Was dx with secondary breast cancer brain mets last June after only 5 sessions of chemo…Was thrown completely off my feet…Im on Phenytoin for fits…had 3 big ones when they finally found out I had brain Mets…since then I have been having what ONC called auras…just feel like Im going to fit …I have tremors in left hand…weakness in arm and leg.its so frightening …lasts about 2 mins…then I feel crap…I wouldn’t shower unless someone around…fearing fit in shower…I don’t go out on my own same reason…I can’t drive now…so I feel completely stranded…always been so independent!! My husband has just retired…He is very good, but to him I am well!!!..There is always the constant fear of a fit or something worse…in front of my grandchildren …or others.
Not really knowing what and how these Mets will progress and now they have told me I have nodules in clavicle and 2 small ones on spine…ONC says he isn’t worried just small cancer!!! SMALL.Not small to me just another fight and more drugs to help me,Terrified all the time, told by family ‘‘Im so brave’’ but I hide it…
Sorry going on a bit here…I have recently had a feeling of my eyes feeling week, pricking eyeball…lids and socket slightly puffy… and tingling in my face at times…Feels like Im going down with bad headcold.
…IM feeling angry at lots noise around me…dont read anymore can’t concentrate…go supermarket with husband…but couldn’t concentrate on the shelves…it makes me feel like my head will explode…
I know we all have different symptoms…but can any of you ladies relate to mine…Sorry garbled… brain Mets? Meds? or old age:))) Thankyou…