next week and am very worried about what they will tell me. I had two tumours in my breast and it was two types of cancer. Three months after having a mastectomy they found I had another primary cancer - in my stomach this time. As far as I know there has been no history of breast cancer in my family. The surgeon at hospital said I could have a gene making me prone to cancer. Feel very alone as I haven’t got a partner so when I wake up in the night worrying there is nobody there to comfort me. Feel like cancelling the appointment but know that is stupid.
Hi fluffy,
I’m really sorry you feel so alone and scared. Please do go for the appt. I found my genetics appt very informal and unhurried, the genetics counsellor was lovely and gave me plenty of time to ask any questions. They do offer a counselling service if you want it, I chose not to but they left the ‘door open’ should I ever change my mind. Do post again and let me know how you get on. I’ll be thinking of you.
Best wishes xxx
Hi Fluffy,
i have brca1 gene, found out in august, in a way it makes it easier, I have had 3 primary cancers and have just turned 40. They do have a lot of time to explain things and can support you as well. I’m sorry you dont have anyone to cuddle, I know that awful 3 am awake feeling and nothing seems to make sense… its the darkest hour… but there are a lot of us on here to listen and help you. Every mad thought or feeling you have, someone on here will be in the same boat… even writing stuff on here sometimes eases that awful feeling of being along.
Hope that helps… xx
Dear Fluffy
I completely understand where you are coming from. I am single and do not have another half to cuddle up to in the night - wish I did. I hate the night times - they make me nervous but I am better than I was at be the beginning when I found the lump and for quite a while after that. I moved back with my parents so I am not on my own in the house and that was the best thing for me. It’s a very lonely time for everyone going through this but I believe I feel it more as am single so know exactly how you feel.
I am also having genetic testing and am waiting for the results so am quite nervous about that. I actually take a very small dose of amitriptylene which helps me sleep and takes the edge off the anxiety - it really works. I’ve never been one for sleeping pills or medication as such but now is the time if ever.
Please make sure you go for your appointment - as scary as it is, it’s best to know certain things than not to know as then you can make an informed decision.
very best wishes
RebzAmy xx