Hi All girls !!! ladies,
ad brain tumour in less 7 weeks ago
Just had scan results last week ! showed up more progressive in bones in the spine (does say where ) and not in liver or ay other organs. which i find good news !
specialist has said there was some treatment was due to get still waiting how long do i wait for ?
sophie
Hi Sophie,
I’m sorry to hear of your latest diagnosis and thought some of BCC’s publications may be helpful to you. I have put the link to the general leaflet on secondary breast cancer along with the links for leaflets on secondary brain cancer and secondary bone cancer.
breastcancercare.org.uk/content.php?page_id=667
breastcancercare.org.uk/content.php?page_id=707
breastcancercare.org.uk/content.php?page_id=708
If you feel you need to talk to someone in confidence about your diagnosis then please feel free to phone the helpline, 0808 800 6000. You may also find ‘Live Chat’ for those with a secondary diagnosis helpful and supportive.
Hope this helps. Kind regards,
Jo, Facilitator.
Hi Sophie
sorry to hear your news, dont wait ring the hos and ask to speak to the secretary tell her you have a few questions and could the onc ring you back.
I had a panic this week really fuzzy head went to onc dept they did a scan so relieved all was clear my onc knows me well and I would never waste their time so I wasnt being a prima donna just needed reasurance.
Good luck.
Love Debsxxx
hi sophie
sorry to hear your news, just wondered what bisphosphonate you are on? i am on ibandronate, after secondaries in lung and spine diagnosed in nov 07, my spine is healing very well (i had one radiotherapy zap to it) but rest is due to ibandronate. I read this week an article from an american trial saying that ibandronate is very good at stopping the spread of bone secondaries and that it was better than others on the market. (will see if i can find the article and post the address) so i wonder out of curiosity what one you are on and if ibandronate would be any better for you? Rachel 
x
Hi Sophie
Have followed your previous threads about you brain tumour. Presume that your scans showed good news there which is great. Maybe you’ve not been having any additional treatment for your bone mets during this time and now’s the time to change or start something to help them? As Debs says don’t wait for them to call you, chase them up!
Take care and hope all goes well and you’re feeling OK at the moment.
Nicky x
Hi Sophie, like Zippy I’m on Ibandronate…I think I prefer the daily dose from the Ibandronate tablets rather than the infusions I used to have…my last bone scan showed healing…my hip where I had lesions looks better now than it did in 2003…x