I have posted this on behalf of new user jools:-
Hello,i`m julia ,i am 39 with 4 young kids.I had a pain in my left breast and thought i could feel a lump but wasnt sure as they are very lumpy anyway so i was surprised when my gp fast-tracked me as i though she would just reassure me and send me away.at the clinic,the dr was initially very reassuring,very tiny lump felt which was probable normal and a ultrasound didnt pick any thing up.i felt a bit of a fruad when they sent me for a mammogram.this picked up a shadow which the radiologist said was sinister and then found inflamed lyphm nodes .he biopsied them all and the results are back tomorrow.the gp is giving me a special appointment to recieve the results as we are off to italy for a 2 week family holiday,we have the appt at 10.10 and then have to go straight to the airport.i am so scared and have had such an array of emotions.mainly scared if it is positive what will happen to the kids.just want some advice really .and i have given up googling !too scary
Hi Julia,
Sorry, you have to be here. It’s really worrying waiting for results. You will feel better when you know what is going to happen.
If you need treatment they will be able to arrange that while you are away - nothing would happen in the first 2/3 weeks anyway.
So once you have your results, go off and enjoy your holiday with the kids as best you can whatever the results, keep busy and try not to think about things too much. Hopefully you will have good news tomorrow. I don’t suppose you can let us know if you are going straight to the hospital.
Your children will be fine. If you need treatment you will still be there for them, even if you need some help for appointments etc. Just tell them on a need to know basis.
Don’t google yet - you will find out things not relevant to you. Even if the news is not what you want, there are many types and grades of tumour. When you do know results and you want to google then stick to sites like this one and MacMillan.
Have a lovely holiday, find a place to shelve any worrying thoughts to deal with on your return.
Hugs. Stella xx
Great advice Stella, best of luck Jools.
Echoed xxx enjoy your holiday I had bc 14 years ago was treated and still here, I was 34, Now 48 2 kids ( 9&7) I now have bc in the other side doing treatment and looking forward to my holiday later this year. There’s light at the end of the tunnel, even the very dark ones xxxxxxxxxxxxx J
Good luck for your results, Jools, and I hope you can still have a lovely holiday, whatever they tell you.
Fingers crossed for you.
CM
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ditto to what the rest of the ladies said. hope ur results are good…go and have a fab holiday with ur family…im gonna try and get away when i know results after the 3rd june for a week with my hubby and little boy…take care xx
Hiya, i’m getting my results tomorrow and i’m so scared,I’m 32 and had a MX and SNB 2 weeks ago although i’m getting over my op well ive got this terrible worry hanging over me,ive 2 young children 2&6 and I cant think about anything else i’m just praying everything will be ok.Been told i will need chemo but will only get my full treatment plan tomorrow. I know this prob sounds mad but i’m more scared about the chemo than i was about my op which i dont know why i suppose its the unknown and also the hairloss!!, i’m worried about my childrens reaction to me during this treatment as they are only so young,i’m so worried im not going to see them grow up,i feel so guilty they have to go through this.I manage to hold it together for them during the day,but as soon as they are in bed i start with the tears n sleepless nights,its so awful,i’m so SAD!!!
If anyone has any positive thoughts for me it would be much appreciated xxxxxxx
Julia - thinking of you and hoping all will be OK - and if you do need treatment there are lots of us here who can be there for you in anyway you need xxx
Locket - big big (((hugs))) to you. I understand some of what you are feeling - I have a little girl who turned 1 on saturday and a 2.5 year old. I have been on chemo for 3 mths and it is doable even with young children about. I find life very tiring looking after the kids when on chemo - but they give me more than they take by far. I think I would be an emotional mess without the children - they give me a reason to get up every single day. As for reaction to hair loss - mine just were not bothered. My daughter laughs at my wig and my son says silly toddler things but has never been bothered or upset by it at all. I am having my surgery next week. I have lots of love and support for you xxxxx
Locket positive thoughts are on their way2u,iv just finished6chemo it wasnt as bad as the fear i had about havin it…I made myself ill with worry it wasnt anything like i expected,i was tired etc but wasnt a heap on the floor like id expected.Xsarahx
hi all. there is a book on here called mummys lump and its free to order and they post it to you. its for young children its fab…in a way they will understand…i got mine the other day xx
I’m ancient compared to you and my kids are in senior school rather than nursery and junior, but just wanted to say hello and wish you well. Sadly there are lots of people in the same position as you, so I’m sure you’ll get lots of help and relevant advice.
