I disappeared for a bit after my original posts last year. My biopsy came back with a B2 and the consultant stated categorically that it was a just a benign lump and normal breast changes so nothing to worry about at all. I’m of course happy it’s benign but I’m still wondering if it is pash as I think it may be growing. I am getting pain in that boob when I take my bra off and have taken to lying in positions at night which prevent putting any weight on it.
The biopsy report states “fibrocystic changes with prominent stromal fibrosis (focally with pash-type features) and ephithelial columnar cell alteration”. It also mentions four different possibilities including two atypical lumps, phyllodes or Pash.
Does any of this ring bells with any of you? I’m struggling to put this to bed in the way the consultant thought I should be doing! x
I was diagnosed last week with PASH, painful unfortunatly. I am struggling to find information. My oncologist recommended a complete hystarectomy to begin with, then the tamaxafin treatment. There are too many tumors to be removed without total mastectomy. No one here had any idea of how to proceed, the doctors are leaving the decisions to me and I have not a clue. I live in rural USA, not exactly a medical mecca… Any help would be great, I wish there was someone to call…Sealwood
Im finally on the road to recovery after my second Mastectomoy on the 16th June, unfortunatly it didnt go as smooth as the first and i ended up having to go back in to theatre just over a week after my initial operation to loosen some of the muscle holding the expander implant, but im finally starting to feel better and have had my first inflation today and so far so good!
Im sorry to hear you ladies are strugling to find help I was in the same situation after being diagnosed with PASH but all I can say is keep going to back to your doctor if your not happy, I was told on numerouse occasions that it was just a lump and nothing to worrie about! but i was so fed up of being in so much pain all the time and i couldnt sleep as I couldnt get comfy and I could feel the lump getting bigger and bigger and eventually I was so low and fed up I just broke down in the consultants room and said I cant go on like this its effecting my day to day life! It was at this point I feel they took me seriously and was sent for yet another core biopsy.
When the results came back this is when they finally gave me a name for the condition I now know is PASH my options were limited I was offered drugs to stop all my hormones forever but this was not an option as we want a family so the other option was the Mastectomy as the PASH was so large so I said YES straight away as I know that would end the pain and suffering and it has!!!
I still have one more operation to go to remove the expander implants and replace with silicone but then thats it we can carry on with life pain free and start our family as it feels ur lives have been on hold for so long.
If any of you ladies have any questions please do not hesitate to ask me I might not have the answer but dont be afraid to ask! I know how hard it is to find information about PASH even my doctors dont have that much info as I am the only case they have had!
At the beginning of July after my regular mammogram I received a call advising I needed additional views done and probably an ultrasound. After the second mammogram and ultrasound I was advised I needed a core needle biopsy. I had two done which showed PASH. I never heard of this and tried to do some reading online about it as suggested by the surgeon I saw. On August 8 I had a quadrectomy done to remove the rest of the PASH and to verify there was no cancer. Thankfully there was no cancer just more of the PASH and I am still recovering. The mass was not papable. It was extremely painful but I had no idea the pain I was having was from the PASH. I was in the ER twice to be checked for a heart attack because I was having such pain in my chest in my left breast where the PASH was located. My heart is great but none of the doctors ever suggested it might be something in my breast causing the pain. Makes me wonder. From the comments here it sounds like this is something that can reoccur and could affect both breasts over time. My surgeon seem to suggest the same thing. I have to have another mammogram done in December. After this I have made a promise to myself to be diligent about my screenings, which at my age (51) are done annually. If the PASH does start growing again I want it caught early, if possible. I feel for those of you who have had to go through mastectomies because of this condition.
I was diagnosed with PASH just a couple of weeks ago. Waiting for the test results was very stressfull. Having to put our future vacation time on hold as suggested by my family doctor, was very stressfull. But I still managed to put on a straight face at work. Not knowing if I had cancer or not was still an experience enough to start thinking in a different way. I have family members who did have breast cancer and you never know right? So not sure what PASH is all about. As described by the specialist, it is still unkown if this PASH leads to cancer in future years. I have more than one lump on my left breast. I was given the option of taking them out or wait. I am to return in 6 months to see if they are getting bigger. Is this something I can just let it be or do they eventually have to take them out anyway? Do the lumps do anything? Do they go away after menopause? I am 48. They are somewhat itchy and sore at times. Yes I would like to know more about it. I am also from Canada. Not sure what my healthcare plans will cover. Do need to inquire about that also.
Hi I just signed up and I also have PASH. But with my age dense breast and strong family history of breast cancer they did an MRI. Positive for dcsi in the other with a fast growing PASH in the other They wanted to do six more MRI core guided biopsies I opted out. Have a double masectomy scheduled for sept 17. Not sure if PASH is a precursor to breast cancer
New to this forum, although I have been reading the posts. I am 35 and have recently been diagnosed with PASH. I noticed back in January this year that my left breast was swollen and not fitting in my bra correctly. Didnt think much of it and thought it was reduce on its own. It continued to grow and I felt a large lump. Finally went to see my doctor in march. Was referred to hospital. I had an ultra sound done and due to my age was told it was just my menstrual circle causing the lump and told to take evening primrose tablets. I went away feeling like I had wasted the consultants time. Another month passed and my left breast was still growing. My right breast is a 32g and my left breast is was a 32h, I feel lopsided. I went back to my doctors and asked to be referred again…this time the consultant was more understanding. I had a further ultrasound…then I was booked for a MRI scan. All the ultra sounds and MRI scans were clear as they were looking for cancerous cells. I was then asked back for a core biopsy. It was
at this stage when PASH was diagnosed. When I got my results the consultant said it was rare and that she would have to do some more research on the condition. I cant seem to find much information on the condition and not sure what happens now. I am hoping to get more information from this site. My next appointment isnt until November but I want to know what is the next step. My breast has grown again I am now a 32hh. I am feeling extremely self conscious. I have always had large breasts but I really dont want my left breast to continue to grow.
