Hi all; - not been on here for some time as I was taken into hospital as an emergency on 22 Dec with a pulomary embolisum clot in my right lung. I was due for Crohn’s surgery resection of my small bowel and upper colon on 5th January, but that had to be delayed by the lung problem, as was the next surgery date of 29 Jan as I could not even make the weight of 8 stones, even with nightly tubable feeding The gross plaster and tube on my nose and face elicits many stares, but I just think, thank goodness you don’t have to deal with what I do.
To cut a very long story short, my various doctors have now come to the consensus that my PE came from my right axilla - which was malignant and I had all lymph nodes removed. My PE was on my right lung.
It was only two weeks ago when I saw a new Haematologist for the results of blood tests the day before I got the PE that I remembered the Mondor’s disease, which he said he had never heard of. Well, I do get unusual diseases, like Leikmaniosis that I caught when living in Spain.
I just want to alert you that there can be complications from axilla surgery and this has been a long 2 and a half months on warferin to help prevent further clots and my surgery - 3rd time for a surgical date - will now go ahead this coming Friday. My health is complicated by the 3 C’ees as the heamatologist told me last week - duh? did he know I live on the sea? No, he said, Crohn’s, cancer and clots. Well, at least some consultants have a sense of humour.
I am very frightened by the upcoming resection of my small intestine and large colon, but after living with a tube in my nose and a 10 hrly nightly feed, know surgery is the right thing.
My various doctors believe my previous breast cancer has contributed to this pulomary embolism…I an so underweight, no hypertension or clogged arteries, and they say: “It just happens Liz”.
Well. I hope no-one has to go through this horrendouse 9 months I have done, not being able to eat, barely able to function…/but I have a brilliant 80 yr old husband who has always been there for me, every step of the way, with no complaints whatsoever…he has even this evening done a complicated Cexane injection into my stomach for my pre-op… I am truly blessed with Ted.
Liz.