Ok so I’m waiting for MRI to find out full extent. At present been told lobular 11mm, underarm looked clear on ultrasound.
Talking about surgery v holidays and nurse said if I was to wait they wouldn’t have a worry there. I’ve still to get MRI soot still could be in lymph nodes, and I get the waiting re it doesn’t grow bigger overnight, but how do the know it won’t move into lymph nodes in the delay?
Hi powdow,
I found the worst bit was waiting for the MRI & then the results as my initial biopsy showed a small area of lobular with ductal. Try not to worry about any delay, it’s easy for the mind to go into overdrive, as mine did, when going through investigations. It’s good that the ultrasound was clear, mine was clear as well & so it proved on the MRI. My husband was very good at reassuring me that the MRI would get to the bottom of the problem so that my treatment plan would be the best one possible.
ann
xxx
Thanks Ann.
I’m just a bit confused re it going into lymph nodes. When does this happen? It’s just that they have said to me “this didnt happen overnight its not going to change overnight, so if you wanted to leave surgery till after your holiday, that wouldn’t worry us” - so ok I get that the cancer size is not going to change dramatically in a few weeks time, but how do they know it won’t be in lymph nodes today but could be tomorrow?? I’m just not understanding that bit?
Ps I’m more querying the fact for delaying surgery myself - not at that stage yet to make decision as will be after MRI, just trying to get my head around the lymph mode issue so I’m prepared.
I’m actually fairly relaxed or as relaxed as can be, I am enjoying the fact that I am still living a normal treatment free life at the moment, so not getting hung up too much on things but just researching a wee bit.
Thanks Sue that was good to read. I will ask the question re lymph nodes as not really getting it. Thanks
Surgeon said when asked that they don’t know for def but lobular is usually grade 2. Didn’t say anything about stage. It’s frustrating the liability thing though isn’t it. I feel they are so pan faced and you really sometimes just wonder the worst anyway. I can’t remember if they said it it read it on here but lobular is slow growing? Again don’t know if they mentioned it.
its so confusing at times!
Hi again,
I do not want to contradict anything, that has been said. A lobular invasive can be any grade and stage - there is no usual… You should have details of your biopsy - have you had one? That should give an indication of stage, grade and receptors - they are all factors as to speed of growth, etc. Have you an assigned breast cancer nurse? You can talk to her - and she can tell you and advise.
Sue, yes I had 3 biopsies taken. I feel there has been a couple of contradictions in what I was told by Dr at breast clinic then what I was told by surgeon at hospital. Firstly Breast clinic Dr said I wouldn’t need herceptin (obv not her2+)and ly mri was booked for 12may and I would also talk with my surgeon.
Went to 12th May appt, chatting with surgeon then she talked about booking in MRI, I asked was I not having it today as that was what I was led to believe - oh no we are going to request it today. Also when I arrived at appt with surgeon, she started to tell me about biopsy results as if I hadn’t heard the result? Then later finishing off with bc nurse (she was lovely but not the one assigned as she was on holiday) she gave me the booklet and said I’ve marked off the sections that are relevant to you, and one of them was Herc2 ( I may have the abbreviations wrong as I don’t have it to hand but I know you know what I mean).
Surgeon also said my levels of oestrogen and progesterone were at the highest levels, I replied oh that’s bad isn’t it? She said no it’s good as means the cells are as close to normal cells as could be. All about confused as nurse also marked out eo+ and Pr+ as bits to read.
I’ve tried calling my nurse but just answering machine so will try 2m when off work. Going to ask these questions, will she be able to tell me or will I get hit with - “you’ll have to ask Dr… About this, just write down all your questions”?
Sorry just read back my text and some is a bit garbled, just trying to do it quickly on my phone but hope you get the jist!
Sue thanks once again.
The lady who delivered my biopsy results was just introduced as Dr…, that was at the breast clinic, like you, where I was referred after my routine mammogram (my very 1st one). Then everything was transferred over to the hospital where I was assigned a bc nurse and I met with my surgeon. I am assuming that will be my surgeon, I was certainly led to believe that, but it is one of the things I will clarify with my nurse who I will hopefully get a hold of today.
As for the MRI - I may be wrong but I feel there has been an error there, as the Dr at the breast clinic definitely said MRI appointment was for last Thursday (my husband was with me and he clarifies that) but hey ho, it’s past now and I guess I just have to wait for an appointment.
I do understand that it all changes or can change as they do each stage of testing and that final diagnosis is done after surgery, but I’d like to have a bit more clarification on what they know so far.
Surgeon had pencilled in surgery for beginning of June, no definite decision made as obviously would depend on MRI results and also depending on that, whether I’d hold off till after my holiday or just cancel holiday. I was told (by breast clinic) that MRI results can be at least a week, so as the end of May is next week, I can’t see surgery happening beginning of June now anyway!!
Sue hi again, I read your most recent comments after I had spoken to nurse.
So I am ER+ PR+ and HER2-. This nurse said I can’t see them allowing you to wait until after your holiday for surgery, so I told her that is different information than what I was told last Thursday, then she kind of backtracked and said that it will all be done and finished by the time you go on holiday. At this point I thought fine, if it’s just a lumpectomy I’ll have about 3 weeks before holiday so hopefully would be fine, but now I’m remembering they said at least a week for MRI results. So that would be taking me into mid June, my holiday is first two weeks in July.
Anyway she said my risk is very very small, as not even a palpable lump. I know this could all change after surgery.
MRI for Monday 30th May. I’m just going to wait and see result from that.
I felt the nurse was helpful but not helpful, I wouldn’t feel comfortable phoning her again until after MRI.
To be honest, it’s not that I definitely want to go on my holiday, if I have to cancel that’s fine, it’s the not having a clue until perhaps 2 weeks before!! That and the confusing information so far
Although my diagnosis was different I was diagnosed beginning of May last year, waited until 22 June for lumpectomy, had results on 8th July (grade one er8/pr8) went on hols on August 1st then didn’t have rads until end of October! This suited hospital as they were ‘overwhelmed’ with bc cases last year and the Rad Dept was so so busy. I was told all along that the wait wouldn’t have had an adverse effect. Incidentally a friend of mine went private and saw top Breadst Cancer Prof in Harley Street. She was operated on before Xmas and waited until April for her rads as he wanted her to have use of ‘top machine’ (whatever that is). She was a grade 2 idc. No lymph involvement. She holidayed in between too.