I’ve been on tamoxifen for 3 years and thought the flushes had calmed down but oh no they are back with a vengeance.I feel quite ill when one is starting my heart races and I feel like i’m going to burst,and everyone is commenting on my bright red face when I have a flush.I can’t even count the amount i’ve had over the last few days.
B------s is all I can say.
Sorry for the rant.
Melxx
Hi Mel,
I’m with you on this one. Been on tamoxifen for 3 yrs 5 months and the hot flushes are a nightmare at the moment. They are worst at night. I get so hot I don’t know what to do with myself, and it can take half an hour to cool down enough to get back under the covers and try to get back to sleep. Also I’m back to running with sweat with bad daytime ones. Horrible. If I’m at home I strip off to my bra and stand outside in the garden where the neighbours can’t see. At work I make a dash for the toilets and strip off. I’m pinning all my hopes on October next year when the five years will be up.
Hi Roadrunner sorry your having the same it’s horrible isn’t it.mine are just like they were when I first started taking tamoxifen.I also get the sweats mainly just as the flush is passing the sweat starts and seems to be worse on my hand and arm on surgery side,I do have lymphoedema so don’t know if that’s the reason why that side sweats more.I had the biggest flush ever in the middle of the playground yesterday and the children looking at me saying “your face is really red miss” I felt a bit embarrassed so it probably went even redder lol
Melxx
Quick thought - have you changed brand recently? I’ve read others saying that the SEs are different depending on what brand of Tamoxifen they’re on. I haven’t started mine yet so not speaking from my own experience.
Hi, Yes your right i’ve heard it has something to do with the bulking agent, but I’ve been on wokhardt for some time now, when I first started taking tamoxifen I would alternate between APPS and workhardt and always had the same side effects so I don’t think it’s down to different brands in my case.Oh well only another 2 years to go lol.
Melxx
I have been on Tamox for nearly a year now. To start off with the flushes were absolutely horendous. They then settled over the winter, but since the weather has improved thay have come back almost as bad. I am dreading the summer as I am sure they are just going to get worse.
I have been on some homeopathic medicine since October to help try to control them. I don’t know whether that worked to start off with, but if it did the effects have worn off, and I am now about to start a different one.
The one thing that helped me sleep last summer was the cieling fan we had fitted in the bedroom. My poor husband had to freeze, but it helped to keep me cool. I think it is almost time for it to go on again.
Hi,I did think maybe it was because the weather was warmer but it’s been over a year since they had calmed down I was only having about 3 through the day.I gave up caffeine and chocolate and spicy foods as I found that triggered them,and that’s when they calmed down.Don’t know why they have all of a sudden returned.Lol I know what you mean about OH freezing,I have to have the windows open at night and my OH wraps himself in the duvet and is always moaning lol
Melxx
The warm weather seems to be making mine worse - had a huge one at work yesterday and this lovely colleague rushed off and got a huge glass of water with masses of ice and it really helped - I thought I was going to explode with the heat!
Mine aren’t too bad during the day but as I sit typing this I can feel the heat rising and the back of my neck running with sweat…oh joy…My husband is away for a few days and on his return tomorrow he will find the summer duvet on our bed, can’t cope with the winter one any more. Window wide open and iced water to hand. Started when I got put on tamoxifin. I also notice that coffee triggers them so have given that up…mostly…
I’m with you all on this one. Been on Tamoxifen 2years and was ok but last few weeks not sleeping well with flushes back with a vengeance.
I haven’t been on the site for a couple of months, so shows how I am that I felt the need to look at posts today.