Hi Mishy I have nuclear bone scan on Friday and appointment week on Monday at orthopaedics although I’m not sure if they will have results and will get myself worked up only to be told I have to wait again .In the meantime things are just getting worse was initially just pain in my left leg now both legs ,hips and spine .I really enjoyed the trip yesterday looking at beautiful views and eating nice food but would have been nicer without pain .So restricted now by it just want to know what it is bad or not quite as bad and get on with treatment .
Hello Mishy and Jill,
Mishy - yes - probably spent more time in Scotland than anywhere else.
Jill - best wishes for Friday’s appointment. When I had the radioactive dye injected, I was given a bracelet tag to warn everyone I was radioactive. I had to wear it for so many hours. We even had a seperate loo to use in the scan department. I tried to chat with the nurse about it at the time as it was a bit disconcerting. She had obviously been doing her job for too long and it was as if she was trying to make out I was the oddball for even asking about it!!
It seems all three of us are quite restricted now. I don’t drive, but even if I could, I wouldn’t be able to because of the pain as well as dopey drug effects. I feel like a prisoner at the moment. I am debating a trip into town - it’s like planning a major expedition. It is just so painful to walk on my right foot. When the waves of pain hit from the foot and up and down the right side? - agony and swearing abound. I do find lunge type position relieves things for a while but a bit wierd to do in the middle of town ?
Two Gaba, one dihydro and paracetamol this morning, and no real pain relief. Have been trying mind over matter - trying to convince myself it is just normal life now?
If you have any other non tablet pain relieving methods that you find help then let me know. Have tried warmth, walking, pillow bewtween knees. I was in a taxi recently and the taxi driver was really trying to persuade me to take a shot of his CBD oil. (I hadn’t said anything to him about my condition). I obviously didn’t - it could have been anything but goodness he didn’t half piped on about it!!! ?
Yes the lunge position would attract some attention in town !!! My GP said stressing about pain makes pain more acute - so anything that relaxes helps - easier said than done eh ?? I have acupuncture and that does help but only for a short period after treatment - may be worth a try . I am currently looking jealously at people who pass by on mobility scooters and seriously considering buying or hiring one so I can get out with my dog as I really miss that .I can drive but not much use when you can’t get out of the car at the end of the journey !!!
Great to hear you have your scan Friday Jill hopefully they would have the results in thr system for Monday still ask i would re cbd im considering at as gaba nit helping that much with pain but feeling spaced out i get the worrying thing re pain too, now i know whats wrong im worrying about it more
Chick i think im going to start using the epsom salts again and the cbd from Holland and barret is in the penny sale its still bloody expensive though isn’t it keep us posted Jill you will have to distract yourself for a couple of hours after the injection but the scan doesn’t take long chick my unit were a bit more relaxed ? isn’t it funny how different trusts do things!!
CBD oil is pretty expensive and a lot of choice and strengths - hard to know which one.A friend gave me some when I had bad anxiety and it did make me feel calmer but not tried it for pain.
Hello all,
Mishy - Epsom salts - good idea - well it won’t hurt. I still have a big bag left from chemo days. I keep forgetting I have them.
Jill, I am glad your doc said his words of wisdom to you and not me. I am not stressing about pain, I am bleeding feeling it and it is hindering life greatly - just like for you and Mishy. Oh I am sure he was trying to be helpful.
Anyway, tonight I have found a lovely non tablet cure - a glass of sherry. Well a little occasionally should be ok. Great tablet mixer ? ???X
Didn’t they used to be able to prescribe sherry on the NHS ?!! The pain would not be defeated by painkillers last night - miserable long night- felt drugged with still in pain …Problem at night is that position that is best for legs is the worst position for spine and vice versa .Hope things don’t get worse over the bank holiday weekend and I have to go to blooming walk in centre .
Good Morning all,
Sherry on the NHS - lovely! Mind you it is cheaper than a prescription now?Poor you Jill - I can understand the night time pain. There is just no relief from this unless you can eventually fall asleep.
I Still woke up at bleeding 3ish, and as always in discomfort. Got on my knees again in bed to try and alleviate but doesn’t always work so went for a limp around the bedroom. So incredibly sore in the mornings. Pain is 24/7 but not always at morning levels.
Well it is “up the Gabapentin dose day” again today so have done that this morning with one hydro and one paracetamol on top. No difference yet, not even slight relief. I wish I could get the pain down even to that of a constant niggling headache!!
