just recieved call off hospital tom say my appt for tomorrow has been cancelled , they have said my biopsy has to be sent for further investigation , does anyone know why this happens because after a nightmare 5 days of waiting i now have another week .
Oh Trish, really sorry to hear that - do you have a BCN you can call and ask about it? Or ask at your GP’s about it, they may be familiar with the system at your hospital. Waiting is definintely the worst - do hope you can find some distraction - not sure I would recommend my approach which was a lot of alcohol, but it worked in the short term OK…
very best wishes to you Nicola
they have told me it was cancer so i just dont know whats happening . could they have got it wrong ?
I think they may be checking type of cancer - but best to call the BCN and ask what they think the possibilities are? bw Nicola
been ringing but clinic must be shut now so left a message , they told me it was really small and ultrasound technician said may need another biopsy if not enough sample tissue taken , i`m thinking now this is the case and they have sent off to some other lab where they have the equipment to look at it more closely xxxxx
hi trish, the waiting is awful you just want the day to come but when its here you feel sick but to build yourself up then have it cancelled is dreadful,they could be doing a number of things but i hope they dont keep you waiting too long take care love rachel x
ok , here is my plan , tomorrow morning i get up and no longer smoke , miraculously in front of me will be a wonderful array of " good foods " i wish !! any suggestions on how to make not smoking easier and also diatry tips are really really welcome , thank you and may the love that shows itself in this forum protect us all xxxx
i was told not to give up smoking yet by my bcn and again today by my onc so i have just cut down but i have been out and brought one of the healthy fags or wot ever it is you wanna call em funny thing is it makes me cough me guts up but everyone else seem to be ok with them good luck to you give it up x
maz
thank you for responses girls , yeah it wouldnt make sense to stop smoking just yet , stress levels far too high , have cancelled my smoking clinic appt till next fri when please god i will have my results and know what im dealing with , finally spoke to bcn and she said tissue sample needed to be sent off to determine type , i have this terrible taste at back of throat when i try to drink water , i thought maybe it was side effect of sleepers but foolishly i googled it and it can be because of disease spread , now once again after a fairly positive day i am back to being terrified , this is one long rocky road , but i know we all walk hand in hand together and that has to keep me strong when the doubts hit xxxx
Thinking of you - it is such a roller coaster of emotions coping with this disease and tests etc. Hope you have some good special or pampering things to do this weekend to try to keep your mind occupied
take care
Hi trish1968
Unfortunately I can’t come up with a magic solution to your wait for results, but on the giving up smoking front I suggest you try the Nicorette inhalers.
I had previously tried giving up smoking with (a) Nicorette patches, which didn’t work for me since they drip-fed me nicotine and didn’t deal with the cravings at all, and (b) hypnotherapy from a GP who assumed that all women suffer from a lack of confidence and kept telling me over and over again that if I packed up smoking I would feel more confident - if I was any more confident they would have to shoot me!
The inhalers worked really well because if I felt the craving for a fag I used to go outside (at work) with the other smokers and use the inhaler instead, and it gave me a real hit of nicotine. The instructions say you should just keep using as many cartridges as you need and your need will naturally reduce - sounded unlikely to me but that was in fact how it worked and I wasn’t tempted to have a cigarette, unlike when I tried patches.
That was 8 years ago and I haven’t smoked since, or wanted to, which is probably as important.
Good luck with everything, it’s a tough time to get through.
Sarah x
you would think with such a diagnosis our immediate reaction would be - stop fags , if it were only that simple , they are my emotional crutch , they make me stop and take hold for a couple mins , i will stop , i just need to know what i`m dealing with ,got smoking clinic next fri . by then i shall hopefully be ready to fight and thank you for positive answers xxxxxxxxx
hi trish,
i have never smoked so there fore it is easy for me to say pack in, but
feel that would just be out of order,
instead i would say dont be hard on yourself coming to terms with everything else is hard enough,
i have gained 3 stone since i startedmy treatment but dont give a stuff because i am still here and to me thats more important,
we have to do whatever to cope with this c%p so take it easy and give yourself a break,
all the very best to you love liz xxx
TRish sweetie, dont be hard on yourself, you deserve a break, you are going through absolute hell, so do what it is you need to get through the next few days, whether it be wine, fags, chocolate, or shopping!!
