So as the day looms closer, although how we got to this day is beyond me, it is in fact tomorrow at 16:40.
We go to discus the secondary and its potential spread to spine. Found via CT scan on 30th December left neck, recorrunce, branching down T1, underarm, top of lung, and trachea, although that bit was a bit of a blur. Seemed to remember no liver mets. What I do remember was inoperable!!
So (again) sorry, there will be so many so’s and sorry’s I just know it!
I’m just plain SCARED! What if there is NO treatment plan! What if I am worst case senerio? I have sat trying to go through every senerio that my unlimited SBC knowledge will allow me to go or research to! Also (nearly a so) my appt is very late so I suppose another appt will be scheduled to discus further if an option is available, or am I just rambling now?
thanks for reading
Tina
Dear Tina
Try not to worry I know it is hard not to but your once will have a treatment plan for you. As far as tumours being inoperable there are many ladies on here like myself who have not had surgery because to operate can cause more trouble. I now have 8 different mets as well as skin mets. I try not to worry too much about it because I know the onc’s can give me different treatments to keep me going for longer. At the moment I am feeling quite well.
I know how you feel but you will find a lot of long lifers on here I have spent 18 years since first dx for primary and 3 years with secondary primary.
I do hope you can settle down and send you lots of love and best wishes for tomorrow xxx
Hi iv been secondary now for over two years.im still scared frightened and worried all the time.but you will get go and carry on as we all do.just not the same… Iv been to oncologist today on 2nd dose of docetaxol.my blood markers show improvement
.this will help me to have next injection on Monday…then a scan …it does feel like the hospital runs my life…i too have a granddaughter due on 25th Feb.these are the things to keep us strong .and give us purpose.x
Hi Tina so sorry that you are so worried and scared. There will be a treatment plan for you. There are quite a lot of drugs out there. My mets are inoperable and I have had them for 3.5 years so far. When you first find out it takes over but it becomes less so in time and when you start treatment. Look into all your options not just what the onc says as well. I get the impression they seem to stick to the chemo route but there are other procedures. I will be researching some of them in the coming weeks and will post on here if I find anything. Be easy on yourself. We are all in this together. Love and best wishes xx