Thank you @bluetit11 you are so right.
2 Likes
Yep and with a guaranteed 0% success rate, itās not even worth it!
2 Likes
Your post sounds very much like my experience. Diagnoses keeps changing. I too am spiraling . Going into depression
3 Likes
Hi @carlie1
Iām so sorry you are going through this too. Have you spoken to your doctors or GP about how you are feeling? Iāve been prescribed some anxiety medication that does help calm my thoughts. Iāve suffered with health anxiety for a number of years so am finding this really challenging.
It can help to talk to the BCN nurses on the helpline or your own nurse too if you havenāt already about your worries and how you are feeling. Likewise the lovely people on this forum can offer reassurance and advice if you want to ask anything.
I am finding that so many people on this forum have had changes happen on their diagnosis journey and I am finally starting to accept now that itās all part of the process in our doctors working out what treatment we need.
Itās worrying of course, the fear of the unknown and what we will be told at each appointment. That is totally normal and itās ok to not be ok.
3 Likes
Thank you Bella for your words of encouragement.
I agree with everything that you have said. Logically I know that what we are experiencing is a process. That our medical professionals work hard to get the best treatments to our specific situations.
I have talked to the nurses who are a wonderful as well as a counselor but I am still not settling down..
This forum is working better for me..I feel.that I am hearing from real people and they totally understand because they are expericing the same things.
Thr biggest part of my problem is that I am alone
.I have not told many people about my diagnosis but the few that I have confided in seem to have fled. The counselor says that this is quite common as people donāt know how to respond..
I understand that and also people have their own lives and problems..
So I will just continue to stay on this site.
Once again thank you for your encouragement.
Hugs 
6 Likes
I find this forum so useful so do keep on here talking to us all and hopefully youāll find advice, support, positivity and reassurance as i have done.
Itās great that you have a counsellor and iām sorry people have distanced themselves. I have family who message me everyday asking how i am. I worry that they are qorrying about me and somedays just want to be left alone but i appreciate itās hard for people not going through this. We are all here to support you though. Are there are support groups near you. I had a search online and have found a couple that i think iām going to go to to speak to others locally who are going through this journey as well.
Best wishes x
1 Like
Hey @carlie1
Just wanted to hop on to recommend Breast Cancer Nowās Someone Like Me service in case you werenāt aware of it. I used it recently and it was so uplifting and motivating to speak to someone whoās been through a similar pathway and is enjoying her life.
The link is below if you ever fancy giving them a call to chat it through. As you appear to be also discovering, I find peer support to be just as valuable as the professional support and often more so.
All the best. x
1 Like
Beautiful
Thank you for taking the time to read and respond to my post. I will definitely get in touch with them..
Cheers,
2 Likes
Hi @carlie1
Welcome to the forum. Until my diagnosis I hadnāt used a forum but since this has been invaluable.
There is a wonderful charity called Penny Brohn which is based not too far from me but also provides online support in numerous areas such as nutrition, exercise and mindfulness. There is also a fabulous treatment support programme as well as day and overnight retreats. There is also one to one support. I found the online sessions helpful during my active treatment especially during chemo. As with many charities they rely on donations.
Take one day at a time.
1 Like
Iāve chosen to only tell a very small circle about my diagnosis as I havenāt got the headspace to manage everyone elseās reactions and feelings.
You donāt say where you are but if you have a Maggieās centre nearby they have a huge range of support available or see if Macmillan have groups near you.
Hello and thank you for replying me.
Like you have never used any online forums. I joined recently and I am overwhelmed by the number of responses that I have received.
My journey started one year ago .I went to all my appointments surgeries and follow ups alone..The few people that I confided in suddenly were to busy. When I looked, around the waiting room to see people sitting with,holding hands with their friends and family and I was alone that really hurt . I felt that mo one cared enough about me to come and offer support..
I had to stay in the hospital overnight even though I didnāt need that level of care. I didnāt have anyone to take me home. I could not go home alone because of the anesthetic. I saw a counsellor once a couple of months ago and she said that it is not unusual for people to avoid you after a diagnosis because they donāt know what to do. I understand that and people have their own lives and problems. Unfortunately, I didnāt find the counselling session to be any benefit. Maybe I should have gone to a few more.
Finding this forum.has been the best thing for me do far. Reading posts from people who truly understand has been wonderful. I feel that I am not whinning or having my own pity party but accepted.
Everyone is really cheering each other on.
Be well my new frien
2 Likes
Hello
I live I British Columbia Canada.
Thank you for the information. Like you I have not told to many people.
I will check out the the resources you have suggested see if they may be available here.
So far I have found this forum to be a wonderful supportive resource.
Thank you again for taking the time to respond and offer some suggestions.
Be well
2 Likes
This looks like it may be of use for you How we can help | Canadian Cancer Society
Thank you
I have been in touch with them
Hav a great day
1 Like
I just wanted to say thank you to everyone for your support the last couple of weeks.
I had my results appointment today following the bone scan and the bone islands seen on my CT scan were ānothing of concernā. I cried as I have done at every appointment the last few weeks. Iām booked in to have the rest of my lymph nodes removed next Thursday and then Iāll hopefully find out what treatment iām having. I finally feel a bit of relief that things are happening.
6 Likes
Oh that is amazing news @bella80! Iām actually tearing up a bit for you right now. I know that feeling of relief all too well.
All the best for your surgery next week. x
2 Likes
Oh thatās great news. I hope your surgery goes smoothly.
1 Like
Thank you both so much x
2 Likes