I went out on Friday with my gfs for a delayed birthday night out. I was very poorly the week of my birthday, infact spent my birthday on a drip, due to bloody cancer, anyway Friday night I got so drunk that I actually “slipped” over and probably made a grade a twit of myself, but boy did it feel good to let my hair down and be one of the girls rather than there poor friend with cancer! BUT saturday morning during my hangover I felt so guilty and thought so much for my healthy living what have I done, but hey it felt good, and we all have to be kind to ourselves during this horrible journey, so please give yourself a break.
Big hugs, really hope you get some news soon.
SGL xx
hiya stargazer , thank you for your reply , i got my results on wednesday , its grade 1 tubular ,while they say the chances of it being in my sentinel node is minimal they obviously still have to check so surgery booked for june 10th , lumpectomy and lymph node removal , there was also mention of dye and the resulting blue breast - should be interesting lol , i went to my brothers wed evening and confess to getting absolutely mashed ! i danced ,i cried and danced bit more, acceptance isn`t quite mine yet and the fear is still huge , doc put me on sleepers which have helped me sleep , i find it hard to believe my partner has now developed an almost - ok thats enough talking bout it now attitude , my god i would never wish this fear on anyone and sometimes i just need to talk , thats the beauty of this site , well apart from all the beautiful brave awe inspiring women on here , we all understand xxxxx
hello elizabeth , you are so right and i do think im believing if the fags go all will be ok , i have cut down considerably as recovery after surgery should be quicker , you have the right attitude and very positive , i just cant get head round yet , it will come and maybe my denial of cigarettes , alcohol , fatty foods is denying myself too much at the min but im terrified if i carry on it will advance the cancer and i just want it stop go and leave me alone xxxxxxxx
Hi Trish
just found this thread and thought I would share with you how I stopped smoking - I read a book called ‘Allen Carr’s Easyway to stop smoking’ and stopped when I’d finished. Got it in WH Smiths. It was incredibly effective.
Good Luck - keep having fun though because its so great to feel that cancer can’t rob you of everything,you are still you!
best wishes
monica xx
awww trish, I am so sorry to hear that you have been diagnosed, but am hopeful that your nodes will be clear. They said the same to me in that the chances of my nodes being infected was slim, and they were clear! They do seem to have a good idea, so hopefully all will be well. I had the dye too, but my breasts didnt go blue lol
Your bit about getting drunk made me smile. Two months ago was my birthday and I had to cancel a girlie night out cos the night in question I was having my Lumpectomy, so it was postponed till last friday. Boy did I go for it in a large way, I was so drunk my friends had to pick me up when I fell on the floor while dancing, and I even, god this sounds awful, but I even showed a few guys the scar under my armpit where I had my sentinel node biopsy, and said do you want to see my cancer scars. God, when I remember in the morning I was so embarassed but you know what I had such a good night, after months of crap and I really needed to let my hair down! xx
i would hate to discourage anyone from stopping smoking. Especially as one needs to be as healthy as possible if there is a possibility of an opperation. (I have been wondereing about cutting down drinking).
but it is interesting that the cancer nurse and the doctor mentioned it causing stress.
The National Cancer institute have a paper on stress and cancer. Whereas they can find no link between the start of tumors and stress, they have found several links between stress and the developement and spread of cancer. Especially feelings of lack of control and suppressing negative emotions. ( i am sure they are clever enough to work out which came first, the stress or the spread).
So I think do whatever you honestly believe is going to help you. you have your mental and emotional health to consider as well as your physical health.
If you will feel empowered by managing to give up smoking that might be one way to go, if it leaves you totally stressed out you might decided just to cut down.
Hi Trisha, sorry to hear your news but YOU WILL BE OK.
I had my wle and snb yesterday, yes blue boob and i’m peeing blue! but really I feel OK today, a bit sore of course and i am letting the family fuss over me. I get my results in 10 days so i’ll keep you posted Jane x