Hiya ladies
Had my CT scan today - results in about a week I guess, im so bricking it.
They were going to scan after chemo but I need to know - the stress of the not knowing is mentally unhealthy as I think about it all hours of day or night and its become too much of a main focus.
Hi Ladies,
Yes scan later on today and not sure about results but I will be hot on their heels! Am trying to get through the days but it is torture. My anxiety levels are through the roof and despite trying to carry on at work, I find myself lurching ahead in my mind to dark places. Am also now booked in for bone scan which was mentioned but I only thought would happen if my CT is not good, which makes me think its a forgone conclusion by the Oncs that it is lung mets. Sorry to be so negative, you girls are all so inspirational sounding at such a tough time. Well bloody done! Wishing good vibes and warm hugs as always.
Perhaps I should focus on planning my 40th!
Jx
Hi ladys well had my first outing with (erin) thats my wigs name and it was ok as i put a hat on with her she is a short bob and my new best friend but can only wear her for about 5 hours as it makes my head itch .
Hope everyone is ok ? xx
BIG hugs to the ladys waiting for scans its such a worry ,i too have to have a scan after 3xfec wich will b after xmas and i feel sick just thinking about it but have a saying on my fridge that i look at every day wich says (FORGET THE PAST YOU CANT CHANGE IT , FORGET THE FUTURE YOU CANT PREDICT IT) you go ladys xx
Best of luck to all you ladies going through the stress of scan results and fear of recurrence/ secondaries, especially right on top of christmas 
Here’s hoping all your scans are clear and you dont have to wait too long for results.
Tina x
Bone scan booked for 15th, in response to persistent backache (3 weeks or more but nothing different in what I’ve been doing) on top of one-year anniversary anxieties. Results should be available the following week, so JUST before Christmas. Diagnosed a year ago tomorrow. What a year. I haven’t even mentioned the scan to my family because while I’m worried on the one hand, on the other I’m telling myself off for being a hypochondriac.
I really hope I AM just being a hypochondriac…
Get results of my bone and ct scans on 15 th too, I guess Christmas cheer will depend on the outcome. Am dreading it but I know whatever happens we’ll get thru somehow,
Herbi x
Sending positive thoughts to all you lovely ladies awaiting results.
Keeping everything crossed for all of you, and remembers it’s okay to scream and shout whenever you feel like it. Please let us know how it all goes.
Dotty 2xx
Well all you wonderful ladies I wanted to let you know that I have fantastic news. Much to my utter shock, my chest is clear on the latest CT. Seems the nodules were the result of an infection and I am so so relieved and can’t believe it still. I feel truely blessed. I think having survived BC this far I now realise it is something that you are always looking over your shoulder for. I guess it’s taken this to wake me up and realise how lucky I am to be here. I wish for all of you awaiting similar results that you can manage the testing time ahead, it is a challenge greater than most ever face. I guess we all just have to learn to live our lives through these difficulties. I am now forever determind to be grateful of the good times.
Warm hugs and lots of love and thanks for this forum of support from the sisterhood!
Julia
xx
oh jules38 im so pleased for you ,you must be over the moon as waiting is so scary hope after xmas i get good results as not having very good time at the minute as blood platelets were to low to have
2nd chemo so sad today ,but you give me hope that they somtimes get dx wrong xx
Thanks Josie1. I feel for you deeply, I had a couple of delays on my chemo too, its very common and best to be on the safe side. It seems diagnosis is sometimes fraught with options which makes the whole process even more difficult. Hang on in there and refer to your mantra (think it was yours) about not being able to change the past or predict the future. I always try to remember that things are rarely as bad as our minds allow us to think as, our minds can be our own worse enemy. Breathing and relaxation plus a bit of crappy TV are often helpful strategies!
Take care.
I will keep check on how things go.
Whatever the journey, we have our friends here to helps along the way.
jx
Hi Naomifel
Realy hope your doing ok , was wondering if you have had your results or when your going ? Am thinking of you and no what your going through would be lovely to here how your doing as you started this thread xx
Thank you Josie, for asking - I was hoping to report back when the results were a little more conclusive. I had the scan last Thursday and discussed the results with the oncologist on Monday, yesterday. The good news is that the bones were clear - the bone scan had shown a single lesion - and that the lungs and the liver were also clear. The not so good news is that they found enlarged lymph nodes in my underarm, by my collarbone and near my left lung. The scan also showed some very slightly inflamed lymph nodes in/or near my stomach.
I was, therefore, referred to the rapid diagnostic assessment centre (RDAC) today for an ultrasound and a biopsy, and another appointment with the oncologist was made to discuss the results next Monday.
Of course, nothing is straightforward and the radiologist couldn’t find any lymph nodes to biopsy so I’m back to square one again, albeit about my lymph nodes rather the bones.
