Hi
I have just been diagnosed with DCIS and am due to have my op next Wed. Day before I am having radioactive injection then blue dye. I am normally a logical, calm person but I am totallly out of my comfort zone on this as it is something I have never had to deal with before. I swing between crying, fear and numerous illogical thoughts. Husband is a great support but can only help so far as I feel I am shutting him out.
Can anyone offer any words of encouragement/understanding as I feel quite alone in this?
So sorry you find yourself here but you are not alone. You will find a lot of info and support here which has helped me so much already.
It is a very scary time and i remember the shock and disbelief and it can be overwhelming but it will get easier especially when you have a plan of treatment after your op.
I was dx 16th august, had WLE (is this what you are having - lumpectomy) i had the blue dye SNB too and it wasnt painful at all. A small scrape with the injection and anaesthetic injection.
When recovering from the op i was more uncomfortable than painful. I wish you all the best for next week, post as much as you want/need here and we will help you along the way x
Hi J,
Gosh I really know how you are feeling, I was diagnosed very recently my op - lumpectomy and lymph - is on Thursday, I was like a total crazy lady that first week, all the ladies on here kept saying you will come to terms with it and things will settle down, I didn’t really believe it but it is true. Sure the lovely ladies on here will give you loads of brilliant advice but mine is simple go with your feelings do what ever you want because nothing feels normal really just don’t push yourself to put on a brave face I felt I was living my life in a bubble and nothing was real just couldn’t believe it. Here I am today feeling a lot more in control. Have a look at what the ladies wrote on my post 22nd Sept diagnosed today Someone wrote “you will be in profound shock” that really stuck in my mind and yes I was but like me take small steps and you will start to be able to feel a little more normal
hope this helps take care x
Hi J
I am sorry you have joined the club that no one wants to be in but I can tell you that you will get so much support and advice from everyone . I am an oldie on here now as I was diagnosed last November and had WLE and SNB done in December. I then had chemo and rads and I can’t believe where the time has gone, I have just been signed off from oncology department and I am back at work on a phased return. This forum was a saviour to me during my journey. I didn’t really post but just coming on and reading posts and about the antics that some of the naughty ladies get up to keeps you sane. I hope everything goes well for you next week please come back and tell us how you get on, it’s a hard journey but as a lot of people will tell you it is do- able and it does really help to talk to people in the same situation as yourself.
Take care
Lizz xx
Hello J
So sorry you have a diagnosis that means you are using the forums. You will find everybody so supportive. They know so well how you feel. Have you thought about ringing the Helpline. I use them whenever I have a blip or need information. They have been fantastic. You can download info from the website as you have nodoubt seen.
Hope all goes well.
Cackles
Thanks all to have responded so quickly - its amazing how a few words of encouragement have calmed me down and made me feel not quite as alone as I did before.
I hope you girls don’t mind me posting - I just am nervous.
Hi J,
When I got my diagnosis the consultant Oncologist said to me ’ remember you are exactly the same person now as the person you were before you knew’ which I found helpful.
I had a lumpectomy and blue dye etc and am now 2/3 through chemo.
It really is do-able. Not always pleasant but you may well amaze yourself with how you get through it.
Be nice to yourself lady, so important at the moment. Hope you find this forum as helpful and supportive as I have!
Hi J so sorry that you have to be here. I can totally understand how you feel as can others on this site. After my diagnosis in April I was exactly the same as you crying and all over the place. However as you get through each step and know your treatment plan things will get easier.
I would encourage you to phone the helpline they are excellent and it is good to talk.
Take each day at a time. Be kind to yourself.
Take care
KatyD
I can only echo the “Welcome to the Club No-one Wants to Join”. I joined 21 Sept and everything people say is true - you are in shock and you’ll yoyo back and forth between total disbelief and total despair for a while. After a couple of weeks of that I decided I to try and ignore it and carry on life as normally as possible. That might sound nuts but I refuse to let it take over my life, and so far I’ve managed to do that reasonably well.
I had a WLE and SNB yesterday and feel fine. The pressure dressing is uncomfortable and sleeping is a bit difficult but it’s not really painful. The 2 weeks between diagnosis and surgery were really long and I just wanted to get on with it and get it OUT. Be prepared for the blue dye to make you look grey, but it wears off after a day, and on the plus side you get to pee blue!
Whatever you feel, we’ve all been there or will be there at some point. Of course you’re scared, we all are. Take it one step at a time. Hang in there, we’re all rooting for you.
I can only say welcome also but just keep posting and all the lovely ladies on here will help you all they can.
Just take it one day at a time and look after yourself. Being all over the place is normal and you are not alone here everyone understands how you feel.
I have only been dx a few weeks and having my op the day after yours, Mx.
I have been scared stiff for weeks but have found a lot of comfort on here at all hours of the day and night.
Someone wrote “you will be in profound shock” that really stuck in my mind and yes I was but like me take small steps and you will start to be able to feel a little more normal