Hi, im new to this and just thought i mght be able to get some help/advice off people who have been here before.
My mum was diagnosed with secondary breast cancer in her sternum 12 months ago, she has it in her lymph glands also. Recently she has been diagnosed with a tumour in her brain of 2cm in size.
I dont know much else other than the fact that she will undergo radiotherapy, now i know the cancer is noy curable but was wondering if it is treatable.
Thanks in advance for any replies, just feel scared n lost at the moment
Have you called our helpline 0808 800 6000? The phones are operated by qualified breast cancer nurses or trained helplners and would be able to answer your questions directly.
There are lots of ladies on here going through the same thing but I am not sure whether any of them are around at the moment. Just sending you cyber hugs and bumping this up so that others who have been in your position will see the message and can offer support x
Bumping again, as the forum looks like it’s been pretty busy today. There are several regular posters on here who have secondaries and they’ll be able to let you know about how treatable their secondaries have been.
There are also quite a few family members who post on here to get support, so although I hate to have a reason to, welcome to the BCC forums.
Hi Weds
Sorry to hear about your Mum’s secondary spread to the brain. I can’t help you with my experience (I have bone mets) but there is a thread on the secondaries part of the forum specifically about brain mets. It would be worth looking through that as there are several ladies having treatment currently and also maybe posting a question on there - if you’ve not seen it already.
Wishing you and your Mum the best
Nicky
ive just been diagnosed with several brain mets, so following a similar journey.
i see my onc tomorr mornin so will know more whats happenin but suspect wbr is the option as gamma knife is only for one or up to 3 tumours i think? Have you looked into Gamma Knife for your mum?
My trouble is i started taxotere for liver spread on 3rd feb, and collapsed at home last thurs cos i was neutropenic at 0.5, so fainted and passd out so my husband had to call an ambulance out, all pretty scary.
so they did a brain scan as a precaution, and found the mets. All a bit scary and sudden and out of the blue, we had no idea, i had been living life as normal before then! and just thought we were fightin the liver mets, but now the brain ones are more serious. I have had secondary breast cancer since 2003, and had secondaries in my sternum, lungs, liver, spine and now brain.
its ironic i have no symptoms, does your mum? so i wouldn have been any wiser without the scan. anyway im trying to remain positive for my familys sake, and especially my husband who is my life.
i feel at peace with myself, and with what ive achieved and im so glad and lucky that ive managed 8 years with all these tumours! but i am realistic in the respect this just may get me. I hope not as i love life, and i will do my utmost to extend as much of my life as possible and i hope your mum will do the same, which no doubt she will.
You take care, love to your mum, and you and your family xxx
ive just been diagnosed with several brain mets, so following a similar journey.
i see my onc tomorr mornin so will know more whats happenin but suspect wbr is the option as gamma knife is only for one or up to 3 tumours i think? Have you looked into Gamma Knife for your mum?
My trouble is i started taxotere for liver spread on 3rd feb, and collapsed at home last thurs cos i was neutropenic at 0.5, so fainted and passd out so my husband had to call an ambulance out, all pretty scary.
so they did a brain scan as a precaution, and found the mets. All a bit scary and sudden and out of the blue, we had no idea, i had been living life as normal before then! and just thought we were fightin the liver mets, but now the brain ones are more serious. I have had secondary breast cancer since 2003, and had secondaries in my sternum, lungs, liver, spine and now brain.
its ironic i have no symptoms, does your mum? so i wouldn have been any wiser without the scan. anyway im trying to remain positive for my familys sake, and especially my husband who is my life.
i feel at peace with myself, and with what ive achieved and im so glad and lucky that ive managed 8 years with all these tumours! but i am realistic in the respect this just may get me. I hope not as i love life, and i will do my utmost to extend as much of my life as possible and i hope your mum will do the same, which no doubt she will.
You take care, love to your mum, and you and your family xxx
Sorry to hear about your Mum’s recent brain mets diagnosis. It must be a very frightening time for you all. Try not to lose hope, as there are now many stories of people living with brain mets for much longer periods of time, some even being removed with surgery, or cyberknife/gamma knife and going into NED in the brain. There is an american website that is dedicated to brainmets and they have helpful information and inspirational stories that may be of some help:-
The same applies to you Zippy, I am SO sorry to hear of this latest totally CRAP news! I don’t have brain mets mine are bones and liver! but can understand how frightening it must be. I have been there lots of times in my nightmares! as never having had a scan of my head since secondary diagnosis ever twinge and pain terrifies me. I do wonder how many of us have undiagnosed brain mets, as many hospitals only scan an area if symptoms are mentioned. It must have been a real shock to have been diagnosed in this way. Hopefully with them not being symptomatic they are not causing any trouble and can be successfully removed…fingers crossed.
Thanks or all the comments, Mum was just feeling dizzy n light headed and the gp put it down too her medication she was taking. i took the decision to call out a gp on thursday of last week as she was due to go on holiday on friday, the gp said her iron was low and sent her to the hospital for a blood transfusion where they decided to do a ct scan which is when the mets were found.
have just found out that she has another ct scan this week so fingers crossed we will have more news then.
will try to keep u informed so you can offer me some advice should i need it.
Much love to all of you that are suffering and your family and freinds.