Peripheral Neuropathy

Public Archive
1

Hi All’

Any tips, help, advice, suggestions would be fab, thanks.

I had Peripheral Neuropathy a few years ago at the end of my TAC, but it was only in my feet and not too bad. But i am jow on 7/18 Taxol with Avastin and this morning woke to feel it starting in my hands and I still have a lot of chemo to go (TN secondaries in bones and lungs). It is mild but I want to stop it from getting worse. Ive dropped a few things and missed the light switch, but nothing too serious!

So any help, complementary or mainstream would be greatly received.

Thank you

Sadie Xx Xx

2

Hi Sadie!

Just did a search on the US breastcancer.org forum for P.N. A few people on it recommend L-glutamine - some sort of food supp/powder for it. Maybe have a look/ask about it?

Love, Sarahx

3

Thanks Sarah - I will do!

Sadie Xx

4

Hi,
I have been having accupuncture for fatigue and menopausal symptoms and I mentioned PN in my feet to the therapist who added a couple of needles to my treatment which certainly helped me. I have my accupuncture at the hospital where I had my chemo.
Sorry you are back on this path again.
Jane x

5

HI Sadie, sorry no top tips, just to say I had PN with my first round of FEC-T and just to empathise about how annoying it is to have it - also my doc said to tell him how it progressed as they really need to reduce the dose if it gets to be painful or something cos its a difficult pain to manage, but if its tingly only its more likely to reduce after treatment …I think!Sorry by the time I had it my chemo brain was tpretty much in charge, bw Nicola

6

Hi - Thanks all.

It is tingly at the moment. Not painful. But I am worried about my hands and do not want it to get much worse as it will start stopping me doing things (if that makes sence!!). Also, I’m fairly sure i’ve got PN in my tongue too (great for a Speech Therapist!!). Just feels odd but know how important good sensory feedback is for swallowing. So - I will keep telling the Drs but at the same time, I do not want them to reduce the dose!!

Any other tips?? THANK YOU!!

Sadie Xx Xx

7

hi Sadie
I too suffered with PN after 3 TAX, it was so bad after the 2nd one, I couldnt do zips up, buttons up, and was on strong painkillers so they reduced the 3rd dose,onc said it wouldnt affect the treatment and as it was still very bad after the 3rd they cancelled the 4th (already had 4 FEC before) and went ahead with surgery. I can sympahtise as I was in agony, I did find walking short distances regularly helped as the longer I stayed still the worse it got. Speak to the BCN perhaps and your onc when you see him, lots of love Ness xxx