Hi ladies,
Has anyone heard of someone having a peritoneal biopsy that ‘missed the spot’? I had one on Thurs, and have to go and have another one on Friday as all they got was fat cells (charming). Its a real pain as Im supposed to be going away for a much needed break with my OH at the weekend.
They’ve already booked me in provisionally for a laparoscopy after that if this one doesn’t work, so they dont sound too confident !!!
Jacksy
I read this contribution as I was trying to find something about secondary breast cancer in the peritoneum and I haven’t found anything in the information so far. My secondary breast cancer was discovered in my peritoneum last March after I was taken ill and admitted to hospital. It was discovered by CT scan and was a total shock. My original diagnosis of primary breast cancer was in 1995 so I had almost forgotten all about it. I would also like to know whether anyone else has had a diagnosis after such a long time. I did know someone whose cancer re-appeared after 17 years, which was a big surprise, but I never thought it would happen to me.
I have only just registered on this site so hope you don’t mind my making a contribution. I haven’t heard of anyone having a peritoneal biopsy that ‘missed the spot’ (or even heard of one at all) and hope all goes well for you with the next one.
Hi jacksy.i had peritineum. Biopsy .already knew I had it.but they tested my receptors as original b.cancer was in 2004…i was the same hormone receptors as all those years ago.xx have got some in bones and liver.havnt had those re.tested…the re.test was in December.Sharon x
Hi jacksy did they use ultra scan.
xx Sharon x
Hi Ruth and Sharon,
thanks for your replies. A bit of background - I had primary and secondary diagnosis in 2007 (liver). Had lumpectomy, FEC & taxol chemos then I’ve been on herceptin& tamoxifen ever since. Had a few run ins with RFA (radio frequency ablation) and finally surgical resection of liver in 2012.
In Nov my routine CT showed enlarged ovaries & areas on my peritoneum. It’s taken until yesterday to get biopsy done and results back - referral letter got lost in post, delays, miscommunication, etc and had biopsy twice! It felt like good news when they actually got a result although it means it is mets from the BC.
I’m due to start Kadcyla on Monday, assuming the cells are still HER2 positive. This will be ‘until it stops working’ so I really hope I tolerate it well. I’m a carer for my daughter and I work part time (essential to keep my sanity) so I really hope I can keep well enough on it to keep working.
ive seen your post on the other thread, Ruth. It’s surprising there were so few replies over the years. Maybe we are more of a rarity than we first thought!
My biopsy was CT guided. I can’t remember what else you both said /asked as I can’t see the thread any more…
keep in touch
J xx
Sharon, what treatment are you on? How is your peritoneum now? Do you get any symptoms?
Ruth, what a shock after all those years. You’re now in that horrible limbo land waiting for your scan results. It sounds like things were going the right way at your last scan. So, hopefully it will be good news. I’m sorry to hear about your oleostormy, that’s tough.
Jxx
Hi jacksy.i had mx in 2004.six months fec/cmf chemo… Three weeks daily radiotherapy…tamoxifen for 5years…then about nine years remission… Then didn’t feel well and had it back.widespread bones and peritoneal Mets.went on capecitabine and bone tablets.cap worked really well forme and no sign of peritoneal Mets.then oncologist decided to take me off cape.went on letrozole for ten months.i didn’t like side effects and then stomach swelled up.went in hosp had stomach drained twice.had to go on docetaxol which I’v had 3 which is iv every 3weeks.got scan tomorrow? wont sleep tonite I hate the iodine injection…also forgot to say um also on demusmab for bones…if scan shows working will have another 3 docetaxol…the hosp call peritoneal Mets …cake…as you probably saw on the ct screen.xx