Scared - Vascular invasion

Hope it works! Am rubbish at technology! X

I feel like seeing vascular invasion is disasterous. I have researched all night and 5 - 10 year survival rates are slashed significantly with VI. Im absolutely devastated as I was starting to feel more positive but this has destroyed all that.

Hi again and sending you a big hug.

You are in the scariest unknown part of this whole journey but it will get easier and the LVI sounds very scary but as Dr Liz says in the video, your doctors don’t use it to work out your prognosis because it does not have a big impact on whether or not the cancer will return. Treatments today are incredible and tailored to what is best for you.

I have been there up all night googling and panicking and you can find all sorts - most of which isn’t true or is totally outdated.

When do you find out your onco score? I will be thinking of you.

Don’t forget how amazing treatment is and also how personalised it all is. You will be well looked after xxxx

Sending love :heart:

Mine just says vascular invasion present, not LVI, which I believe Iv is even worse? How many years on are you from diagnosis and are you doing well? X

Hi am only 8 months on from everything so it is early days but I am genuinely really well and coping with side effects of all the treatments (letrozole, zoladex and Ribociclib). I know how frightening it all is but it does get easier.

There are loads of women on here who are way further on than me from their diagnosis and living life to the full, it’s just hard to believe when you are in the early days trying to take all the information in.

Like you I spent loads of time online but eventually was able to hone in on really helpful informative websites like the Breast Cancer Now one and Dr Liz’s YouTube channel and her podcast.

Soon after my diagnosis, My Mum’s friend told me she had been where I was 30 years ago and I nearly fell off my chair. I didn’t even know she had had cancer. She has the best happy life. And nowadays treatments are even better.

Loads of amazing women have trodden this path before us and they are thriving and so will we.

If you can, try and use one hour a day to google reputable websites to answer your questions and write a list for your team for your next appointment.Then, the rest of the time order yourself something lovely off Vinted or read a really trashy book to escape stuff for a bit. I find walking really helps me and then a big bubble bath if I can get in without being bombarded by my three kids!

You are doing amazingly and it will get better xxxx

Big hugs :smiling_face_with_three_hearts: and remember we are all in this together

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Two years later I am still here and living well. I was probably de novo metastatic due to cells travelling to my liver from the vascular invasion. Immunotherapy (I have PD-L1 positive tnbc) put me into a so far sustained remission.

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Great points on Googling here @tryingnottogoogle. We’re all going to do it because we want the information and so it mostly comes down to doing it better.

Sorry you managed to notice this on a Friday night @helsz . Being able to access our medical stuff at all hours really is a blessing and curse! Even more worrying when it’s something that’s not yet been discussed with your team.

I’m sure it’s already the top of your to-do list for Monday but do give your breast care nurse a call to raise your concerns and in the meantime the Macmillan helpline is open every day from 8am-8pm if you need someone to talk to now. I’ve spoken to the nurses there in a mad spiral a couple of times and they were really great.

Hey hope you are doing ok?

I am just over 2 years now since my BC diagnosis in June 2024!

I was also in a mad panic when i read LVI Present as part of my pathology report! It was never mentioned to me at the time as you have probably read further up this thread.

I ended up having a lumpectomy with bi-lateral breast reduction, 6 rounds of chemo (EC & Docetaxel) & 9 sessions of radiotherapy! I am now on tamoxifen for possibly 10 years! The reason I had chemo was because my oncotype score came back as 25 & I was only 42 at the time & still hadn’t reached menopause!

All I could do was trust that the chemo would hopefully wipe out any stray cancer cells!

I’m due to have my 2 year check up & mammogram this month but I’ve had to re-arrange as I’m away on holiday! Really hope you get the rest of your treatment plan very soon & start to feel more at ease!

Take care x