Problems with delayed reconstruction?

I’m due a mastectomy of left breast on Thursday and I’ve opted for delayed reconstruction for several reasons…

First, radiotherapy has not been ruled out; second, I want to get back on my feet and cracking on with follow up treatment asap to nail this damn disease; third, I have two kids (6 & 7) and the 6-week recovery period for reconstruction is not a palatable prospect during the school holidays; finally, this has all happened so quickly that I haven’t even looked at the options for reconstruction and I don’t wish to rush the decision.

I have just received a very well meaning letter from my sister-in-law, who simply wanted to flag up the experiences of friends who have opted for delayed reconstruction. They have found that the mastectomy scarring has been difficult to manage in terms of mobility and pain, particularly when driving.

This is not something I had even considered, and has not been mentioned by my consultant. I would be very grateful to know if anyone else has had similar experiences. Thank you. x

I was told not to drive for 4 weeks after mx but that would probably be the same (or longer)if you had immediate recon.

I had problems with wound healing when I had my mx but I cant say it was painful just a nuiscance and dident find driving difficult, I have just had a reconstruction and was driving after 4 weeks whichever one you choose you will have a few weeks of not being able to drive.Dont let people frighten you. best wishes suzan x

I was driving 2 weeks after my mx … so am hoping it wouldnt be too much longer after reconstruction.

Hi Angie

It very much depends on what type of recon you go for. If it’s an expander/implant only, the recovery time will be less than if you go for an LD flap or one of the tummy flap options. I had an LD flap and my PS wouldn’t let me drive for 6 weeks.
Dx

Hi Fitzimum

Sorry you’re facing a mastectomy. I had one last June and haven’t yet had reconstruction, though I now have an appointment to discuss my options. Apparently, if you don’t have it done immediately, they like to wait about 9 months after chemo, if that’s on the cards for you.

Are you having lymph node clearance? I found this quite debilitating. I’m not sure how much of it was the mastectomy and how much the under-arm stuff, but I had a drain in the wound for a week, then I was unlucky enough to get a seroma. I didn’t drive for a good few weeks because of complications and wasn’t covered by car insurance. Apparently they need to be confident you could do an emergency stop.

I had a two year old at the time and was pregnant, and although it was difficult, I managed to get on with life, including lifting my daughter after a few days. I can’t say it didn’t hurt, but I did my exercises and kept it moving.

Good luck; it’s tough with young children but you will get through it. xxx Jane

Hi Fitzimum

A long post, but in case it helps…

I had MX to left breast and immediate LD flap +implant recon on the 26th Jan.

I didn’t have enough tummy fat to consider diep option. Even if I could have had the diep option, I’m not sure I would have taken it. It sounded like a massive op and my main hobby is horse riding, for which good tummy muscles and core strength are more important than arm and shoulder strength.

My plastic surgeon (who took over once the BC surgeon had done the MX and lymph node removal) has done a great job of matching my ‘new’ boob to the old one - even down to the right level of ‘droop’!

Had hardly any pain post surgery - didn’t need morphine pump. Had op late Fri, out of bed just standing on Sat and walking the corridor on Sun. A week in hosp - they didn’t let me go til all drains removed. Did get a seroma on back that needed draining a few times, but that resolved itself quite quickly. I was driving and back at work (part time for a couple of weeks at first) 6 weeks post op.

Six months post surgery and the new boob is really starting to feel like it belongs to me - obviously don’t have the level of feeling and it still feels a bit firmer and heavier than the other one, but improving all the time. The PS warned that it does take a long time to completely settle down. It’s a bit bigger than the other one and a bit perkier (they are now nicknamed Pinky and Perky) than the other, but all of this is totally unnoticeable in bra and clothes - as is the slight bulkiness under my arm where the muscle was put through. That felt enormous for weeks, but again is starting to feel more natural and is unnoticeable to everyone else.

My scars around where the nipple was and on back are improving all the time (I do use Bio Oil). I can see that the nipple area scar will be difficult to spot in a year or two. The scar on my back is bigger and more ‘serious’, but still improving and is covered by my bra strap.
My shoulder and under my arm still feel a bit stiff and tight, but I have virtually full range of movement and am back gardening and horse riding. Chemo does make the recon feel worse at times, but this is temporary.

I do have to have rads. This was a calculated risk I took.
The implant won’t affect the effectiveness of the rads, but it is likely that the rads will affect the implant - my plastic surgeon said that even if get capsulation round the implant and, worse case, down the line I need the capsulation removed and a new implant, the final cosmetic result will still be better than a delayed recon.

If I am going to get capsular contraction it won’t start to show for a while - my PS said it can take up to a few years before it gets that bad that you need it removing and a new implant.

My recon boob is slightly bigger that the other, and I have a port in the implant where they can pump it up or let it down, so I’m hoping that if I only get minor shrinkage and contraction, they can let it down a bit and that will do the job.

I still don’t regret my decision to have an immediate recon. Various studies have shown that we can do better mentally and physically, and even if I do need to have another op, it’s a small one compared to a full delayed recon.

Good luck!

thanks for your post…i am due to have a mx 2nd aug and due to my size 40dd have opted for immed recon and as i dont feel i can mentally without a breast, don’t think i will get them to match possibly only a c cup but reading your comment has convinced me i am doing the right thing, after weighing up all the pros and cons…such as a possible two years to wait for recon…thanks again and will post my progress…

Thanks for the advice - hearing that other people have coped (while pregnant and with toddlers!) makes me think I’ll be OK. They don’t realise it yet, but my two kids are simply going to have to be a bit more compliant than usual. Ha, ha!

I’m having axillary nodes removed (about 10) too, and I think I’m being a bit daft, but I can’t visualise where the underarm drain & bag will sit? Presumably, tucked in next to body, so a button-up short sleeved top will be OK? And presumably nothing too snug fitting?

Advice greatly received! Thanks.

Hi Fitzimum

The drains have long enough tubes on them that the bottles usually sit on the floor (in my case in a funky gift bag so I could carry them round.) They don’t start removing them until thw flow slows to a certain level.

Thet are securely taped to you, so I didn’t have any probs with them pulling.

Whatever op you have, button up PJ type tops are best - they need to keep checking your wound, etc.

Good luck
Dx

Definitely button up pj tops also have a range of short sleeve floral tops in cotton jersey. The mx will still take a bit of recovery time I know it’s difficult with children but if you take it easy to start with you will feel better in the long run.