My friend has been treated for arthritis and in pain for 18 months…11 years post dx and thought she was over it…
Bone mets dx now …inoperable…and is looking for chemo to knock out the tumour and to let her bones re-generate for her to have an operation…
I’m a realist…no head in the sand here…what are the chances…
To me it doesn’t look good…
Hi, so sorry for your friend but she’s lucky to have a friend like you. Yes,met are not curable but they can be treated. Our wonderful Belinda has had bone mets for 11 years and is going strong.
Please,try to reassure your friend,she will get lots of support on here .
Hugs,Helen xxxx
Thanks for the reply
I’m really worried about her…she seems to have her head in the sand…I’m worried that they’ve said ‘inoperable’…
She doesn’t ‘google’ or look on the internet…she seems to be ‘happy’ knowing nothing. I don’t know what’s better…
Hi, Helen is right, there is no cure for Secondary Breast Cancer. We all hope for a good response to our treatments and there are more treatments that have come into play since my diagnosis. It must have been quite a shock after eleven years, my very best wishes to your friend. If she is happier to not know everything and that is her way of coping I hope her Onc is aware of this. We all deal with this differently. X
You’re right Belinda…she DOES have her head in the sand…and that’s fine…who’s to say what is the right way to deal with it…we’re all different…
Thank you
Thanks Belinda…she was referred to one of three surgeons in the UK who may be able to help…no joy…it had gone too far…so now back to the oncologist to ‘treat the tumour’ so that the bone may re-generate itself…and then surgery…
I’m just worried about her state at the moment…what are the chances of her hip breaking? What happens if it does? She’s very stubborm & won’t accept help via a wheel chair etc is struggling with crutches…
Thanks Belinda…but they’ve told her that her hip/spine is inoperable…too little bone left…only option is chemo to knock back the tumour and hopefully regenerate the bone…
xx
My only input is that everyone is so different in what they want to know or not. Your friend is very lucky to have you supporting her. I am very lucky with great support which makes such a difference even if it is just a quick “how are you” phone call. I want to know everything and found it hard that I wasn’t being told alot. I have a specialist nurse from our local hospice who comes to see me and who I can contact at any time to ask questions about anything. Last visit consisted of a very long conversation about my bowels and what to expect at the end!! It’s what I wanted to know but he did say that many people don’t want to know which is why some oncs don’t tell you unless you ask. Maybe your friend would be happier with someone coming to her home where she would feel more comfortable asking questions. My oncology unit nurses arranged my specialist nurse and they also arranged for the physio people to come to see what equipment could be supplied to help me. I was given a wheelchair for when I get too tired to walk and simple things like a grab rail to get in and out the shower and a frame thingy to go round the loo to help get up and down. I also was given a high stool to perch my bum on if I get tired when I am in the kitchen. All small things but a great help which could help your friend to but your friendship will be the greatest help. Vicky.