Secondary breast cancer(gone into the bone)

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Just wanted to ask how one goes through each day. i am married but do not have emotional support, someone who will give a hug and say it will be okay stay strong… i have had cancer in the breast 3 times now its in the spine…somedays i push it from my mind, because if i cry, especially at home and my husband is here, he doesnt want to know.  sometimes when i see my oncoclogist, i keep asking her are you sure i have cancer, she is direct, she says yes… i wonder if there any groups, round the sutton surrey area, who meet up, for support a laugh and a coffee… even wimbledon i dont mind…  do anyone take sleeping tablets have been on it for a year its called zoplicone, is it okay to carry on . thank you 

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Hi Savi,

 

I am sorry that you feel you aren’t getting any support from your husband. If he is like my husband he is trying to bury his head in the sand. I do get support from  but he admits that he doesn’t want to think about IT! He always says that I will be around for years and refuses to think otherwise,I think he also FORGETS about it but doesn’t mean to. Perhaps your husband is similar.  

Some days I can be very down but I try to stay busy and I have some very good friends and my daughter is very supportive. She does fully understand the situation but she encourages me to be positive and make the most of my life. Although I have mets to both lungs (Small) and mets to my spine, I am quite well and continue to swim, walk my dogs shop etc. Keeping busy is the answer for me. I retired this year and am fully enjoying my retirement!

You will get a lot of support on this forum and there should be somewhere near you where you can meet others in the same position.

Take care and keep positive. There are loads of treatments available.

Sheila. x

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Hi savi

I’m sorry to read you’re having a pretty tough time at the moment. As well as the support you receive here you might find it helpful to have a look at the secondary BC information page, it has lots of details on different types of support available.  The link below will take you directly to the page:-

breastcancercare.org.uk/secondaries?utm_source=forum&utm_medium=promo_box&utm_campaign=secondary_breast_cancer_services

Also if you need any additional support do give the BCC helpline a call on 0808 800 6000.  Here you can talk through your concerns with someone who will offer you emotional support as well as practical infromation.  The lines are open Monday to Friday 9 to 5pm and Saturday 10 to 2pm.

Best wishes Sam, BCC Facilitator

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Hi Savi
I’ve just gone through a crisis with my secondary cancer. My husband has been great but got really stressed out with balancing work & hospital. I’m weak but a pretty independent type. I think it’s all about balance. Hubby comes to all clinic appointments but I generally go for treatment, scans etc on my own. People on the ward talk to you, the team at St Barts are great & I take iPad with my audiobooks.
I have needed taking to the hospital over the last couple of weeks for whole brain radiotherapy but a friend showed what a great guy he is. I’ve learnt to ask for help which was hard!
Hope this helps & good luck
Ingrid

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Hi just wanted to ask anyone, when you are asking a hospital to refer you to a nearer hospital how long does it take…i am at st georges in tooting, but asked to go to the royal marsden, have been waiting its been a couple of weeks just wondered how long does it take…i had had enough going on the bus to tooting waiting on the bus, for nearly 45m , when the royal marsden is about 20min from where i live…thank you