most patient person in the world now - but I’m not” I’ve phoned BCN to see if oncotype results are back but guess what?? They aren’t … no surprise really but consultant did say he was hoping by the end of this week … anyway, I’m hoping you’ve got your feet up and relaxing a little xxx
Oooh yeah … although I don’t contribute on the forums with Macmillan, I go on to read what others are saying AND they refer to each other as a NED or NEDY when they have gone through treatment or at their one year appt if all is well …
any idea what it stands for???
Googled it …
No Evidence of Disease = NED
can’t cope … bloody abbreviations ?
I just checked out the borrow my dog website and, for me, it might be a good idea. Take a local dog for a walk a few times a week or when you are feeling ok to get, just need the motivatiom, They can match you with older, less boisterous dogs. He live in a village and they’re lota of walks on the doorstop. If you are a dog owner it could give you a break on week 1 if there is no one around. I’ll ask amonsgt my doggie friends - that is friends who have dogs as opposed to look like them or indeed go dogging!
Other news. Lump hasn’t shrunk. Boo! I was so convinved it had althought it has got softer.Mind you see did measure it with an old wooden ruler she found lying around. High Tech Equip! Only had 2nd treatment today but wanted some sign that ths was getting better. In and out of the onc office in less than 5 minutes and had to ask about results of bloods and echo.
Straight up. A manky old wooden school ruler. How much is this treatment costing and you decided to do the measuring with 
… I’ll see her next in 6 weeks so that will be just before the first round of T. Perhaps she’ll have some gardern twine or a protractor to measure it. It won’t be ultrasounded again until just before the end of chemo.
I’m feeling we need a group hug, but a very gentle one, since half of us have aches and sore bits. Strudel, Susan and Emma especially. But also Sarah, Jane and Emily. Actually sod it, we all need a hug. Though no one would want to really hug me today, I’m very burpy and farty from the chemo. Charming side effect. Still I’ve been working from home, so at least only the cats got the full benefit.
We were discussing dogs last night. I can’t decided whether enforced ‘going out’ every day is enough incentive to make up for the extra ties. So borrowing a dog seems like a brilliant idea. I’ll be really interested in how it goes.
Scotty, I’m down for an MRI after my third as well. Since I had a different onc this time he couldn’t tell, but it feels smaller and softer to me too. Though I wonder if that was because I was so terrified initially. It felt about 50cm before!
Right, it’s Friday night, I’ve survived a second chemo, I’ve become a granny and I’ve done my pension cash in paperwork. This can only mean one thing.
???
Hope everyone can find something that gives them pleasure this evening. And if you enjoy Desert Island Discs, may I say that I thought Caitlin Moran this morning was a good one.
Ali xxx
Ha ha, Scotty.
Did I tell you that my new onc was very keen to discuss the marginal benefit and marginal cost of Perjeta? He was very keen to impress me with how much they’re spending on me!
Bet he didn’t add in the ruler.
Ali x
OMG what with rulers, doggies, burping and passing of wind!!
Have a lovely evening whatever you are doing, and for those with backache dont do too much xxxxx
obviously not trusted with the ruler yet. Needs to perform brain surgery one-handed first. Pah Amateur!
Funnily enought, it was Desert Island Discs I was listening to during chemo. Dom downloaded them onto his I Pad. God bless 18 year olds.
The Return of the Killer Chemo Farts. Oh God I’d forgotten how horrendous they are. If you need to strip wallpaper in your new house I’m thinking that could be a cheap solution??!!
Sorry Ali me again
Did new onc give you any sort of stats ( manipulative data/ alternative facts) on using Perjeta and Herceptin as opposed to Herceptin. Heard that they’ve started reducing amount of Herceptin as they think it has the same clinical response. Won’t effect us though. Can’t even think about that yet
Hi anncann - lovely to hear from you again, I do a lot of lurking on different threads and I do nothing but lurk on the Macmillan site … I don’t join in at all on their site … just lurk away … haha
I was just like you and couldn’t keep up with what was going on in the others threads so I was happy when we moved into the coffee lounge … hopefully you will feel as though you can keep up with us now … and don’t forget, we are all here for rants, moans, meltdowns aswell as the humour, tips and advice
I am so envious of you going to live by the sea, I would love that and it will be lovely for you to be near family
Anyway, thought I would say hi, and hope you will keep joining us even if it is just lurking ?
Sarah xx
LOL Emily - you’re just showing off … brilliant to hear from you and to be honest I understand what your saying … we’ve had all the hype of diagnosis, tests, operation, post op results and we are now in limbo land … I’m bored of waiting … I want to get on with it and I’m at the same point as you, waiting for oncotype result xx
Hello everyone I’m back and officially boobless! Came round and started talking rubbish at about 5.00ish! No mention of elephant willies though I hope Em!! Felt pretty out of it all evening and have slept a lot but have been awake and quite lucid for the last hour or so. Had a morphine pump (amazing) but the handheld thing stopped working so have gone over to Oramorph now. I was first on the list this morning so not too much of a wait - just as well I was in such a panic by the time I got here! Am worn out again now so back for done more sleep I think. Just wanted to update you as I knew you’d be wondering. Thank you for lovely messages ??
Hi ya Emma - it’s so good to hear from you. I’m so pleased you are o.k. Morphine pump? I didn’t get one of those ? Probably best though as I was sick on the oramorph.
Brilliant that you went in early. I just can’t put into words how pleased I am that you’re o.k. and it is finally over.
Take it easy for my darling and enjoy everyone looking after you.
Loads & loads of love and best wishes
Susan x
Emma that’s so great to hear you’re doing well. I hope you got a good night’s sleep x