Hi Shoez, Thanks I’m fine, think I just had a bit of a wobble the other day on waking up. Obviously far too long a lie in bed that morning! The scars are healing well, especially my back. I’m due to see my surgeon in a few more weeks so 'Im starting my next list of questions for him.
Thanks EllisB for your PM, a great help, I’ve posted one back to you.
Its really good to know we’re not on our own using these forums and being able to give and receive so much support from others.
I’ve been kept busy this weekend with my family visiting and a young and playful niece and nephew to wear me out. Hope everyone else is having a good weekend!
BB x
How are we all doing? Well im pooped, a very busy weekend with my daughters birthday! Hope you all had a good one. Only till wednesday to wait and it will be my CT Scan, at last. Going to try and find out as well where I am on the surgery list. xxx
Hiya bigbird41, glad your feeling better love, your bound to have up and down days after all you’ve been through, keep your chin up lovey, x
Juls, so your daughter had a good birthday, bet it was hectic for you!
Wonder how Lisa is getting on?
I had a letter from the Hospital this morning, have to go for a pre-op assessment next Tuesday! i did have one in September last year, how naive am i thinking that one would be still be valid!! ha ha,
it stated on the letter a date for my op would follow in the near future!! which set my nerves off big time, take care girls, love Lynn XX
HI Lynn, so glad that your pre-op assessment has come through, lets just hope you dont have to wait too long for the op after! Im going to ring the hospital today and ask how long the waiting list is just to give me some idea. Going for ct scan today, I know I wont get the results today but am nervous all the same.
Hi Lisa, hope you are feeling well?
Glad too bigbird41 that you are feeling better, this journey is like a roller coaster, lots of ups and lots of downs…
Well I went to the doctors yesterday as this lumpy rash over mastectomy scar has not gone away, they said they would need to refer me to see the consultant urgently as couldnt rule out that the dreaded C had returned. Had Ct scan anyway yesterday and now have to go up to the hospital monday morning to get results! Im trying to stay as positive as I can but its not easy. Really dont know what to think. The surgeon didnt seem too concerned when she saw it a few weeks ago to discuss my op. xxx
Well im afraid its not great news. Went to see consultant yesterday and my ct scan showed up that the big C has spread to my liver and possibly lung! So much for the reconstruction now. Have got to see oncologist next week and have to go back on chemo as Im triple negative. Am numb at the moment and dont know what to do. Has anyone out there been in my situation. xxx
Hiya Juls, I am so sorry about your news love i really am, please stay positive, i know thats easier said than done, wait to see what the oncologist has to say next week, try going thru other parts of the forum there maybe some-one who has been in your situation, keep your chin up my love, XXXX
So sorry to hear your news - it is such a shock isn’t it! I know how you feel as I was diagnosed with bone mets at Christmas and to begin with you are just in a blind panic and think the very worst! There is lots of support on this site though - I would look at the other threads and see which you will find most useful. I have really benefited from reading posts and contacting other ladies in a similar situation - they share practical advice as well as emotional support.
Sending you lots of hugs
Chris
xxx
So sorry to read this juls There is a triple neg secondaries thread in the ‘living with secondary bc’ section + we are a very friendly + supportive bunch. I will bump it up 4u now. Between us we sadly have a wealth of experience relating to stage 4 treatments + would be happy to support + advise u in any way we can. Will be keeping everything crossed that a new chemo really hits the spot.
Take care
tina x
I’m sorry to read of your secondary diagnosis. You might find it useful to order a copy of the BCC secondary resources pack, it contains information about diagnosis and treatment options. If you would like to order a copy just use the link below:-
Also, if you need further support or just to talk things through please don’t hesitate to give the BCC helpline a call on 0808 800 6000. The lines are open Monday to Friday 9 to 5pm and Saturday 9 to 2pm.
