I stopped all supplements while on chemo as I was told my liver was working hard enough and would struggle with extra things to process. However, I wear SPF every day and was feeling really low so pushed to check my Vitamin D is was extremely low and I was given ampules of very high dose for 6 months from my oncology team. It didn’t significantly make me feel less fatigued but I did feel a bit better. So please push them to check.
Take care all. This is such a supportive thread.
Hi all @anim4l I live in London now but I lived in leam for second and final years - I loved it! I love Christmas light trails too!
Today wasn’t too bad so far - another one bites the dust! How are you doing @cathie2?
@emsd2025 - I lived in london (Islington) for 20 years , I only moved back to Leamington 10 years ago to raise my daughter here around family - she loves London too though, we visit a lot and she’s very keen we move to Islington as we go there often . We will move once she’s finished school (in 8 years), having this diagnosis and going through this treatment makes you realise you need to live now and enjoy now. I’m so fortunate to have moved when ky daughter was a baby as she’s so bonded to my 2 sisters who moved here to be close to her and they are caring for her which is helping me so much.
However there are so many things I’ve booked in for in central London that I’ve had to cancel because in immunocompromised - I’m meant to be at the pet shop boys new musical on Saturday at Wilton Hall - booked months ago and was meeting a friend and making a day of it but judging by last week on day 8 I couldn’t leave my bed so it’s not happening…
It’s that feeling of life passing me by which is tough - my sister told me a friend’s experience with breast cancer -her oncologist said - give us a year of your life and we will give you back your life - that’s helped me as my treatments will take a good year…
Hi
Thank you all for the best wishes.
Yesterday went well thanks. Much quicker, no significant delays which really helped and we got to leave in daylight which was a bonus. Again I got right through to the very last flush and started to feel nausea, and just had a really tiny amount of sick. It’s weird as this did not happen on the first session when I also had the pembrro.
They said to take one of the ‘metroclopramide’ tablets beforehand – does anyone else take this before chemo?
I asked about neuropathy. They (Christie) only do the ice packs, they do not do the compression. It was not something the nurse was familiar with.
@anim4l hope the insomnia is improving. I read somewhere eating kiwis can help with insomnia. I’m not sure it helped me on insomnia nights but I like kiwis so I don’t need too much of an excuse to eat one.
I like what the oncologist told your friend. In the treatment year I guess we need to do what we feel comfortable with and enjoy the things we can. I said at the start of this I am not putting my life on hold for a year but I will need to make some adjustments. I had to cancel a girls cycling trip to Amsterdam last weekend. Planned for months. It fell on bloods and chemo days. I use the term ‘cycling’ loosely. A bike is involved as is coffee and cake stops, food, wine and a good yearly catch up together! But I will try to do other stuff in its place.
Like @mrsb6 I hope you are having a lovely time in Wales, what a lovely way to spend the days before your next treatment. Hopefully you are having better weather than me!
@story1 hope bloods day was a nice day with your son. It’s nice if you can make it into something. Wow Japan what an adventure. I have older kids (4 between the ages 25 – 32). They all wanted to come home but I told them they need to live their lives as that is what will get me through this – but they have send lots of pics and videos – that’s the deal! They are still popping home at various times, I hope your son has an amazing time in Japan.
Thanks for the chat about Vitamin D. I have osteoporosis caused by previous cancer treatment. I take a supplement every day, I am going to ask about this
How are you feeling @emsd2025. Glad yesterday went OK for you and hope you have a good day today.
We are three down!!
Good luck for anyone on treatment today and sending hugs to all xx
Totally get it @anim4l it’s rubbish, but yes that’s what I’m hoping for too - will be at least a year for me. Love Islington, I lived there when I first moved down and worked in the Angel Sainsbury’s at weekends to top up my paralegal salary. Angel is great, I love it! We’re in New Eltham now, which is lovely and green, almost doesn’t feel like London!
Hi animal4l have they mentioned having a port fitted if the picc line isn’t working. I have a port and it seems to be quire reliable so far.