Hi All,
I was dx with a further pread for brain mets to brain- three leions spotted so far.
Just a quick query
Whope brain radio recommended.
Can anyone tell me?
Does it hurt
How tired do you get and how soon after each session?
How long after the end before you feel “normal”?
Any other things I should look out for and anything to prevent it?
Cheer
Kate
Hello Kate
I am really sorry to hear your news but I don’t know anything about brain mets I’m afraid. Hopefully someone will come along soon that does.
I just wanted to let you know that I am thinking of you
love CAroline
Hi Kate,
There’s been quite a lot of discussion in the past about whole brain radiotherapy. If you use the search facility at the top of the page this should bring you to the threads where this has been discussed. If you have any problems finding these just let us know and we’ll try to point you in the right direction.
Kind regards,
Jo, Facilitator
Hi Kate
I too am really sorry to hear your news and know nothing about brain mets, but as Caroline says, hopefully you will get some responses soon from others in the know.
Wish I could be more helpful, but sending you lots of love and gentle hugs.
Love
Dawn
xxx
Hi, I have had whole brain radiotherapy, one dose a day for 5 days. The actual procedure is painless, in fact you feel nothing. They make a mask for you first and you wear the mask for each treatment. by the end of my 5 sessions I was tired and the week after it really set in. I have never know tiredness like it. But like everything else it passes and you start to feel yourself again. Have a word with the radiotherapy unit, they are usually full of useful and helpful information. Good luck, dont forget to keep asking queastions and query anything you are not sure of. Listen to your body and rest and look after yourself
Good luck
Mills xx
Thanks for the repies folks - just dont really know what to expect.
I know I am not getting a mask and i will be having 5 x 5 sessions ihopefully starting next Monday and just wanted to llan my next few for getting home as i dont drive
Im expecting my hair to go again too so off to get some hats for the cold days.
Kate
Hi Kate,
I’m so sorry to hear about this. I so enjoyed meeting you in London - I can’t bear that this is happening to you. You sound incredibly calm but I think WBR sounds so scary. Hope you get great supportive staff to look after you and lots of family and friends to rally round and take care of you. Will think of you next week,
big hugs
Jacquie x
Hi EamesK, i have had and just finished whbr, as i had op for brain as had 1 tumour in the brain ! whbr is short for radio to the brain , i had 10 session and lost my hair on the last day ! this hurt more than whbr just felt tried ! so good luck. just put out another message if help or any question as i wish i knew more at the time. What have the signes been for youself ?
sophie
Hi Jackie, and Sophie - the hair thing bothers me most - as well as being too tired to get home without help or hospital transport.
I sould calm but panicking slightly inside. As long as it sorts my eyesight and balance probs and the steroid side effects I am sure I can cope with treatmrnt.
Jackie - I have a had wonderful year.
Oddyssey holiday, Week in Turkey in leui of honeymoon.
Got married in a lovely relaxed wedding without the fuss then this - its good not to know whats ahead or it would have spoiled it all for me.
The only indication was my sight getting worse over the summer and feeling a bit headachey for a week so I was glad to find out what was causing the problems and as I don;t need to be at work til new year doing as much as I can when I can and just resting the rest of the time.
Take care
Kate
I had 5 sessions of WBR for my 3 inoperable brain mets in February. I didn’t feel anything, and it was difficult to tell how much of my tiredness was caused by the WBR as I was so ill anyway. But after the WBR everything improved enormously, and I’m now even off the steroids.
Anything else you want to ask about?
Good luck with the treatment.
Love, Lynn
PS I went on an Odyssey holiday in September - it was great!
Hi Kate,
wat a bummer for you!!!
If there is anyting I can do to help…please let me know…I mean it.
If you get a lift in to town for the rads and want to stay around for anything…I can give you a lift home sometimes, maybe once a week or something? I’m sure there are others who will happily do the same. Please make the most of the chums you have that want to help.
Thinking of you lots,
Gillian
Wow Kate, congrats on your wedding! And so glad you’ve had a brilliant year. Those memories will keep you going. Do you need to plan something else to look forward to, after the treatment?
love Jacquie x
Hi Jacquie,
Never got round to hen night or girls weekend so I try and persuade folks to come down to london - be good to see you again and catch up.
Eother that or I’ll have to have belated NY party
Gillian,
Im ok at themoment just feels really odd but not sore Hospital have arranged transport but I’ll see what is easier. Thhanks for the offer though - very kind but I’m going see what woks best for me as Id rather get home and jut chill. Won’t know how I feel till after first few eeks.
Kate xx
Kate
Just wanted to say I am sorry you have been diagnosed with brain mets. I hope the rads aren’t too bad and you get through them OK.
CathyX
Thank Kathy I hope the rad arent too bad just want to get them tarted.
Kate