Morning everyone
I was also diagnosed with bone and liver mets back in March and felt so terrified for weeks . My initial treatment was back in 2018 so all a bit of a shock.
It is good to read some of these replies to help keep me calm.
It feels like it has taken forever to get to this point but I am starting chemo next Tuesday 9/7 - 6 rounds of Docetaxol, Herceptin and Perjeta.
Plus Denusomab.
I was in a lot of pain at early diagnosis and it overlapped with finding out I had some osteoporosis in my hips. As a result of that I had a Zolendronic Acid infusion and that has had a dramatic effect on my pain and mobility.
After my oncologist appointment I felt much more hopeful about things and am working on my fitness - I have been too scared to do too much in case of breaking bones. I have also felt more able to come into the forum - I have been too worried about it all to look for information .
Thanks for all your comments again - have helped me a lot .
Iāve just been diagnosed with multiple liver Mets, bone Mets, lung Mets and blot clot on lung.
Had liver biopsy for receptor status.
At home waiting for oncology appointment in 8 days.
I am scared, sad and shell shocked.
Any words of comfort?
Feeling pretty hopeless right now.
Hi @hope44441
Just been reading through some posts on the forum, I havenāt been on here in a while. I noticed that you hadnāt had a reply & wondered how you are feeling at the moment, 2 months on from your post. Are you on a treatment plan yet? I really hope you are in a better place and wanted to wish you all the best and offer you some words of comfort.
I was diagnosed de novo SBC in bones & nodes in Dec 2012, aged 44, and the roller coaster ride began. Add in both liver & lung mets along the way & I wonāt bore you with the numerous changes in drugs (you name it, Iāve had it!) & switching receptor status twice - and I am still here. It has been really tough at times but manageable at others; this is largely down to the amazing support from family and friends and a good oncology team. I continued to work as a school administrator for 5 years before taking ill-health retirement in 2017. The last 7 years since retirement have been hard in terms of the drug regimes and a clinical trial but I made the right decision for me to stop working and āget on with livingā. Hang in there & I sincerely hope you can feel as well as possible for as long as possible.
Helen x
My local Big C runs a secondary cancer group meeting. Personally Iāve found these very useful.
Iām 9 months into my stage 4 diagnoses. A big shock at first especially as I reacted to the targeted drugs I was given ā¦so know Iām just on letrozole and zometa infusions.
Hope you are able to carry on with some normality in your life. X