Booked a GP appointment for next week to look at pain management. If I do not get any relief with taking the Gaba by then, then other avenues need to be explored. Also heard that one needs to be careful coming off Gabapentin, even if you have only taken it for a short time so will check that out.
Sending pain free wishes to all X ?
Jill awful night you had its trying to find the right position thats the trick chick a glass of sherry if it helped and the odd tipple shouldn’t hurt
I have had a lovely time today with daughter and Grandaughter (baby) we went to ouseburn farm a little local community farm was lovely then Seven Stories book museum its lovely but i think i overdid it ended up in tears with the pain when i got back so its bath with Epsom salts and an early night for me x
Glad you had a good day Mishy - sounds lovely .Shame it ended in pain and tears - I have found a position on the sofa were it doesn’t hurt - I’m scared to move !! Not looking forward to my scan tomorrow 
Oh Jill im sure you will be fine the actual scsn doesn’t take too long its just the waiting around after the radioactive injection for it to go around your bones which takes the time they will tell you to drink plenty afterwards to flush it out i went for a cuppa at my maggies centre as it was in the same geounds as the scan department better than sitting in the hospital i hope you get plenty of sleep tonight in preparation and i will keep everything crossed for you to get results at your app so you don’t have to wait for the results too long x
Well turned out to be an even bigger pile of ? than I expected - had scan and then radiographer said - we are a bit concerned about your left foot - think we need an x Ray as there is a new fracture there !!! Had x Ray - yes fracture in heal.I said can this wait til I see Orthopaedic surgeon week on Monday - well it’s up to you but you should really go to A and E and not walk on it … couldn’t face it - so came home - suppose will need to go back but feel this is a specialist job to work out what’s going on not an A and E doctor - so fed up as can
hardly walk as it is - in plaster and on crutches not much chance of getting out of bed .Can you get mets in your heal ??? ?
Oh Jill,
Bleeding heck. What a shock! No wonder you are in so much pain. Yes, agree that specialist needs to be coordinating your care but in the meantime, please get your fracture seen to.
When do you hear about the bone scan results? Is this through GP?
Sending you ? ? ? X ?
No the scan was arranged by orthopaedic surgeon who I am seeing again week on Monday .
Hi Jill ? no wonder you have been in so much pain the sooner these results back the better i terms of anxiety for the break i would get it checked and sorted, have you had your bone density checked Jill just a thought as my mam broke her hip when she fell over and she was in her late 50s turned out she had osteoporosis she never took hrt during her menopause and conbined with poor diet she had this which apparently can cause breaks and fractures quite easily usually when they discover the poor bone density hence the reason i want mine checked too xx it was a thought as if you haven’t really injured it as such it could be a likely cause ? hopefully it won’t be too much longer till you get to the bottom of all this ?
Hello Jill,
How are you today?
? ? X chick
Went to A and E this morning - they said 4 hour wait - you would be better ringing trauma clinic in the morning and see if they will see you as you are already under the Consultant who is on duty tomorrow .So I hobbled away and went for a nice pub lunch instead !!! Try again tomorrow and enjoy not having leg in plaster for another day !!! Is the Gabepentin working for you yet?
Each time I go to these appointments I get geered up to be told I have bone mets as at any point someone will have that information maybe sometimes when I’m least expecting to hear it .?
Hi Jill Chick and Helena
Jill thats rubbish isn’t it i really feel for you the uncertainty of Mets must be making you feel really anxious add that to the pain nit nice i really feel for you
I have had a horrible weekend doc stopped gaba as i had some really troubling symptoms late Thursday creeping feeling up neck into head with headache and a spaced out throbbing sensation gp checked me over felt fone the next day when she rang me on Friday tea time then it started again late Sat night felt awful yesterday afternoon but it settled again its starting to worry me im even contemplating not going on my mini break as it’s a little coach break (didn’t want to risk going abroad) and it was really good value its only for 4 days but im worrying about the travelling its not till 14th but my app with neuro isnt till 2nd Oct i think i might have to ring his secretary and ask if i can see him at short notice i don’t want to go to A and E as i feel like a drama queen so Jill i really can empathise with you with the not knowing part its scary i know i don’t have mets so im not worrying about that which must be awful for you atm sending you a big virtual hig
Chick your scan is soon i hope you don’t wait too long for the results xx
Gabepentin - painkiller .