Hello, Thankyou all for your replies on my last post. Your all amazing. My legs are still bad. My partner Ian is amazing and will often tell me to use aids when were out and about, today he went and grabbed me a wheel chair to push me around Ikea. Used a mobility scooter around asda the other day aswell. Im slowly getting better at not focusing on the idea that people are staring and judging me aha. I havent heard anything to do with the notes the nurse left for my oncologist so hopefully they are just thinking its all to do with treatment side effects.
I had my Radiotherapy planning appointment today finally. Dr says no radio on the lymph nodes under my arm as they saw no evidence of spread there, but on the first mri they did see an inflamed node at the back of my breast under the bone. They have to idea what caused it but it did go away with chemo, they just can’t say if it was cancer or not and because of where it is surgery wasn’t an option (I thought when they told me this initially it was the node under my arm and not here) so the plan is 15 rounds of radio plus 4 rounds booster. They will blast my left breast up to the lymph nodes in my collar bone/neck and possibly further right to get to the nodes at the back. But that is to be confirmed in a weeks time once she has spoken to her team. They want to make sure its the right thing to do for me as there’s increased risk to my heart and lungs if they do. Planning ct in about 2 weeks and start about 2 weeks after that. She also suggested i ring my bcn and have a chat. Had a little cry getting annoyed at my body 
Love the idea of the WhatsApp @story1 my number is 07809573060 
I hope all goes well on your planning ct tomorrow. That sounds amazing and what a lovely place to do it in too. Do you have to give them an answer soon ?
@dizzy3 sorry to hear about another round of chemo, but glad for the reason. Fingers crossed all goes well with it and the side effects aren’t any worse than what you had previously. Glad you had some lovely time spent with family over the last couple of weeks.
@bellbert glad your healing well from the radio and glad your legs are you the mend. Yeah I got a big purple mark that lasted weeks after my first phesgo, now I get a small circle but only lasts a couple of days instead. Your right, when I read anything about any of you being worried of having other checks or finds my tummy sinks. My legs aren’t any better. Still painful, still slow.
@buggeringon hope all goes smoothly with your application. Aha yeah kinda get sick of answering the same questions everyday from the customers, I know they mean well tho. I mentioned the joint pain to the dr today and she said that’s not really a side effect that goes with herceptin and thinks it may be from menopause instead. Or from previous treatment. But she’s not worried about it. Said it should get better with time and to be kinder to myself. Its not going to be an overnight thing.
@emsd2025 oh a cafe, how was that growing up ? I had my first job at 15 in a small 3 table cafe aha happy to hear your not feeling too bad since finishing your radio. How many did you have ? Happy to hear your feeling more positive on things now and glad the meeting went well.
@cathie2 your doing good with your walking, glad your healing well and gaining more movement in your arms now. Hope your appointment today went ok. And thankyou, yeah my mum seems to think I’m less grey than I was, post chemo aha which is a surprise.
Managed to make a small batch of biscuit earrings for the chemo unit I went to. Took them today after my appointment. Mostly clip in earrings and a few pierced ones. Hopeing people enjoy wearing them.
Love to you all xxxxx
