Picc line malarkey

Going through breast cancer treatment Chemotherapy
21

Well i had a lovely trip to casa NHS yesterday. I rang the emergency number as was having chest pains and the shortness of breath was so bad. They told me to go in! Was in there all day, had every scan available! Luckily every scan came back fine but was prescribed stuff for heart burn (so you can definitely get tablets) just incase it was that. Discovered my PICC line is blocked and has completely stopped working, so have to go back up the hospital today to get it unblocked! So this week the only day I wont see the hospital is Wednesday and Saturday :joy:
Iā€™m forever grateful for our NHS but do not want to be spending my days there :joy:

22

Oh no!! How are you now?? Hope youre ok! Its awful when something happens and you have to spend all day in the hospital.
Wishing you all the best my lovely!! Xx

23

Im absolutely fine. It was fustrating because I felt fine in myself, just had breathing issues. Still have chest pain but I think its just a side effect, Ill speak to my oncologist about it on Monday!

24

Hiya! Sorry for the late reply!! How are you now? Has the chest pains gone? Hope youre ok xx

25

Dont apologise! Its all good! Still struggling with the breathing but spoke to my oncologist yesterday and she wasnā€™t too concerned so think its just a side effect. Had my MRI on Sunday and waiting for the results. Also got an appointment for my genetic results on Thursday so full of nerves! How are you?

26

Oh wow!! Big week this week then! Iā€™ll keep my fingers crossed for you my lovely!!
Iā€™m doing ok thank you, my hair started falling out on Monday so i shaved it off yesterday. Weirdly freeing haha. Xx

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27

I thought id be devastated when i had to shave my hair off but I was weirdly okay, like you said it felt really freeing and made such a difference as I found it really hard when all my hair was everywhere when it was falling out!
Really positive week for me! MRI results came back, have gone from 31mm to 5mm and my genetic testing has come back negative. So really positive. The testing is a bit harder to take as Im left with more questions than answers as I have a very long history of breast cancer in my family but its not genetic x

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28

The genetic testing outcome is interesting to me @glitteryrainbow. Iā€™m still waiting for my results but consultant said he is expecting them to be negative. Like you, I have a history of breast cancer in my family, with both my mother and my grandmother having had it. My motherā€™s was hormonal though and mine is classed as triple negative. That said, no idea what type my grandmother had as she was diagnosed in the 1970s. I sometimes wonder if there is just a very strong family link that isnā€™t always genetic?
Great news about your MRI!

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29

Its so strange isnt it? I had it the other way round where my consultant was sure it would come back positive. My mum, my auntie and my nan (all on my mums side) have had breast cancer so would point to it being genetic. I also have triple negative x

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Mine will probably come back positive now! Seems to be the way that every time the consultant ā€˜assumesā€™ something, my diagnosis defies him. Do you know what type of BC your family had? I think triple negative has strong links to the BRCA gene which is why they always do a genetic test.

31

Fantastic news about the MRI!! So pleased for you!!
I had my 2nd round of chemo yesterday and man oh manā€¦ my hair just gave up lol. Its all coming out now. Likeā€¦ EVERYWHERE. I feel like i could never deny being anywhere because my DNA is all over the place :rofl::rofl::rofl: (too many netflix documentaries hahaha)

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