Very down today. Surgery booked for Friday, saw bcn today for bra fitting and talk at oncology unit. So much information. Hoped only to be in hospital for couple of nights but it could be week, will be in high dependency for first night. Arm will never really be same again as I am at risk of lymphoedema, which sounds so scary. Treatment is likely to take 8 months, chemotherapy, radiotherapy before I even start on 10 years of drug therapy . Can’t believe 2,weeks ago my life was ‘normal’ . Had been positive I could beat his up to today but now I’m not so sure
You are allowed “down day” sweet x. I has MX 4 weeks ago, then lymph node removal 12 days ago. I stayed in just overnight for both operations. Obviously invidual circumsatnce dictate to hospital stay. It is nowhere near as bad as your imagination is making you think! The lymph node removal is pretty uncomfortable, but listen to what your body tells you when you are recovering. Gently excercises and good skin care reduce the risk of lymphoedema… My life, like yours, was normal a few weeks ago, and now I don’t even know my further treatment plan (each hospital has different treament pathways). You can do this, and you WILL do this, as will I xxx
Thinking of you both with love x focus on something positive to look forward too x not long to your concert u2girlie x sib your lovely sons will help you through xx
Have a fantastic time and a good sing along ? xxx
Hi Sib,
I’m so sorry to read about your day and it’s understandable that you’re feeling down. I can’t give you any useful information as I’ve not had my op and I’ve not got to go through the same procedures as you, but there are lots of lovely ladies on here who have and who will be able to reassure you. Thinking of you and sending a hug xx
Ps I replied to your message from the other day, but it’s on the bone scan thread x
My life was normal until 3 weeks ago and now I feel like I have gone ten rounds with Mike Tyson.My head is like swiss cheese.You are allowed to have a down day.I find the mental side worse than the physical-positive days and negative days and you never know what you are going to end up with! Don’t try to jump ahead-take it a day at a time and if you feel panicked or jumpy,try to do something to distract yourself.Read/go for a walk/phone a friend/come on this forum.Stay positive-you will have good days and bad days and that is ok and normal.I have Been catatonic at times with worry and it is so difficult.Remember you are not alone,
Big Hugs XXX
Sib, you are allowed to feel down. So much to take in, and in such a short time . Try to remember that the medics have to give you every bit of information, BUT it may not happen! All of us were, or are, at risk of Lymphodemia. Not all of us have it. I haven’t . You just do your exercises like you’re told, and listen to your body . I had a WLE, but my treatment plan sounds the same as yours. So,chunk it down or you’ll go mad. Step one was my op . Breast fine, complete lymph node excision - not so much. Drain a pain. All over now. Full mobility, and it’s the same for lots of us. Step two is six rounds of chemo. Every 21 days means it’s going to be finished in 5 months, and that’s not even half a year. I’m half way through, so I see that finishing line. I can visualise yours, too. You get a months rest, you know, before radiotherapy . Can you fit a little holiday in? I’m hoping to use our caravan. Step three is the home straight, girl. I’m like you with radiotherapy . Just got to make sure it doesn’t come back in the other breast as well. I’m holding your hand and willing you on. You really can do this, and tomorrow is another day . Look at the replies on here - we are all rooting for you, Bolly too who is at the same stage, a bit battered and bewildered by it all. Stay strong, you two. You’ll make it. ?
Thanks Jencat. Hugs. X
Hi Billy, thanks for reply. Think it’s just so much, plus going into oncology unit made it real, all my other appointmentside were in outpatients. I’m trying to housework done and meals prepared for when I’m in hospital next week plus also trying to go back to work before op. Think it may all be too much ans need to stop and take a breath
Xxx
Hi,
I’m sending hugs, I was diagnosed the day after you I think. I know exactly what you mean about life being normal and suddenly everything is different.
I hope everything goes well on Friday. I get my results from the biopsies they’ve done today on Friday.
It’s overwhelming isn’t it, but you’re being treated quickly and I’ve been told to take it one day at a time. Focus on the next step, not too far into the future and deal with one part of treatment at a time.
I’m probably not making much sense as I’m rather traumatised from the X-ray bitey machine, I nearly fainted again ?
Sending love and positive thoughts xxx
Thank you, sending hugs back. Xx