Hiya,
I too am triple neg and have read various things regarding this, but i get my positiveness from my sis and sis-in-law, my sister was dx aged 34 no node invlovement only had CMF chemo and is now 12 yrs down the line, sis-in-law also triple neg with 13 nodes involved is now 6yrs down the line, so these two wonderful women give me hope, just wanted to share this with you so you can see the positive side to it
Jane xxx
Jane
We like those stories about you sis and sis-in-law.Unfortunately us triple negs are a bit like rabbits staring at head lamps. That is so inspiring, especially with the 13 nodes involved. And the chemo is much better now.!!
I have heard that her2 pos was the worse way but brought back to our level with herceptin (told by con) Hormone negative cancer is 40% of BCs.25-30% her2 pos 10-15% tri neg. usually the trip neg is 50% 0f under 50 year olds which is 20% of all BCs
My con said her2 neg or trip neg was better than her2pos, but ner as good as hormone pos, because tamoxifen can increase your chances by a further 15%.
My onc said trip neg was most aggressive. So if they can’t agree , how are we to know?
Jules
Hi Jane
I am triple neg but havnt given it a second thought really, the more you worry the worse it gets, there is not much we can do about being in this situation and all the worrying in the world isnt going to change the outcome…
Love and hugs Pam
XXX
WELL SAID PAM…
Ali
x
My thoughts exactly Pam. I am HER 2 negative and was told by my BC nurse that if she had a choice that would be hers.
I did not even ask for my possible recurring percentage rate as what will be will be.
Hugs Marion
Hi
I agree with Pam
I have been given the treatment I require, maybe I haven’t got the back up of 5 years of drugs but somehow I am not worried because what will be will be. I am being told that the recurrence’s are treatable so I hold on to that at the moment.
Positive thoughts to you all.
Carol
Hi All
I too just found out the other day I was triple negative. It is something I read a lot about on here and was a bit worried about this. Spoke to my bc nurse and she said that because it has not been hormones or herceptic enzyme ‘feeding’ our tumours (ok they dont know why we have them), buthaving chemo, surgery, and radio is ‘throwing everything at it that they have’!!. In another way I am very very glad because I have read so many side effects of herceptic and tamoxifen etc that I was dreading if I had to take them as they seem to affect some peoples quality of lives so badly that they come off of them early!!
By the way I am 39, dx in July , have had 4 out of 6 chemo, will then have surgery then rads.
Best of health and good wishes to you all who have finished treatment and are still going through it.
Fiona
xx