Hi All,
Just to let you know that I do have Horners Syndrome caused but the lymph nodes in the neck pressing on the optic nerve.
(Thanks to Dawn and Jane I already new this).
Although my CT results showerd very little change there have been some big changes within my body, this being the first time that I have ever had a symptom from this disease and now I am in a lot of pain with it.
I also have a very dodgy shoulder which has been slowly evolving over the last 18 months. This has now come to a head as a hump between the bra strap area and neck.
This has been cause by disease in the chest and neck area, causing pressure and inflamation.
I am away on the 15th for a week hols with the family to Lanzarote (and I will be getting insurance from MIA).
When I get back I will be starting more chemo, I think Paxataxol and Avasin but that is dependant on Bupa.
I have a new bone met on the spine but my bone mets have never bothered me I only know about them from scans.
My liver is still clear and the lung area has been stable so for me its the regional area that is giving me the problems.
I am now going to need to get in contct with my McMillian nurse.
I also have to go back for an MRI of my brain as the CT scan showed something that needs to be checked out…
I did have a very good chat to my GP this week so none of this came as much of a shock and in someways there is a relief that I know know the cause of some of my should problems although Jane and Dawn had helped me with that through their experience.
Tess
Hi Tess
Really sorry to hear you’re having a bad time at the moment - hope the MRI shows nothing to worry about and that you can get onto a chemo regime which gets to work on things for you.
Love Lesley xx
Hi Tess,
I have been following your thread re Horners Syndrome and just wanted you to know I am sorry it has been confirmed. I am wishing you all the best for you forthcoming scans. Fingers crossed they show up nothing sinister.
It is cruel the way this disease invades our mobility, the unpredictability of it all it makes me so .ucking cross.
Have a good holiday, enjoy every moment.
Sending you love.
Love Debsxxx
Hi Tess
Sorry to hear that things aren’t going well for you and that you will be back on the chemo. Hope they can manage to get the pain under control.
Also hope that you manage to have a fantastic holiday in Lanzarote.
Love Kay x
Hi Tess
Sorry to hear of your problems, I am currently having Taxol and Avastin paid for by BUPA so hopefully you won’t have a problem. Hope you enjoy your break in Lanzarote, I got away at Easter to Italy and it was wonderful just to be away and not have to think cancer and treatments. Am due to go to Corsica in July by which time I should have finished chemo so really looking forward to that
Love Kathryn
Hi Tess
Well welcome to the Horners club…
I know what you mean about realising for the first time that you have symptoms from the cancer as opposed to just the treatment. It is a huge shock and depressing.
Jane x
Hi Tess, I am sorry to read you have this symptom of the disease that adds another reminder to what you are dealing with each day. For those of us with neck node involvement or any kind of visible tumour presence it is hard enough, I find my hand straying to my supraclavicular node so many times a day, maybe I am desperately hoping it will have dissapeared and this is all a terrible dream, as if eh.
My thoughts are with you right now as you deal with this manifistation of the disease, and I hope they can help with the control of the sympmtoms. I can empathise with the shoulder, I have had pain creeping into my life from mine, I asked if this it’s because of the tumours but until the next scan at the end of these 6 cycles, who knows.
Best wishes and have a fantastic time in Lanzarote
Nikki