Ali
Do you have any deep heat rub? That helps sooth for a short while? V pillow is helping my back and I’m having 2 Epsom soaks a day! Just think that we qould be worried if rhere was no pain as then we will think its not doing its job? It is hard, sometimes I feel my knees are going to give way. Lets hope for the best and try not to rhink of the pain and put some chessy TV on. I’m watching The Mekong River with Sue Perkins. Vietnam is a place I would like to visit. X
Mrs Meow
Its a good idea to be prepared with painkillers even if we dont use them. Your cooking sounds yummy!
Snappy, shouty and angry is good, get it out of our system!!! God help whos around us!!!?
Ali
Do you have any deep heat rub? That helps sooth for a short while? V pillow is helping my back and I’m having 2 Epsom soaks a day! Just think that we qould be worried if rhere was no pain as then we will think its not doing its job? It is hard, sometimes I feel my knees are going to give way. Lets hope for the best and try not to rhink of the pain and put some chessy TV on. I’m watching The Mekong River with Sue Perkins. Vietnam is a place I would like to visit. X
Mrs Meow
Its a good idea to be prepared with painkillers even if we dont use them. Your cooking sounds yummy!
Snappy, shouty and angry is good, get it out of our system!!! God help whos around us!!!?
And Cathysid, SueW, Fairydust, Jow, Meesh, Sam, Chaffinch, Shi, Whytefawn, Jencat, Geordie, Buddy, Ali S! Go girls!!! We are troopers???
This t switch that some of us Oct girls have this week sounds like it’s going to be double pair of Wonder Woman pants with bells on required… ali are you joining us on the ?roof as the t girls surf the roof of the train, the fec girls are holding onto our gold hot pants to make sure we don’t fall off and us on the roof are are holding each other’s gold hot pants so we get through safely ??shi xx
I’ve been reading your posts with interest as I and some of the ladies on the Oct thread are switching to T this week. A little anxious about it as it’s the unknown I suppose. After 3 FEC we know what to expect but T is a different kettle of fish.
Hi ladies hope you have had a good night - day 6 second T (D) for me and I know others are at the same point - this time on first T I hadn’t slept for days yet this cycle am sleeping more than normal - no happy medium! It feels quite good to hVe slept from 1 till 7 with no painkillers - though feel someone is screwing my legs off at the knees currently. Last time I was sure I had thrush in my mouth over the weekend but had no medication for it - this time I came home with tablets but actually have managed to keep sore mouth at bay with the benzydamine mouthwash and it seems to be a bit better today. A new surprise on the symptom bingo is very brown wee with a sore tummy but no other symptoms of temp so will just see if it settles - random symptoms continue! For those starting T it is nerve wracking especially if you have been getting used to fec - and it is different but also a bonus not having sickness - I literally haven’t taken any further anti sick tablets since the steroids stopped on day 2.
Not sure if anyone else feels the same but I hadn’t expected chemo to provide psychological symptoms too- the day 4,5,6 tears and grumps and frustrations I thought was just me till I looked at these lovely forums and discovered everyone else at the same stage all raging with the world too haha. Is different from the psychological effects of diagnosis and is definitely from the chemo - who knew?! The good news is it does seem to lift and I definitely had better ‘good’ days after T than the good days after fec - which is brill if I am ever going to get organised for Christmas- I managed to watch santa parade from the end of my drive yesterday- he goes past with bagpipes in this part of the world and it was cute to see and means the town will now be Christmassy every day when it gets dark.
Have a good day all - anybody having bloods today? Good luck and love xx Mrs M x
Morning ladies! I’ve just been for ?for chemo 4 tomorrow ??I’m staying on fec til the bitter end not sure if that’s a good thing or not ?at least I know what the SEs are but not looking forward to the nausea which seems to increase on chemo Day with each treatment for me So not looking forward to tomorrow. I’m going to call chemo team later and ask what I can do about it. There are a lot of us oct girls on the chemo ?This week all with our ????gold hot pants on! We’re getting the big guns out to help us stay on track and try and avoid any scheduled stops!
Hope your SEs ease soon ladies, hang on in there the end must be in sight for some of you? ??
Hi Meesh - sorry am not up to date with what anti sick you have tried but because of my history I went to akynzeo with round 2 fec and haven’t been sick since - it’s expensive so am not allowed it on T but it was great for me on fec and is only one tablet an hour before chemo starts - good luck this week xxx
Yep, Akynzeo is the only one that’s worked for me too! It has been fab. Haven’t needed any other antisickness after one of them on chemo day.
Love the image of Santa with bagpipes!
I am on akyzeno too
Take it at home 1 hour before chemo and told it lasts up to 5 days
I was told could not have when move to t but t got home looked in my bag and there was 1 in there so I shall take it they can’t ssk for it back if I already took it ha ya xx
Thanks everyone! Haven’t actually been sick yet on chemo day but was very close last time. I was just prescribed my steroids and ordansetron for chemo day and tthen steroids, ordansetron with domperidone top up for 3 days after chemo but last time they said I could take donperidone on chemo day too. I felt sick before they even started last time! I’m trying not to get worked up about the thought of the nausea tomorrow as I suspect that’ll make it worse but it’s hard
Morning and good luck to this weeks chemo ladies!
Hope youve had a manageable weekend although I dont have a difference in weekday or weekend now apart from going into work when busy reminds me its weekend!
Day 6 of 2nd Doxetaxol and apart from a slight headache the aches and pains have lessened but they could always come back:0 Touch wood, Doxetaxol hasnt been as bad as I anticipated and ? this one easier than first one as maybe the drug is used to my body now! Wishful thinking and I know anything can happen still but just got to kerp on it and check temp temp regularly.
