Sept 2025 chemo starters

[buggeringon]

Hi all. Blimey, so much going on with everyone.

@anim4l thanks for the slide and info. Even though I’m still on some treatments I’ve been feeling the dip mental health-wise, as the very active time is done now. Time out for the mind to process it all is good (in my case at least) for my mental health. The last two weeks I had as holiday have really helped me. During chemo etc. I needed the distraction of work, but currently working stops me dealing with reality of the new situation. That said, I’ll have done 10 hours probably by the end of this week! It sounds like your body is doing well in terms of recovery post-chemo and good results too - am really pleased for you. Fingers crossed all symptoms will diminish with time.

@cridders Brilliant! So pleased. I think I’d assumed I’d want to party at end of active treatment too - truth is I’m too knackered and sore I just keep pushing out the celebration date, we’re just sailing past the six weeks since radio so next date is likely to be end of herceptin (bastard) at end of September.

@emsd2025 glad your radio staff listened and acted appropriately. Well done for advocating for yourself, shocking behaviour from the nurse. Hope little one is better soon.

@bellbert you conjure up some images​ Glad you’re doing well with the radio. Is the neuropathy easing at all?

@story1 facial sounds lovely idea. We’ve got to make sure we make time for pleasures, in this new/second life post treatment. I’m treating every day from now onwards as a bonus - the news could have been so much worse. I’m somewhat in awe of your recent two hour walk - most I can manage is about 20 minutes on good days, need a little rest afterwards and leg/knee pains not too bad (but at limit I’ll push them to, as the more I do- the more I hurt).

@cathie2 How are you getting on? You write so many supportive posts, but I’ve realised I’m not clear on how you are. I too am very grateful my work has been so supportive, it’s made such a positive difference. I still haven’t decided whether I need a proper block of time off yet

@molly.m The trolley sounds perfect and fun!

Sending love to you all xx

[bellbert]

Hello Ailsa @molly.m , what a brilliant idea, using a trolley! Are you finding that your legs are worse after the leg injections and then get a bit better, or do they stay the same all the time? I get swollen legs and ankles, that are really heavy and ache, but it is much worse for the few days after the Phesgo injection and then slowlt improves, until the next injection, 3 weeks later. I am pleased to hear that your stick has helped your hips though My eyebrow hairs are still shedding and eyelashes, but I have some thicker areas of hair, mainly at the top and back of my head and you can see through the white hair at the front, individual very dark hairs , growing, I can probably count the number on 2 hands, but at least it is showing something is happening in the baldy areas Jane xx

[bellbert]

Hello, I am pleased to hear that your break from work, has given you some time to sit and process things, hopefully in a good way. The neuropathy in my finger tips is slightly worse I would say, only slight pain occasionally, but numb all the time. I have got used to it now, I do drop things occasionally, but apart from finding it difficult to undo packaging, not too bad really. Luckily my toes are fairly unaffected. Like you I can really only walk for around 20 minutes, sometimes relatively easily, but other times I am really tired at the end. I expect our stamina will recover in time, it’s still early days yet. I have my first annual mammogram on 14th April, one year since diagnosis, so I expect the wait for those results will be a bit nerve wracking. I haven’t had a scan, apart from the radiotherapy planning one, since just before the start of chemo, so around 8 months ago. If there is anything new there, better to find it sooner rather than later though. Jane xx

[story1]

Did anyone use silicon gel on scars? I was recommended it but tried to get it cleared by breast nurses and couldn’t get hold of them today only by text and she said strips not gel and I wonder if she’s misunderstood me.