Secondary Private Group

Living with secondary breast cancer Supporting each other and sharing experiences
21

I am glad its not just me. I think ive been switched off the games could you confirm lizzy. If you can i would like to stay with the group. X

22

Could I join please

23

I have asked to join this group I was diagnosed with metastasised breast cancer in May this year. This is my first time having cancer and my treatment so far has been 3 weekly docetaxel which I have had 5 out of 8. I’m feeling lonely and fearful. Hopefully joining here will help.

24

Hi Allie,
I post quite a bit on the Secondary Private Group. I was treated with doxetaxel 3 weekly for 6 cycles. Found it hard going but it worked well. You can read what I’ve written on the Secondary Private Group when you join under Taxotere help. I’m now on paclitaxel which seems to be going well and I’ve written a few places on the main site about that too. You can also personal message me but it takes a few weeks usually for you to be OKed for that
Best wishes
Waffles xxx

25

Hello allie
Welcome to the forum …please join us on living with secontrary bc …bone mets …it’s a busy thread but always someone there to help you …we have a lot of everyday banter there as well.
Hope u can join us soon on private forum too.
Hugs xx

26

Hello, my name is Celia. I have had secondary breast cancer since 2014. I was taking hormonal treatment such as Tamoxifen and Letroxol which gave me psychiatric problems. I stopped taking those and am waiting to start capcitamin. I have been very slow to start this as my confidence in the oncologists has been affected but now that the cancer has spread to my lung, liver, intestinal and spine, I feel more positive about the chemotherapy and have read positive comments on this site. I would like to join this group.

27

Hi I am new to this so please bear with me. I just want to chat. I have metastatic cancer in both lungs, meds are keeping it at bay but the bone pain is awfull. I am on Letrozole does anyone else have this problem?

28

Hello lovely ladies . I have been following this site and chats for year now and found it very helpful, got me through some very difficult times , thank you . I was diagnosed with secondary bc October last year , 10 years after my primary diagnosis , almost to the day ! I have secondaries in my pelvic none and also large tumour on my right lung which was a big surprise as I didn’t have any simproms . I had chemotherapy, radiotherapy to my pelvis and now on maintenance treatment every 3 weeks .
I am not sure how it works but can I join the group ? Please? X

29

Thank you for very warm welcome ! I am 46 year old mother of two girls , 20 and 15 .Must admit diognosis of secondary BC came as surprise , although of course fear of cancer returning never leaves you… I was extremely busy having fantastic life after few years of unfortunate events, feeling mentally and physically best I had in years ! So when I start having pain in my pelvic bone cancer was at the bottom of my list . So glad I found this site where you , beautiful people, share you pain and hope ,happiness and saddens.
At the moment I am having Herceptin , perjeta and denusunab every 3 weeks and also letrazole tablets daily. Seems to be working according to my recent scan , tumour is not growing and bone met is stable . So I am hoping it will work for as long as possible.Feeling ok between treatments just really painful joints , I keep forgetting I can’t move as fast as used to !
Xxxx

30

Hi. I have secondary breast cancer. I am not accustomed to forums and can’t seem to get on to anything. You keep send me texts about the Tuesday forums so I am trying now but not getting anywhere.

31

I was diagnosed about a year ago, by the time they had done the tests and a biopsy. I feel well but am on Capecitabine which has its own side effects. Also Denosumable.

32

Hi I’ve joined the group but forgot password and have chemo on Tuesday so struggle to join till tnite and really struggling emotionally so do I need to ask to join tnite and join in with chats on other secondary bits then try to chat next week on the live chat as I’m conscious of the time too x

33

Me too as this is my first time tnite x

34

God that’s inspiring hope for me yet then x

35

I’m going on Monday to see if 2 nodules in my Lung plus they saw my adrenal gland was fuzzy.are malignant.
I never see anyone mention the Adrenal gland. I have had major depression for 2 years so it’s like a double whammy. I’m so depressed and don’t see an end as my life will now be scans. Anyone got anything I can cling on to??

36

Hello Clarence

I see you have posted on another thread now and please join us on bone mets which is a active thread.
Anyway like you I had never heard of adrenal glands and haven’t seen much posting here either. .I have bony mets and was surprised when oncologist said after my last scan. .they were responding well to lettozone! ! I had of course to Google as didn’t have a clue even where they were …I don’t think it’s that common amongst the ladies here …they sit above the kidneys so maybe explains why I wee so much at night !!
Anyway I try not to fret too much about them and take a day at a time .
Hugs xx

37

I’m still waiting for a secondary confirmation. It’s like the secret service. Meanwhile I was examined on 24Jan not by my usual surgeon and told to come back in 6 months. Thurs an appointment from my surgeon arrived for the 26 February. Is there something wrong? Every day is another surprise just when you feel a bit more settled.

38

Glad to hear you found going to the Glasgow group helpful. I live in Glasgow and would love to go but I am a bit shy. I’m okay once I’m there and it’s nice to know that they are a nice bunch. Will try for next month x

39

Hi all, Im from way down under in NZ, and have just this last week been diagnosed with Metastatic Breast Cancer in my Sternum.  It is Stage 4, and I cannot have any Chemo or Radiation as its right over the top of where I had Radaiton 20 yrs ago with my first case of BC.

They have put me on LETROZOLE , so now awaiting the side effects, if Im too get them.

Is there anyone else out there with something similar to me?

 

40

Hi, I was diagnosed with secondary breast cancer last November. I am also on Letrozole and do get bone pain but I am also on Denosumab and Palbociclib which makes me very tired but the doctor told me I would get bone pain from the Letrozone. I was on Tamoxifen for 7 years first and my cancer only returned because I wasn’t swiched over to Letrozole. Good luck you may not get the side effects. Another side effect I noticed was my hair going very thin anyone with ideas to stop this happening.