Hi Jane, really hope that your pain can be got under control very, very soon - also echo what Debs says re BCC not listening, not impressed I’m afraid.
Lesley x
Dear jane,
read many of your posts on many threads. You are a wise and generous spirited woman. i wish i could help you in any way - as you have helped so many of us. My thoughts and prayers will be with you and i so hope that they will find a route to mitigate your pain and give you peace and rest.Much love
Oh Jane - so sorry to har you are stuggling at the moment - you are in my thoughts and sending you much love …and thoughts for pain relief and some respite from this shi**y disease…Jayne x
Jane
I’m afraid that BCC appear to “ignore” the hard stuff.
Hi,
Breast Cancer Care’s work is based on user feedback. Personal stories are important to us which is why our online community is at the centre of our website. When we’re approached for a personal story we always reply. We do so by email or private message.
Jane is one of the most (if not THE most) active members of Breast Cancer Care community, I don’t know why some of you assumed we would ignore her offer to tell her story. Of course we contacted her and I hope we can relate her story here soon.
Thanks,
Bertie
Head of New Media
Thanks Bertie, now it is over to you Jane hope you are feeling well enough and look forward to reading your story.
Love Debsxxx
Hi Jane
I’m really sorry that you are experiencing so much pain and that the medics are not able to get a handle on it. It must make typing really difficult with your arm being affected, so thank you so much for keeping us updated.
I’m delighted that BCC have approached you regarding your story and I really look forward to reading your candid account.
xxx
hi jane,
i don’t think i have posted to you before but i do follow some of your threads and i want to thank you for using your gift of knowledge to inform me and others. also for making me see things from a different perspective, i know that i am the better for having read your thoughts on here and on your website.
this disease is just not fare and it is not the way things are supposed to be. i know where you stand regarding faith and i really respect your position. i however do have a faith and i hope you will allow me to pray for you and for pain relief - it is all i have to give and the best way i know of supporting you,
here’s hoping there is good news around the corner,
with love,
lenny
xxxx
Hi Bertie B…thanks for your posting…glad to hear this.
Hi Jane
I’m so sorry to hear that you are experiencing pain and having such a tough time.
Thank you for your insights into many aspects of BC, your knowledge and clear way of writing has been useful. Also your viewpoint that we, as patients, can understand increasing amounts of medical facts/jargon and not just the very basic bits of information. I can’t say I’ve always agreed 100%, but I have appreciated your clarity.
with love Wizz
Thank you Jane for all of your postings. Just to add my thoughts and support to all the others, you ‘tell it like it is’ and I infinitely prefer to hear the reality rather than the platitudes that I get fed continually about what may lie ahead.
Ariadne
have followed your posts Jane and just wanted to add my hopes that your pain is now better controlled and send you a hug.
Hi Jane
I don’t post regularly but from time to time I check up on old friends. I am so sorry to hear that you are having such a tough time. There is not much I can say and I know you are averse to platitudes but just to say that I shall be thnking of you and wishing you well.
all the best
Barbara
Hi Jane,
I have been thinking about you a great deal. Sorry to hear that things have been so tough for you.
Best wishes,
Christine
Hello Jane, I have bone mets and at various times have been in agony with pain, pacing the floor, cannot lie down or sit down for long, crying with unbearable pain this disease can bring.It could go on for hours and hours and Oramorph was not helping either. However I was referred to a pain specialist ( Consultant) at the WGH here in Edinburgh. I was also put back on a chemo regime that had helped in the past. My point is…The pain specialist came up with a whole lot of new things to try…Gabbapentin for nerve pain…I was on it already but I am now on a much lower dose and taking 4 times the amount (gradually) over a 3 week period. Also put me on slow release diclophenac ( I had been on the regular one for 10years!) also gave me patches to wear at the base of my spine and a TENS machine. I tried all , except for Tens machine and am even off the patches now. I don’t know if any of this helps YOU. But if you could be referred to a pain speciallist perhaps they could come up with something that helps you. I am NOLONGER suffering from this really painful pain I was earlier this year. SEnd me a PM if it will help. My heart goes out to you, love Val (Scottishlass)
Dear Jane,
I am so sorry to hear that you are in so much pain and having such a bad time.
It is scary how you can deteriate day by day I find the whole thing quiet frightening and no wonder your not feeling bright.
I hope one of your medical team can pull something out of the bag to at least make you feel more comfortable.
I have learnt alot from your story as although I have mets in bones and lungs all my trouble has been local and your experience has been a wealth of knowledge, even if I have come close to being a copy cat at times.
Thinking of you
Best wishes
Tess.XXXX