Good news and bad news scan results today. Good news is that Arimidex and Zoladex seem to be keeping liver tumours and my other small ones at bay they havn’t increased in size.
Bad news is that my right lung(it was my left last time) has filled with fluid and I have to have it drained and stuck together. I’m not looking forward to this as it really hurt last time.
Onc wanted me to have it next week but I have put it off until the week after has my hubby is having an op next week.
So it looks like half term I will be in hospital great.
At least for the time being I don’t have to have any more Chemo which I was dreading
Awwwww Caro (((((HUGE HUGS)))))
I dont know what to say but yes, good and bad news for you.
So, big question is, who will be looking after who??? Hubby-wise, I mean
xxxxxxxxxxx
Hi Caroline
So sorry to hear about your right lung, I think you and I are the only one’s posting with a pleural effusion. Having it drained and the pleuodisis was really painful, see if you can have a general anaesthetic this time as at least I was asleep!
I see my oncologist tomorrow to talk about the scans I had done last week, I still feel breathless. I do hope it goes well for you, will be thinking of you
Kathryn
Hi Caroline - I think we met at the Guildford event - I pleased your scans show good news, that must be a relief. Not such good news about your lung but it sounds like you are in control of that.
Take care - Geraldine
Hi Caroline
Sorry to hear about your lung but so pleased to hear the scan results are good. Better that way around I would have thought (so speaks of course someone who has never had to go through the pain of having the lung drained!). Hope you can get it done under a general anaesthetic as Kathryn suggests, and just sleep through the procedure.
Hope your scan results are good as well Kathryn - will think of you tomorrow.
Kay xx
Well results not good.Pleuodsis partially successful but a nodule has appeared on the left lung and a lesion on my liver has increased and there is also involvement in my bones so not a great day. Considering treatment options and wavering between capcetibine and taxotere. I am going to go down the capcetibine road for now as I think it may be more doable with hols etc
Kathry
Oh Kathryn
So sorry to hear that your results are not good - it’s always really hard to take.
As you may know, I started on capecitebine last week because my scan showed my liver tumours had all progressed. So far tolerating it very well but clearly very early days. Others gave me quite a lot of info though and it does seem very “doable”, particularly being in tablet form.
Take care
Kay xx
Kathryn - so sorry to hear your news. I think it is a wise decision to try capecetabine first and then taxotere when there are children and holidays to consider. I had capecetabine from march - oct last year and had a good time in the holidays whereas when I had taxotere I was so ill.
To all on capcetabine - Just let the onc know if you are getting are side effects from the capecetabine asap because if you stop immediatley then you can restart sooner. The oncs seem to have a habit of trying you on max dose per weight and not many people can cope with that. I had to stop after 8 days on the first cycle was and was devastated but had to stop because of foot/hand syndrome and then dose was reduced by 75% and my tumours all shrank on the lower dose and I felt well but did get tired towards the speetember time.
Kay - so sorry to hear that you are needing more chemo - hope you get on OK
Caroline - sorry to hear your news about your lung. I can’t believe they tried pleurodisis without an anaesthetic - you poor thing. Hope your hubby is better than mine at being ill and with half term - what a nightmare.
Gerry - glad you are feeling more that you are coping. It is a lot to come to terms with in such a quick time.
Hope i haven’t missed someone out!! Think I’ve met most of you apart from sixpen!!!
Are we going to meet again - when our health allows - now I’ve managed to hijack and change the complete tone of the thread?? sorry
So sorry we all seem to have a bad time at present aren’t we? Just came back from Look Good Feel Better session which was lovely but met a lady who I’d not seen for a year and she was well then. We were both diagnosed at same time (April 05) and now she is very poorly which was upsetting as she was so well until a couple of weeks ago and has been told not to expect to live for long and didn’t sound as if she was dealt with very sympathetically at the time.
What a ***** disease.
Love Kate
Hi Kathryn
I’m really sorry to hear that your result are not good. Unfortunately I don’t know anything about the carce… one but I know Taxotere is the one that I will have next if my liver mets get any bigger. I’ve been given a fact sheet on it. I wasn’t given an option of anything else. Looks like I will be going in Tuesday to have my pleuradesis no offer of general anaesthetic though. Looks like it is going to be done the same as last time.
It doesn’t look like I will have my hubbys hand to hold either I think I will have to take my sister.
I hope that we all start to feel better soon it would be nice to meet up again.
Its just so rubbish this disease
Caroline
Thank you all, it’s really encouraging to hear from those in the same boat as finding it all rather difficult at the moment. , Kay glad to hear you are finding Capecitibine manageable, I will start when I get back from half term. Hope you keep well.
Caroline, I can’t believe you have to go through that again without a general, hope it does give you some relief however. My oncologist said that NICE guidelines say Taxotere first but I am covered under private health and I feel that if I have to feel grotty with steroids etc then I would rather it wasn’t when I had a cycling holiday in France booked with my teenagers , I don’t know how many more years they will want to come with us anyway!
Kate, thank you for your thoughts I hope you are doing well and had a good weekend away
Best Wishes to all
Kathryn