@fancyhooves sorry forgot to add have you tried speaking to the breast care nurses as they can offer some helpful advise or the nurses at cancer now. I have felt like I’ve gone round in circles for quite a few months on different things so tried to speak to different people about experiences to make an informed decision x
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Right, thought I’d better give you an update. Bloods and ecg fine so restarted ribo yesterday and we’re calling it cycle 2.
I had a talk with my boss and this sorted my brain out, weirdly. She basically said, if I’m worried about work or sick days then to stop being a !### and do what I have to. She said ‘I plan to be here for the next 15 - 20 years and I don’t ever want you not to be’. She said if I have to mask up or work at home or whatever I need then thats what I do. Something about that statement made me get back to the fighter mindset and think - okay, it’s rough at times, but I don’t want a recurrence, so I throw everything I can at it. A weird place to get my power back but it clicked something. I’ll be 60 in 20 years. I don’t want to not be here for all the stuff that will happen during that time, for my daughter. So okay, the person I am may be different now, I may get tired or feel down at times, but by God I won’t be a wimp about it if there’s an option to avoid cancer returning then just take it.
I also managed to get the nurse to agree the 3 month zoladex yesterday and the idea that I don’t have to go back to my GP (hopefully) until June was a weight off appointment wise. Wooowoooo. Xx
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Hi, I’m jumping on here as not sure where to post to see if anyone can help. I am now post lumpectomy and radiotherapy (oncotype 23 and 65 so no chemo). 1 positive lymph node so being offered ribociclib (started letrozole 5 weeks ago - so far side effects minimal). Spoke to oncologist yesterday and she said I was borderline for ribociclib- it only helps 1 in 20 women and they don’t know which ones. She said to try it but can stop if bad side effects. Now I’m wondering if it is a good idea as doing pretty well on letrozole. She called ribociclib a chemotherapy drug too which has really started me worrying about hair thinning/loss. Has anyone had this? Sorry to be so vain but that and picking up infections etc is making me unsure. Thanks x
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Hi @pearl2
That’s ok, I started the post for this very reason to get as many answers and experiences as possible, I am in the middle waiting to start (however my oncologists keeps leaving) it’s difficult enough without having to be messed about and keep changing and cancelling appointments! But anyway there are very mixed reviews on this one, I spoke with someone last week who was taking it for about 8 months and they had no side effects what so ever, I too am scared about infection, I try not to read the side effects as I’ve learned through chemo that everyone has there own and you may experience different things, I haven’t heard anything about hair loss but would be interesting to know as my hair is growing back quite thick now, I think that Letrozole can give you hair thinning (I’m sure I read??) but mine has been fine and I’ve been taking it for 4 months.
I did speak to the chemo nurse the other day and she said that everyone is different but you have to see how you go …worth a try and see what side effects you have.
Not sure if that helps x
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Thanks, that helps a lot actually. I guess I have decided to try it and see - my oncologist actually said I could stop if I had bad side effects as my benefit was ‘borderline’. I have been very lucky so far with Letrozole and I just wondered whether I should stick with that but anyway I will do all I can to avoid a recurrence but don’t think I will continue with both if I get massive hair loss. One thing she said that was reassuring- they have not had anyone with heart issues showing on the ECG yet 
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Anyone working on ribo? Oh thank goodness this is on here! I’m really struggling with ribo/anastrazole/leuproreline. (Mostly ribo) (stage 3 C.. . 20 lymph nodes). Determined to keep going. Can’t really go for walks/do Joe wicks exercises anymore. Brain/body says go back to bed. I’ve delayed work, but I think I’m just putting off the inevitable. Is there anyone working on ribociclib? I’m taking regular protein. Sleep for an hour around 2pm. I get out to guitar classes and knitters class; pick my nephew up from school once a week! Desperate to get back to some normality! How are you girls coping? 
Thank you this is very helpful