I’m slightly annoyed because the radiologist appeared quite dismissive. I know they are very busy but he didn’t seem to be aware of why I had been referred to him in the first place, or of the context, i.e. he was not aware that I’d had a mastectomy, level 3 axillary node clearance and a reconstruction (I’m surprised he could not even tell just by looking) or that I’d recently had a recurrence.
My OH thinks I should make a complaint - I’m not going to - but what I don’t understand is why I was referred for an ultrasound/biopsy if an ultrasound was never going to ever be able to see the nodes anyway - from what the radiologist said, I believe they are sub-pectoral.
Either the oncologist should not have referred me to the RDAC for a scan/biopsy or the radiologist should have attempted alternative measures to find the inflammation, perhaps just by referring to the results of the PET/CT scan.
I know we all have to live with uncertainty but having believed that the nodes could be biopsied I am slightly upset that they haven’t. I’m not convinced it is worth going to the appointment on Monday, because there’s not going to be any results to discuss.
I’m going to call the oncologist’s secretary/breast care nurse for some advice but if anyone has had any experience of this themselves it would be really good to hear from you.
Yours frustrated
Naomi (my nickname is Naz but I see that there is another woman posting on this site with this username).
P.S. And to top it all, today is the 4 year anniversary of my original diagnosis, 3 years after chemo finished and I’m very fed up!
P.P.S. And another thing - I have a DEXA scan tomorrow, which is not worrying me just time consuming.
Enough!
Thank you for listening to me rant.
Oh Naomi, I can just feel your frustration, it knocks your confidence in them, well it would knock mine. So annoying.
Love from Christine xx
Jules38, i am so very happy for you, brilliant news, i had everything crossed for you.
Josie, i am still in the waiting room with you, my repeat Ct scan has come through for the 17th Jan so am praying tiny nodule has gone, i will cross everything for both of us.
Naomi, brilliant about the clear scans & hope that the other things turn out to be nothing, so will cross everything for you too.
Much love to you all& anyone else waiting for results.
Love (a very everything crossed)
Sarah.xxxx
HIladys was up hospital yesterday 9pm bloods , 10.30 oncologist , and then finaly 2nd chemo witch i was glad to have but was short lived as have been feeling rubbish .
HI naz so glad to here from you, but realy think this is a s–t disease that i feel we are waiting all the time for.
before i got breast cancer i cant remember even going to the DR with a cold so am so sad as i have been in and out of hospital twice a week since DX in july ,sorry just feel a bit sad that were here waiting waiting all the time it just consumes OUR LIVES I HATE IT XXjosie
You’re right, Josie, it is s@&t! I’m feeling a bit sorry for myself this evening, at the same time as feeling incredibly angry-something someone has said (to my OH) has just left me reeling-some people need to count their blessings more often. Enough of me. You’ll get through the chemo, even if (as you will) you feel tired, and fed up that you’re having to go through this at all. Every one of my chemo sessions was delayed because of low blood counts-I remember it being really upsetting not only because it meant that it prolonged the overall length of the course but it also meant I had to have another blood test a week or so later when my veins were becoming increasingly poor. BUT you will get through this course of treatment-hang on in there.
Sending you all my very best wishes.
x
bumping xx
Hi Ladies
Josie - I noted you asked on The Nov thread about my CT scan results - not had them yet - get them tomorrow when I see the Onc just before my 3rd FEC chemo.
Im a bit upset actually that ive had the scan on 6th Dec and Ive had to wait until 21st Dec to get the results…WHY???..i already have a swollen right lymph node in my groin which is what triggered my panic call to my onc and why he ordered the scan… so if I do have secondaries I would have rather known a couple of weeks ago.
If tomorrow they tell me I do have mets elsewhere, I then have to absorb that, then go straight into the unit for my normal chemo and sit there in front of everyone dealing with the news.
Why couldnt the Onc have called me back in a few days afterwards to discuss the results. Im thinking that he wont even look at the results until tomorrow morning 10 mins before my standard pre chemo appointment with him and then announce “Oh by the way…you have 12 months to live…better get your s*%t sorted love”
They dont realise what this waiting does. make it worse its christmas week…it would be terrible to get bad news this week.
I have sat here for how many days feeling aches, pains, lumps and bumps all over me …sending me bonkers. But at least tomorrow I will know what the situation is and can stop worry about whether I have and worry about the next step. Its not an easy road is it.
Im due on tomorrow as well, my periods havent stopped as yet - my boobs are really sore so im assuming I will come on. In fact, my onc better be careful…PMT rage may result! loool
Hi,
Just wanted to send special thoughts your way, and hoping you get positive results.
Dotty2 xx