Bloody hell Kim @cridders im so sorry. I reckon I’ve got that to come, tomorrow is day 3 and I usually hit it Thursday/friday. Hope tomorrow is easier and your bloods stabilise, when do you get them checked again? Did you have any filgrastim?
Enjoy your beans on toast! I’ve lost my appetite xx
Feel better soon @cridders
@buggeringon @story1 @emsd2025 thanks ladies. Feel I little brighter this morning so just gonna have another day on the sofa to keep trying to recover.
Had bloods done as part of the checks yesterday and they are low across the board but stable. If nothing improves by Friday then going to go back in for a convo about transfusion and or fluids to bolster me a bit.
Started filgrastim on day 5 (Tuesday) for 5 days so hoping that kicks in today to boost. I’ve started doing the shots before bed to sleep through the worst of the hip aches and so far that seems to help.
Fingers crossed for everyone switching to EC that they get a smoother ride - it was really worrying on Monday but at least now I know I can better prepare for next cycle.
Xxx
Sounds like you might have turned a corner xx everything crossed for you xxx
My son Freddie passed his ski instructor level 1 exams, huge relief he’s so chuffed, at least someone’s getting pissed tonight xxx
@story1 Hope you are doing OK on the new treatment and that the side effects are tolerable. My last weekly is next Monday and then start the following Monday 22 on the three weekly. Congrats on your son passing his test, tell him to have a drink for me too 
My rash has eased now. Exactly how it was last week, within 24 hours all but gone. I think it is the paclitaxel and not the pembro. Will see what happens next week.
@cridders so sorry to hear about your rough ride but so glad things seem as though they are easing for you now and hope your bloods improve! As you say you can better prepare for the next one now you have some insight.
I think someone mentioned on here we don’t need to be concerned about neuropathy on the EC combo is that correct? But cold cap may be less successful with EC I believe, will have the joy of that to look forward to.
Hope you both improve as the week goes on. Sending you hugs 
@buggeringon hope you are doing OK and your week is going well after your treatment. Glad you were feeling more positive.
@emsd2025 Hope your Mum is doing OK. How are you after treatment. Hope all went OK for you. xx
Good morning all, sorry I have been absent, doing ok at the moment, had Paclitaxel number 4 on Tuesday, so that is 3 in a row - quite good for me! 
Great news Rachel @story1 about Freddie passing his ski instructor exam, well done to him. My son is a tennis coach and it is quite an achievement getting through all these exams. I have been keeping up with news, with a quick look here and there and I really sympathise with Kim @cridders and @buggeringon , with all your recent problems. Have they talked about reducing your dose Kim @cridders ? I was dropped to 75% after ending up in A & E after the first EC and stayed on 75% for the next 2 and it did help. I have a lovely spotty face @cathie2 as well, since starting Paclitaxel - I rather like wearing a face mask nowadays, it covers up the spots! @annabananna , good luck with all your treatment, @anim4l hope everything starts to go a bit smoother for you, you certainly must need it to after everything. @emsd2025 hope you keep going strong as well……..we are all getting there. I will be halfway through Pacllitaxel by Christmas, if no more breaks in treatment, I think the end will seem in sight, once the halfway mark comes.
Hope you all have a good week this week. Jane xx
I’m so sorry to hear about all the symptoms and issues lots of you are enduring - you’ve got this girls.
I’m now feeling lucky I can’t have EC due to family history & personal heart monitoring! I was originally told I’d also have Pembrolizumab but that’s also been discounted and I can’t say I’m sorry when I was told the possible side effects!
I’ve been really lucky, on Phesgo, Docetaxel & Carboplatin, and haven’t really had any major issues apart from headaches during cycle 1. The last few weeks, since cycle 4, have also been good - even with the lack of cheese! But I have a big dose of “can’t be arsed” - I’ve got no inclination to do anything. I am getting out for a dog walk twice a day and the occasion potter to the shops but my main activity is being in bed or on the sofa, watching tv and/or sleeping.
I have a heart MRI tomorrow to check there are no issues after 4 cycles. I have my 5th cycle next Wednesday and my final in the New Year. Then the wait to find out what surgery is planned for me, hopefully in February.
My focus at the moment is it’s only 4 more weeks until cycle 6, followed by the removal of my PICC line! I’m so looking forward to having an unencumbered bath, no itchy dressings and being able to give my arm a good scratch!