My name is Maryann. I recently had major breast surgery for PASH. I’m wondering if there is anyone out there who also has had surgery? It’s been a long, long process!
Just found this site and joined. I was diagnosed with PASH a few months ago and cant seem to find any information on it. I have had many ultrasounds of lumps in my breast and started having discharge from the nipple. I had a mammogram and untrasound done in June and then a core biopsy which resulted in the diagnoses.
They are rechecking it with a mammogam and ultrasound on December 26th and if the mass has changed or grown they want to remove it. I have a lot of pain in that breast at times. It comes on suddenly and will stay for a few days then goes away.
Im just glad i found this site and and have others who know what its like.
After reading through these posts, and having recently been diagnosed with PASH (which is being surgically removed in January 2015) I have done some research I wanted to share. It’s a 2010 medical journal article, which can be found here:
The most interesting findings are that women with PASH actually have a lower incidence of breast cancer (5.9% vs. 9.3% in the general population) HOWEVER, if breast cancer does develop, it is likely to develop on the side which has the PASH and for some yet unknown reason, the presence of the PASH provides the cancer cells with a friendly environment in which to progress. It is my understanding from my doctor, that the PASH itself is a benign thing…it will not transform into cancer. It can, however, hide a cancerous tumor, and as noted in the journal article, can provide a happy place for cancer to thrive.
Hi everyone, I was diagnosed three weeks ago with PASH from a core needle biopsy. This was performed after irregular findings on a ultrasound regular check up…nothing showered on the mammogram. I have seen a breast surgeon last week and he is going to remove it next Friday. Has anyone has it surgically removed? What are outcomes I can expect? Anything you can tell me would be great, it seems there is not enough info out there.
My older sister last year found out that she has PASH. She is going to one of the best/ top hospitals in the United States; but they seem somewhat clueless. PASH has now spread into the second breast. She is in terrible pain and cannot sleep at night. She cannot drive in the care for more then 20 minutes and has to rotate between standing, lying, and seating positions to avoid severe pain. She wants to avoid taking narcatoics. Any suggestions? The over-the-counter pain medication has not provided much relief and upsets her gerd (reflux) caused by the pain medication use. The litocane patches don’t seem to help as well.
We have a family history of breast, endometrial, and colon cancer among the women. She has also tested positive for the BRCA gene. I have yet to be tested and haven’t had my mammogram. Her doctors have told her that it is best to avoid surgery because… In many cases, the pain does not go away and in 25% of cases can get worse. What is your experience? Also, I was wondering if any expierienced a reduction in tumor size once past menopause or if the tumor stopped growing for a short or long period of time. Warmest regards and best wishes!
Hi I’m have a partial mastectony next week to remove a 13 cm PASH tumor. Can anyone tell me what the recovery time is? I know its different for everyone but I just wanted to an idea of how long I will need to be off work.
Hello, my name is Kelly and I was just diagnosed today withy PASH. Of course, the first thing I do is look to the internet. I had an ultrsound 2 months ago and the lump was 5 cm in size and then on Monday I had a follow up with a biopsy and now 9 cm in size, so it is growing rapidly. I go in on Monday for my “options” the nurse alread mentioned having it removed, so I guess I’m confused about the option part?
Along with the support here please also feel free to call our helpliners to talk any concerns over, lines are open 9-5 weekdays and 10-2 Saturdays on 0808 800 6000
The options are monitoring or removal. I imagine if it’s growing that fast they will want to remove it. Ask your Dr about what the plan is if it grows back as I understand they can. I had mine removed in January and my follow up mammogram is in July. The procedure was not as bad as I imagined it was going to be. Good luck!
I just joined this site because I was interested in hearing other people’s experiences with PASH. I was diagnosed at the age of 11 years old and struggled the past 15 years with a lot of reconstructive surgeries. I had PASH in both breats and had multiple removals before getting a bilateral masdecomy when I was 12 years old. I guess it’s my claim to fame for being the youngest person for a masdectomy? Anyway, it is really is nice to know I am not alone dealing with this condition so after being through all the hoops PASH brings, I am definitely an expert and would love to offer any advice I can.
I am 45 and was just diagnosed today with Pash. Biopsy confirmed . All the nurse said was this is rare and we can take it out if you want. Or we can get you back in 90 days to see if it grows. Seemed like NO BIG DEAL>.
Now after coming home and doing the research, most everyone has had their mass removed. My grandmother has had 2 boughts of breast cancer. So I am high risk… don’t know where to go from here…
First of all, thank you all for the excellent personal informal you have provided on this topic. I am 41 from southern California, and I was formally diagnosed with PASH yesterday. I had no idea what it was, and like most of you, had a difficult time finding much information on the topic. I also found it odd that I was sent to a breast surgeon before I was told what my results were, so I knew something was up. I am told that I will be having surgery to remove it in a few weeks. Again, thank you all for the information, it’s nice to know there are others out there with a similar situation, as I had no one to really talk to about it!
