I think caeylx is probably failing as I am, day by day, getting more skin mets, and several large lumps in my neck and chest wall. My skin is weeping below layers of crusty red skin.
I also continue to be in pain…pain which at times I find unbeable…10 on that 0-10 slide. The pain starts at the top of my arm and then burns its way across my shoulder and down my arm again. Have tried more combinations of painkillers than I can remember. My left arm is unable to move so dressing unaided is a problem.
Have seen various medics today…GP, District nurse etc…the’ve spoken to oncologist and pain consultant.
As far as treatment options are concerned there really isn’t anything except palliative care.(I an not in the business of running after PARP trials or similar) so I resume my position of just trying to live as well as I can for as long as I can.
I would love BCC to use my story as a case study of what can happen to women with incurable recurrences…but perhaps its too miserable for you??? I can’t, right now, feel bright and hopeful about anything, let alone writing a truthful account
Jane
just wanted to wish you well, I’ve been reading your postings in retrospect as am new to this forum and have learned from them. I know this is palliative treatment and that you aren’t able to hope for the kind of time that a lot us of can, but I do hope, sincerely, that the time you have left is comfortable and as happy as it can be.
It would be good if bcc used your case as an example, there are realities that need to be faced, and aren’t.
I’ll be thinking of you, be kind to yourself
monica xxx
I’m so sorry that you’re in this position and hope that they can ‘sort out’ your pain relief. You’re right that BC sucks and there’s no glossing over that fact.
just wanted you to know i always read your posts and i have learned alot from you, thankyou. i’m so sorry that this disease is so cruel and that you are in pain. i hope some effective pain relief can be sorted out for you.
Jane, I’m so sorry that these latest drugs have let you down again, and hope the hospice & co. can come up with a better combination to give you some relief now. Thinking of you.
Marilyn xx
And that BCC confirms that it understands that you (and all of us who post here) are its best and most coherent, timely and accurate informants about what it’s like to live with the varying aspects of incurable and terminal breast cancer.
M x
Part of you living well during the progression of this awful disease is the support comfort and knowledge that you have been kind enough to pass on on this site.Thank you.
Wishing you effective pain relief
Kinden
x
Oh Jane,
I am so, so, sorry you are going through this…I was(in my former life!) always led to believe no one ever needed to suffer pain… I was under the impression that there was enough various medications out there to control it.
I do hope they can sort you out very soon,
We need you Jane, you are such a help to so many of us!
Take care,
Janx
I was so sorry to read your post. I hope that some pain relief can be found for you. And like many others on here I thank you for your posts, and for telling the truth. You are an amazing lady.
Just wanted to echo all the previous comments. You always “tell it like it is” and many of us have gained from your knowledge and insight.Thank you. Thinking of you and wishing you some relief.
Sending you love and really hope somehow someone can sort out the pain.
I share your frustrations I am not in pain but have no energy can still only get from bed to bath to sofa.
Why don’t BCC focus on the plight of the terminal ill, they read our post but go so quiet.
Thinking of you.
Love Debsxxx
I do hope they manage to pull their finger out and sort out the pain issue.
I also hope that you will be writing here for quite a bit longer. I have to thank you and the other ladies with secondaries who post on here, and on the other site, for telling it how it is. I for one need to know because if, or when, my time comes to develop secondaries I know that some of the info I am given will not necessarily be accurate.
So thankyou for your frank comments and amy you do so for quite a painfree while longer