How is everyone doing, thanks @cathie2 @bellbert I’m good. Mum’s doing well thanks, should be moved to a ward today. Last pacli next week @cathie2!!! Bring it on!
Just finishing up my 3rd weekly paclitacel, feeling a bit tired and queasy but ok.
My daughter breaks up from school for Christmas today - it’s been the first time I’ve ever not collected her but my mum is taking her to pizza express for lunch so she’ll be happy.
I’ve been struggling a lot with tiredness since my infection - only managing a couple of hours activity a day and not really well enough to exercise Hope everyone is doing well x
Hi everyone, today I feel very weak and I’ve spent most of day on sofa but I’ve managed to feed myself and stay hydrated, good friend came round for a natter it’s nice to have company. Slept a lot but don’t feel poorly just drained. @anim4l i couldn’t even contemplate exercise! Glad your daughter’s going to get a pizza treat! Take it easy xxx @cathie2 last paclitaxel next week! Bring it on! Great news about rash too! I heard the same that neuropathy is pac related not EC. I had a bit of tingling towards end of pac but it’s gone now x thanks for your kind words for Freddie, we’re so proud of him and @bellbert its absolutely not easy putting yourself out there to do these things x @emsd2025 great news about your mum xxx @dizzy3 yeah the can’t be arsed-itis is strong! Especially when everybody is getting so excited about Christmas. My timings are good for it- my birthday will be 16 days after EC so I should be good x ages ago I booked a night out for 12 of us going to Giggling Squid in Cambridge followed by Hans Zimmer by candlelight! What was I thinking??? However it’s next Friday so I’ll be day 11 after EC so fingers crossed xxx
Sorry to hear you are feeling so tired, fingers crossed you improve each day. At least you have something fun to look forward to. Jane x
Hello ladies - got my mri results and shows a complete pathological response - I can’t believe it! Waiting to hear if I need EC or straight to surgery, I should hear next Fri. Still have pacli next Wed. James’ bday today too and mum finally on a ward!
@emsd2025 that’s amazing!!! So chuffed for you xxx
Thank you soo much @story1
@emsd2025 that’s fantastic news About your response and also your mom being out of ICU and on the ward. You must be so relieved, I’m really pleased for you.
@story1 sorry you’re feeling weak. Our bodies are going through so much, plus the emotional/psychological journey is tiring too. Well done on still nourishing yourself well. I confess, on some of my damp dishcloth days I’m not very good- just eating grabbable things like trifles, biscuits etc. hey ho. Anyway, rest up and hope you feel better soon.
@anim4l i hope you’re getting some good rest, lots of fluids and good food. You’ve been through a punishing chemo regime already, your infected pic and now weekly paclitaxel (which doesn’t give much space to recover between doses). I hope you can be gentle with yourself and give your body time to recover. This is temporary, it will pass, you will have more energy in the future.
@cathie2 hope your last dose goes smoothly. Does your unit have a bell? Will you be ringing it? By the way, I remain seriously impressed with your ability to keep track of us and tag us with personal messages.
@bellbert halfway is a good milestone. This journey isn’t easy is it? I’ve thought about stopping more than once, but when I reached halfway I became resolute about finishing the full course.
@dizzy3 I think we all have a can’t be arsed phase at some stage. Totally normal. This is a crap journey and being positive and resilient constantly is a bit unrealistic. I’m with you re picc line. I’m really looking forward to a soak in the bath in the new year.
@cridders hope you’re feeling better now.
I got a last minute slot at gp today for flu jab. Am hoping that any side effects are minimal, am anaemic again- so pretty knackered already . Not impressed with the practice nurse though- sat with no window open or mask on - with clear sniffles - running a flu jab clinic for people eligible for free nhs flu jab - I.e. vulnerable! I was wearing an ffp2 mask anyway and she popped a surgical one on when she realised I was on chemo. My white cell counts are ok at min, so hopefully with masking too I’ll dodge whatever she has.
Sending good vibes to you all - that’s the regular posters and those who lurk or don’t post often too! Xx
Just catching up and too tired to do individual responses but had to say
@emsd2025 
amazing!!! The dream! Complete pathological response!!!
Couldn’t be happier for you!
Thank you so much @buggeringon - I feel so very lucky! You ladies are amazing!
Thank you sooo much @anim4l so kind of you! Rest well and I hope you get to spend some time with your daughter over the weekend