Ive had an Epsom salt soak every evening like last cycle b4 the pains started and sometimes one during the day too. They really have helped me.
Nails have gone a hot grey despite dark carnish. More dark circles under eyes so wear my LGFG concealer when going out. Not used most of the goodies yet, but Im sure I will at some stage. Just not got the mood to do a full regime and make up.
Scars from Doxe burns have cleared with the help of Diprobase ointment. It was strange how the wound was in line with my cannula nerve and how well its healed. Still cant get rid of rhe thrush though:(
Daughter back from York uni tonight. Ive promised myelf a chill day as done more than usual on my chemo week.
Xmas cards posted and tree up. Not much for me to do at Xmas as most family overseas or far away so will concentrate on Meh!!! Now, what do I want to eat today? Eggs are in my mind again! This cycle its desserts and eggs!! Had 2 custard tarts last night and I’ve boiled some eggs for salad???
Meesh, I used Amend on EC which helped towards no sickness. I also wear sea bands which may help too.xx
Mrs Meow
Glad you are feeling good too. I think its a package, emotions, moods, tears. We are having to deal with a lot:)xx
Hiya. Question for those of you on T now. Do you still get the fuzzy foggy dizzy head like on FEC? I’m just trying to work out what I can work after my first T on Thursday. I work from home so as long as I can concentrate and sit at my desk I’ll be ok.
Hi Whytefawn
Im dat 6 after number two and there is still a fuzzy daze but I was able to work on Fri and Sat night and on my feet a lot. My onc said act as normal as possible. I am resting today though.x
On D was not so much of a fog head for me but felt more unwell in the early days (even though no sickness) if that makes sense - so not too doolally but I would have felt too sore to work much before day 6 - others have a different experience though as I have been signed off since June as my work involved air and train travel etc
It is my 5 year work anniversary today which is making me so upset as was made redundant a month ago - I think I genuinely find it scarier to be out of work than all the treatment that I have faced so far and is definitely affecting how I feel about recovery as soon as am able will have to start knocking on doors - trying not to let it overtake me as others have much much higher hills to climb - hopefully 2018 will be our year folks… xxx
CK enjoy your daughter’s return - daughter hugs are the best medicine and she will be delighted to see how well you are doing x
Cath hope you are back in full voice - btw I didn’t really mean Santa had the bagpipes - he is escorted along the high St by the pipe band - but your version is better haha! X
Ali hope you are not too sore and Shi I need your help as my gold hotpants Def do not fit as have put on a ridiculous amount of weight on chemo - it will go but am so embarrassed every time I get on the scales in the chemo room and take my boots and glasses and jumper off etc - it always makes the nurses laugh and I have to bribe them not to tell my OH what a blimp I have become! X
Hi CK I already wear the sea bands (although kept forgetting to put the back on after showering last cycle) but thanks fir the emend tip. I’m going to see if they can change meds if just for chemo day.
Mrs Meow, I understand how distressing being made redundant is. I moved to live with OH nearly 10 years ago and part of that involved getting a good job here (there aren’t many for what I do). They paid for my move and house sale etc. but 8 months after I started there they made me redundant. I was so upset (I actually hated the job and the people) as I’ve always worked since I was 15 and felt all at sea by the thought of having no job or income. Really feel for you going through this and worrying about work too but You will find something else though and hopefully it’ll be better than your old job!
You’ll be ok in our gold hot pants, they are Lycra ones ???do expand to accommodate us sh11ting ourselves with each round, oh sorry that’s Just whuss me ???shi xx
I think the T is differentvfor different people. I havent felt fuzxy headed or sick but have been in pain and very tired. I look pale and miserable!! My advice is to have painkillers - good ones - in, get stuff forxa sore mouth and tablets for diaorreah from your nurse - just in case.
The brown wee i was told yesterday, is typical cheko wee.
SueW perhaps the anti sickness that they said you couldnt have with docetaxol doesnt agree with it. I have not had sickness with tax but took tje anti sickness they gave me just because they ssid to. Good luck everyone xx
Mrs Meow when iwent to the walk in on saturday they said the brown wee is a result of all the drugs! I had the painful tummy too. I think our bodies are just reacting to the shock! They did say i had some keytones so needed to eat and drink a bit more! I am trying but everything tastes like cardboard - even water!!
My temp is also varying but does go down when i open windows etc. But dont ignore a high temp. I really want to avoid a and e too though. I wish there was somewhere to go to get bloods checked etc without a and e!!
My leg pain returned in the night together with the gscf pain. I have sore ears a skanky mouth and am generally feeling garbage!! My gums are sore and bleeding when i brush and my tongue feels like its an alien in my mouth. Oh and an itchy bum to boot!! My eyebrows are thinning now and i feel.like the little hair that i had on my head has gone less!!
Anyway my hubby is making me toast and hot chocolate then i am going to take painkillers, do the mouthwash and Nystin and stop feeling sorry for myself!!
Mrs Meow i hope things improve for you today. Lots of love xxx
Ali,
Sorry you are feeling so crappy. It’s that time for emotional down too usually. Things should start to improve on day 8 though.
Have you tried potato? I find it tastes normal even when everything else tastes of nothing. It doesn’t upset the tummy either! Also sipping sparking cold mineral water tastes so much better than tap water!
Mrs.M - hope the temperature has stabilised and you managed to get some sleep, rather than running round your neighbourhood in your nightie all night! Hope the leg pain has settled.
So not looking forward to tomorrow. I’m going to call chemo team later and ask what I can do about it. There are a lot of us oct girls on the chemo ?This week all with our ?
