Really long wait for Red Flag referral

Good morning @enia1703

I hope you don’t mind me hopping on to your post. Read that your triple positive so wanted to tell you about the HER2+ thread in case you hadn’t found it. Ours is a long treatment path so the other threads may tail of sooner as the surgery, chemo etc will be finished within a year. The thread has been going for 2 years. I found it to be a really helpful read as you get to follow the stories of those before you who have got through it. Lots of support, humour, wisdom and sage advice. Salbert, who started the remains active on it. One of many inspirational women who give up their time to support others

I’m exactly a year ahead of you. I was diagnosed in Nov 2024 and commenced chemo mid Jan 2024. Didn’t cold cap as was told it was pointless with Docitaxol. Hair was essentially gone by week 3. The chemo wasn’t kind at times but wasn’t as bad as I’d imagined. I lived a day at a time. No pressure on myself having to cancel plans if I felt rubbish. I joined the monthly chemo thread which was useful as it felt we were all in it together. Awake at silly o‘clock due to steroids and sharing toilet humour. I had surgery in June. Didn’t need radiotherapy as I’d had mastectomies as I had ‘it’ in both :woman_facepalming:t2:, plus no lymph node involvement and a pathological complete response to chemo. I’m still on targeted therapy which I’ll complete in February. Also on hormone blockers and bisphosphonate infusions. The appointments which were thick and fast like the waves in a stormy sea are now further apart, like gentle ripple on the shore and the days are being filled with other things. The year I was told would be spent tackling ‘it’ has passed and I can now start looking forward.

Best wishes x

Here’s the link:-

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