Hi Juls silly question love, but how you feeling? thinking of you and always here if you want to chat, lets know what your Oncologist has to say, take care, XXX
hi all, was just posting a copy of another post of mine below so it’s still here but just wanted to say so sorry to hear your news Jules, will be thinking of you and let us know how you get on xxxxxx
I’m day 14 post op. struggling a bit with tummy but boobs are causing no pain. I had double recon and when in there ended up with a diep one side and tram other side so bit painful. Unfortunately I had a blood clot so ended up back in theatre 5 hours later, however, this is only a very small number of people this happens too. My boobs are totally different sizes but trying not to bother until swelling goes down. I found the coming of drugs and dizzyness when sitting up and the heat the worst, once some drains came out and had control of my own bed and shuffling to loo myself I felt lots better. My stay was only 6 days in hospital and Im staying with parents to help with some things where I cant bend etc. im back to hospital tomorrow, had a horrid reaction to dressings so covered in blisters and possible infection. However I would say that I think it is amazing what they do, the implant i had was over the centre and up neer my chin so to have two boobs that belong to me is amazing and Im totally in awe of what they do and the care you get.
I think I underestimated on restricted I would be and im impatient, and I am realising that toward the end of the day i need to take it easier more as i get tired and need wee nap. Lots of people say it takes about 4/5 weeks to start to feel more active so im looking forward to that.
Good luck all with op, it is worth it !!! Im hoping to go on holiday in 7 weeks so something to aim for, bit I struggle with is knowing how much I should be doing.
Gosh how long was your op having all of that done? Mine was 12hrs having a single mx/free tram flap. I am nearly 4wks post op and getting about so much more that at your stage 2wks ago when I was probably walking about 30 houses away and back (I’m no good guessing distances!). I can now load/unload dishwasher, do washing, cook dinner etc but not attempting vacumning, driving etc for another 2wks.
I don’t know what your nights are like as mine 2wks post op weren’t so good, I would sleep for 1 1/2hrs then wake up uncomfortable and end up getting up and having a cup of tea then sleeping for another 1 1/2hrs and I couldn’t seem to break this cycle even though I was tired. I now stay in bed all night although I still wake up briefly when I turn over.
Hiya Lisaf, lovely to hear from you, how are you feeling now? you getting about better each day? been thinking of you over last couple of weeks, poor you having to go back into theatre!! sounds like your getting there now love, all be worth it in a few months eh? and you’ve got your holiday to look forward to, I had a pre-op on Tuesday morning so hoping i wont have to wait much longer now for op!! I’m still buying something each week to throw in my “Hossy” bag!! carry on doing well Lisaf, lots of love Lynn XXXX
lemoncake, thanks so much for that, glad to see how far on you have come, hope i speed up like you, still shuffling but a bit more upright now. My op ended up being about 9 hours but there was two consultants and a registrar and I had cut a few hours out having second recon some time ago, just gutted about size difference but will wait until swelling goes down.
Lynn, hope your date comes through soon, must admit i struggled but it was more to do with the drugs lol!! so much better when home. I must admit I didnt use half of what was in my hossy bag i didnt have the energy and just wanted to get home lol! I must admit things change daily Im sitting her now feeling much better after a crap day. Defo worthing it in the long run xxx
Hi Lisaf, i can’t believe how much i have got in my bag already!! like you say, i probably wont use it all, like you, all i will want to do is to get home but you have to do as your told don’t you? when i had my mastectomy in 2004 once i got home i came on leaps and bounds, other half’s birthday today, so just chilling out now after a nice shower, been doing bits in the garden cutting back and painting keep saying to Chas “garden needs sorting cos i will be recuperating in the garden in the summer” ha ha, look after yourself Lisaf, love Lynn XX
XX
There is a triple neg secondaries thread in the ‘living with secondary bc’ section + we are a very friendly + supportive bunch. I will bump it up 4u now. Between us we sadly have a wealth of experience relating to stage 4 treatments + would be happy to support + advise u in any way we can. Will be keeping everything crossed that a new chemo really hits the spot.