Kazza, when i couldnt get into a LGFG workshop until a couple of months on they told me to ring Kingston hospital unfortunately both were on my chemo days, so Kingston suggested i rang Parkside (wimble don) and i got in really quickly there, so might be worth a try!!
Its really good and the goodie bag is fab so enjoy whenever you do it!
love debs xxxx
Hi All,
Good luck jbug tomorrow. I am in for chemo tomorrow at the Marsden with Kazza so we are quite a team tomorrow!
Kazza - I have pm’d you re tom with my mobile number.
Good luck to one and all.
Lynn x
hi all
Lynn - have sent you a PM and hope we get to meet tomorrow.
Jbug - good luck with your results.
Debs - thanks for info, I think they recommended Kingston but I couldn’t face the travel but Wimbledon is easier so may see if I can get in for January - only a month’s difference but my make up skills are not that good and good do with all the advice I can get.
Kazza
Kazza
I’m there on the 29th too, having last FEC. I’ll pm you my mobile
Julia xx
Met Mr Ebbs my consultant for the 1st time today, he seems really nice although it was not under the best circumstances of course. Seems like a fab hospital and feel confident about having my treatment there.
Although they have said that I may be shipped off to Chelsea for the mastectomy as I have a history of heart probs and they get nervous about this at Sutton - lol.
I’m just lucky that I only live about 10 mins away from Marsden, saves trekking all the way up town. xx
jbug
I just posted you on another thread, didn’t realise you were a fellow Marsdenite!! Mr Ebbs was my surgeon and he was great. I was lucky to get away with just a lumpectomy, though had WLE as well. Let us know when you are there for chemo. You never know, we may meet up. I live in Wallington so probably not far from you.
Julia xx
Hi Jbug,
Saw your news on another thread - really sorry to hear, but like the others don’t make any decisions too quickly. I know I only had 1 lump not three but it was largish at 4.5cms, spread to one node and grade 3. I was all for having a mastectomy as I just felt that would be the best way to get rid of it. They persuaded me to have a WLE - which I am now pleased about. Is it x3 lumps in the same breast? If so you might possibly need a mastectomy, but don’t rush into making a decision to having a bilateral mastectomy…first give yourself some time to come to terms with it. I don’t think I could think rationally for the first 8 days after my diagnosis.
Very best of luck with whatever you decide.
Lynn x
I’m in Sutton, think we should all meet up for a coffee somewhere!!!
love Debs xxxx
Debs
Thats a great idea! We all must be quite close to each other and at least we are easy to spot if hairless!!
Julia xx
I’m going to be at Marsden alot over the next couple of weeks! Genetic tests next Tuesday, MRI next Thursday then my appt with Mr Ebbs the following Tuesday.
Hiya Lynn/Julia, Mr Ebbs didn’t even give the WLE as a option, he said mastectomy straight away as I have 3 lumps in the left breast in different areas. All dependant on the MRI and whether it has spread to the rght breast he has suggested we think about the other breast too.
I live in Epsom so not too far from Marsden!
Hi jbug
Well Mr Ebbs knows what he’s talking about so must be best option. All the tests and stuff I found the hardest but better now on chemo as at least have some idea what is happening.
Julia xx
I feel a bit happier being treated at Marsden as it appears to be one of the best places around. I like Mr Ebbs too, although its not all that great meeting him for the 1st time and him breaking that sort of news to me!
Does anyone know what it is they do for genetic testing? I have my appt on Monday at 2pm and don’t really know what to expect test wise.
xx
I went to the Marsden for what I thought was genetic testing but it turned out to be more an in-depth interview. I had enquired about testing because my sister died of BC and then I developed it so I was concerned for my daughters and niece. I was asked to write up about ages of my parents, grandparents, aunts, uncles, siblings etc. when they died, what they died from and concluded that even though my sister and I had both developed BC, because no other family member had suffered from any cancers, that they would not take it any further. They did say that they would recommend my daughters and niece have annual check-ups and mammograms when they were over forty years old. Hope this helps?
AlexG
Oh I see, I think I have already done something like this though as I had to fill out a form with details of all family members and type of cancer etc. No one else in my family on either side has had BC though.
My letter from Mr Ebbs to my GP says “I have made an urgent referral to Dr Naz Rahman, to try and make sure there is no genetic basis to her developing Multifocal cancer.”
Maybe they will just be taking some bloods and testing them from there.
xxxxx
I arrived and sat with some guy who just basically drew my family tree and said that as there is no history it would be highly unlikely that I would carry the breast cancer genes. But he took some bloods to send off for research and I will find out in around 6 months!!
I just assumed that Mr ebbs would want me to be tested so that I can make a decision asap on whether to have the other breast removed the same time as the left one.
Paula
It sounds like yet another reason to sit around for ages!
Julia xx
I’m at Sutton next Thursday all day for my 1st session of chemo. Anyone else up there next week?
Paula x
Hi Paula
Just finished my chemo (phew) so wont see u I’m afraid. What chemo you having? Is it FEC?
Julia xx
Hiya,
Yep FEC. Was going to try the cold cap, but don’t think I will bother and put myself through more annoyance by having a frozen head.
Are you doing rads next or is it onto the hormone tabs?
Paula x
I’ll miss you by a day - I’m going to The Marsden on Wednesday for a bone scan. Going to be ‘radioactive’ for twenty-four hours!
Good luck with Chemo.
AlexG