Hello,thank you so much for your comments,it was grade 3 idc and the nodes were ok.i felt better when i knew which sounds strange but i had spent the days in between with that horrible going to be sick feeling you get before you go into your exams.we did have a good holiday!im having a lumpectomy next week then chemo prob and rx .the surgeon is confident he can sort me but i cant shake the feeling that things are not going to be ok yet,i think mainly because ive just started to get sciatica in my left leg so will go and get that checked out tomorrow.the worst was telling my friends and family.you`ve just got used to it and then you have to tell someone and it stirs it all up again.not worried about treatment,bring it on,can cope with it all as long it gets rid of IT.this is a great site,although it does make me so sad to hear all the other people worse off.
Hiya great news about your nodes,you sound so positive about starting your treatment,wish I was, im terrified more so about the chemo than my operation!
Take care xx
I have my follow up appt tomorrow and don’t know what to do with myself today!! had wle and snb 2 weeks ago and tomorrow they will tell me full results and treatment plan. I recoverd physically quite quickly post op but the last 2 weeks have dragged so much. Those around me have been really caring but have obviously gone back to normal with their everyday lives and i’m feeling really alone and scared at the moment. I feel even hubby is getting fed up with me and just wants everything the way it was but we are only at the beginning of the ‘journey’. Just needed to vent!
Jane
hi, I am a couple of weeks behind you, going in for WLE and SNB next week. I will know when i wake up wether they needed to take more nodes, but then will not know for 2 weeks if thats it or if there is more to come.
For me at the moment its the worry about the op,I am just completely rubbish at any sort of proceedure, but i know as soon as that is over the next bit is waiting for the results.
My husband is being very supportive, but it has been several weeks since we started this,and so I have had a couple of meltdowns when he did not read my mind and realise that i might have said i was fine, but he should have know I needed him to do, say, not do, not say something.
All the very best for tomorrow. All I know about this proceedure is that it seems to stumble on, one step at a time. Each step has its own problems but everyone seems to cope with them in their own way.
I cant believe it, got a call from the hospital at 6.30pm to tell me that my appt for tomorrow has been cancelled until next monday morning!
What are they trying to do to me? the stress is going to finish me off more then any cancer will! The family tried to reassure me by saying that if the news was really bad they wouldn’t have postponed but I just feel really deflated.
Was planning to go back to work next week but don’t think I can face it without knowing what’s ahead of me.I feel in complete turmoil.
OAL - no need to worry about the procedure (I know that’s easier said then done)but really it is fine.
jane
when i went for my results in the afternoon clinic there was some poor woman who had sat through the whole morning only to be told that the clinic had run over and she could not be seen after all. she was almost hysterical. she had waited two weeks for the appointment, sat there since 1O oclock and was being told at 1.15 she would have to wait another week—unbelievable.
oh janeruth what a mess. The waiting for results is the worst part so I feel for you. Hope you can try not to get too stressed out this week…easier said than done, I know.
Janeruth, I know exactly how you feel, I had similar. I got a call an hour or two before my scheduled appointment saying the results weren’t ready as the path lab had been very busy, lots of apologies. Long story short, I was knocked back three times, with promises of yes, they’d give me the results even if it was just by phone. Suffice to say, I was completely beside myself by the time I did eventually get something.
Did they say what exactly the holdup was? Is it just that they haven’t been typed up yet? You might be able to get SOME of the results by phone, though they’re not terribly keen to give all the details, particularly if there is something in there they need to explain.
The main concern for me was whether they had clear margins or not. This is a straight yes/no, you might be able to get that answer out of them.
For you if you’ve had SNB you obviously want to know whether the nodes were clear. You MIGHT be able to persuade them to tell you the answer, but don’t be surprised if they just refuse, for fear of giving you the wrong idea of what your treatment’s likely to be because of all the other stuff they have to look into.
Give your BCN a ring, and keep pestering to find out when they can give you at least a little something so you’re not left climbing the walls.
In the meantime I’ll be happy to lend you my ladder to climb the walls, it’s easier on the fingernails which you have probably already bitten down to your elbows…
It’s probably no consolation at all to you, but despite my own results not being quite as nice as I would have liked, a few months down the line I’m just busy getting on with life the world and everything including chemo which I hadn’t expected at the stage you’re at. I can only offer you massive cyber-hugs and loads of virtual tea and very real sympathy, the waiting for results and the disappointment and distress when they don’t give them at the planned time is just so horrible.
CM
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Oh no - more waiting - you have all my sympathy. I had to wait nearly 3 weeks for CT scan results and the nurse just said “that fits in with the timing of research study and your appts” - I very strongly told them (with tears in the eyes) about the stress this sort of timing causes me when “they” know I want to know. It really is not the way to treat us when we feel so vulnerable and I think we need to assertively let “them” know. I remember waiting hours and hours for first chemo and getting in a real state - told them so and went for a walk and they had to mobile me; don’t think we should have to put on a stiff upper lip all the time. You will get as much support as we can give you on this forum - hope that helps a bit
Fran
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