Hi, this is my first post as was only diagnosed yesterday. All the classic signs of IBS, but treatment plan and hi
results of biopsy not for three days, but onc agreed it couldn’t be anything else, it is ibc.
So am in that horrible speculative place of worry. My question is that although I have a huge lump that came from nowhere on left breast, followed a few days later with lump in underarm, (this was all last week, so have had a quick diagnosis), I now have aching neck glands and jaw. Does his mean the cancer has spread this quickly, in a couple of days?
My bone scan and MRI are not till next week, so presume I won’t have chemotherapy yet for another two weeks till they get the results of that, does that sound right? Doc said “chemomwould start very soon” If so, what damage could be done in two weeks?
I am going back on Friday to get the biopsy results and can ask then, but am too worried to wait!
sorry to read your diagnosis and it is a horrible place to be in the waiting space. Can I suggest you ring the helpline on 08088006000 who will be able to offer you some really good advise.
Im sure others will be along that will have an understanding of your situation.
Stress can make us ache in all sorts of places, it may just be that.
Take care and thinking of you.
Hi,
I am sure that others will come along with more knowledge than me.
but i had biopsies last week and since then i have been getting aches and pains I never had before. I have put it down to the fact that I might be holding myself a bit different to protect the breast. Even a slight change in posture can be felt somewhere else in the body.
Or I thought the stress of waiting for results has to come out somewhere and my body was reacting more than my mind. As you say, you are in that horrible speculative place of worry.And you must have been concerned since you found the two lumps, added to the extra stress of yesterdays news
You could ring the councillers on this website or have you been given a Breast Care Nurse? They would give you an informed opinion of how quickly things can spread.
Hi Blackspot
This is a horrible situation to find yourself in and the waiting seems so so very long.
I think most people on this site will say that once you get diagnosed you automatically link every ache and pain to BC
Unfortunately my BC was also found in my neck but it was identified by a very enlarged lymph gland - so lets stay positive and hope yours has restricted itself to your breast and underarm.
As for treatment starting, they can’t do anything until they have all your results. For me everything always happened on wednesdays - scans, results, seeing onc and now chemo - needless to say I hate wednesdays!
I’m sorry I can’t offer any more help. Keep sharing your thoughts and concerns - it really helped me.
Sending you a cyber hug
Linda
I am sorry that you are so worried and in this situation.
After my core biopsy on my lymph nodes, I was sore for a while all around the tumour area and beyond and developed horrid irritated nerve sensations in odd places like my upper arm. Of course, at the time, I was scared that this meant that my tumours were growing fast but the surgeon assured me that it was a reaction to the biopsy. It did settle but took weeks.
I hope that you get some reassurance and results soon xx
Welcome to the Breast Cancer Care discussion forums, as you will already see this is the right place for some good support as the users of this site have a wealth of knowledge and experience between them.
As user, hatty suggests, do phone the helpline here if you need someone to talk to, they are here to support you through this.
I have also put for you below links to some of BCC’s publications which you may find helpful.
Feeling better this afternoon. Have just completed a two hour training session on-line (I was the trainer) and realised all the aches have disappeared. Think it could be as you have suggested, a blend of stress, being more aware and phantom pains emerging everywhere. I know it is okay for my neck glands to be a bit inflamed, as part of the local lymph problems now, so am feeling better.
Thanks again, and I’ll keep reading up about this disease. I think in some cases, more knowledge is not a dangerous thing, as it certainly helps me focus and will hopefully lead me to asking better questions.
Glad you’re feeling better.
When reading up, try to stick to sites like this one and Macmillan etc as there is a lot of incorrect rubbish all over the internet; folk can write what they like but that doesn’t make it true.
Hi Blackspot,
I too have IBC, diagnosed in Feb, currently having chemo, (6 Tax). I had a quick response with treatment plan etc as IBC is aggressive and moves quickly so I am sure you will been started on treatment soon, I also had a few aches and pains at first and the biopsys caused discomfort,From dx to start of treatment I waited 4 weeks,If I can help in any way please pm me and I would be happy to help in any way I can.
Jean
I am another IBC lady, DX in August 08 when it had already spread to my nodes. I had 8 chemo, bilateral mx, node clearance,and rads. I am now on letrozole and wil be for 5 years altogether.
I feel fine now having had to get used to the new’normal. Please don’t read too much on the Internet, a lot of the Information is out and date and very scary.
Ask anything you want and I will try and help either here on the forum or pm me
Hi all
I am an IBC lady too - diagnosed sept 2010. Started chemo 10 days after diagnosis, and would have started earlier if they’d let me
Totally agree with Andie about trying not to read too much on the internet as a lot of the information is out of date and very scary indeed - after diagosis I just restricted myself to this site, the Macmillan site and a US IBC site, which I found very helpful.
I finished chemo, surgery and radiotherapy. Happy to share any knowledge gained Key thing to remember is that our bodies all react differently to the various chemo and other treatment that we are going through, and I don’t think the oncologists can predict who will react in which way.
