Hi all
Been posting on here for last year and half but not in the secondary section. Unfortuately my mum has been diagnosed with skin mets and is awaiting CT scan to see if other organs involved. I am so devastated for her but am trying to be positive and face it head on.
I had a trip to the ritz and a night in London planned for my wedding anniversary but now I want to take my mum too. She hasn’t had her ct scan yet. The ritz is booked for middle of August.
The onc said that if there is spread to other organs they recommend 6 months of paclitaxel. Usual regime I assume - once a week for 3 weeks then a week off and so on. Other option is the cape tablets. Anyway when my mum had fect she reacted badly - for neutropenic sepsis and v bad constipation. They reduced her dose to 80% and she never had anymore sepsis but had constipation (needed enema etc) and no appetite.
I’m guessing she may have had 1 or 2 weeks worth of paclitaxel before we go. My question is did any of you have the same symptoms when you had fect as you did paclitaxel? Did you find it easier to handle? I know is supposed to less harsh but wanted to hear others opinions.
Many thanks
Xx
Hi Daisy1975,
I am sorry to hear that you and your mother are going through this difficult time. I am sure some of our users will be along soon to lend their support.
In the meantime please do look at our page on paclitaxel and this thread on fect.
Please do call our helpline at 0808 800 6000 who will be able to talk you through questions you may have about symptoms and offer a friendly ear. The opening hours are below.
Monday-Friday, 9am-5pm
Late opening Wednesday 9am-7pm,
Saturday, 9am-1pm
Best wishes,
Lizzy
Hi Daisy,
i too have skin mets which has recently spread to pleur and bones. I had fec for my primary bc and was very ill on it for abot a week after my treatment…mainly sickness but was put on aprepitant which realy helped. I also had netropenia so had gsfc(?) injections. My first chemo for my secondary dx was docetaxol and capecitibine which again i was quite ill with. I had cape on its own and i was fine. I then had eribulin and then weekly taxol which i found ‘do -able’…no where near as bad as fec. I dont know if this will help. There is a thread for skin mets so maybe you can have a look on there and ask any questions you can think of. Hoping your mums scan brings reassuring news. x
Hi stress head - we have been communicating in the skin thread. That does help thanks as paclitaxel is taxol I think.
Xx